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Las mujeres hablan: Educacin del VIH/SIDA desde la perspectiva de la comunidad.
Women speak: HIV/AIDS education from a community perspective.
A study on AIDS prevention in the Monteverde Zone community
Un estudio sobre la prevencin del SIDA en la comunidad de la Zona de Monteverde.
HIV/AIDS awareness--Costa Rica--Puntarenas--Monteverde Zone
HIV prevention community planning--Costa Rica--Puntarenas--Monteverde Zone
Health education--Costa Rica--Puntarenas--Monteverde Zone
Rural women--Costa Rica--Puntarenas--Monteverde Zone
Community Health 2004
Rubio, Oriana Ramirez
t Community Health
WOMEN SPEAK : HIV/AIDS EDUCATION FROM A COMMUNITY PERSPECTIVE Researchers Renee Cadzow Leslie Gross Catherine Klein Oriana Ramirez Rubio Faculty Advisors Nancy Romero Daza David Himmelgreen Field Methods for Community Health Monteverde Institute June 19 to August 1, 2004
2 Primary Researchers The research team was comprised of four women from different research, educational and regional backgrounds. Renee Cadzow, MA, is a doctoral student at State University of New York at Buffalo in the departm ent of physical anthropology. Her Spanish proficiency is intermediate. Leslie Gross is an MPH student at University of South Florida in the d epartment of p ublic health. Her emphasis is global health and her Spanish proficiency is basic. Catherine Klein MA is pursuing a doctoral degree at the University of South Florida with in the d epartment of a nthropology and she speaks basic Spanish. Oriana Rami rez Rubio is a physician in Spain and native Spanish speaker. Her medical degree is from the Universidad A utonoma de Madrid and she has a Certification in Intern ational Cooperation and Health from the Universidad Complutense de Madrid, Spain Introduction their i nvolvement has important implications for the sustainability and appropriateness of ( Cornwa ll and Jewkes 1995: 1674) This is an intervention project inspired by the guiding principles of c ollaborative Participatory Research. This project focus e s on using the create culture appropriate educational materials for HIV/AIDS prevention for rural women and to identify the most effective channels to disseminate this information. This research is important in Costa Ric a because, according to the Costa Rican Ministry of Health there is a growing problem of HIV/AIDS in the country with a n adjusted mortality rate of 3.2/100.000 in 2001 According to UNAIDS/WHO, 11,000 ( 0. 6%) Costa Ricans were living with HIV/AIDS in 2001. In 2003 research conducted by the Monteverde Institute and the University of South Florida indica t ed a need to develop culturally appropriate HIV awareness and education materials targeted at men, women, and children. We selected a population of rural
3 wo men for various reasons. First, UNAIDS/WHO (2004) indicates that women are more vulnerable to HIV infection and can be 2.5 times more likely than men to contract HIV/AIDS. Second, there is a deficit in intervention s that addres ses the specific needs of w omen. Finally there are time and money limitations, making the immediate community the most viable study population. creation of HIV materials for their peers. This project a lso strives to increase HIV knowledge in the community and to decrease any misconceptions that might exist. Purpose ASSESSMENT : To assess level of HIV/AIDS knowledge among project participants via questionnaires and interactive exercises. EDUCATION : T o increase knowledge of HIV/AIDS, transmission pathways and prevention strategies among women. INTERVENTION : To actively involve women from the community in the development of culture appropriate HIV/AIDS educational materials for their peers. This educa tional material may take the form of posters, t shirts, calendars, pamphlets or any other creative design that the participants prefer. Methods Characteristics of the population Our population of interest was adult w omen (18 years and older) from a rural community in the Monteverde zone P articipants were recru ited through flyers distributed at a local community he alth fair, by word of mouth, and by posters displayed at the community center, the clinic (EBAIS), and a pulperia (general store) (See Appendi x A) The researchers collected demographic information including: age, marital status, number of children, number of people
4 living in the household, how many years of local residency, educational level and occupation (see Appendices E & F ) Mechanisms f or the intervention This intervention project was carried out through a series of group meetings with local women (See Appendix J ) An initial meeting was conducted with 6 women In this meeting the researchers first gave an introduction to the project an d administered the consent and demographic forms (see Appendix D & E ) A 22 item questionnaire ( see Appendix G ) designed to assess HIV/AIDS knowledge was then administered. Following this, the researchers led a n exercise assessing risk perception related to behaviors and people ( see Appendix M ). This exercise asked participants to group phrases describing behavior and photos of people into high, low or no risk categories. T he researchers then distributed educational material ( see A ppendix N ) and one membe r of the research team (a certified AIDS educator and physician) led a lecture on HIV/AIDS The final events of the meeting included discussion of subsequent meetings and an appreciation exercise. The women were then invited to two follow up meeting s. T he first hour of the second meeting was a repeat of the main ideas from the first meeting for the benefit of new participants. In the second part of the meeting the researchers asked the women to evaluat e current prevention campaign materials that were exh ibited in one of the rooms Five of the materials were from Spain and one from Costa Rica. The correlating evaluations for each of the six items included both Likert scale and open ended questions regarding perception of the clarity of i nformation and whether they were comfortable sharing the information with family and friends A ¨brainstorm¨ session was then held to discover what the participants consider ed the most eff e ctive way to disseminate HIV awareness information to other commun ity members At the third meeting participants reviewed some of the prevention and transmission methods from the risk collage exercise. Utilizing many of the same phrases, participants then work ed
5 together to finish the t hree new HIV awareness designs th a t they consider ed appropriate for their community. The three designs had been the creations of individual women who then collaborated to transform them into their final state. The initial questionnaire was then repeated and a sign up sheet was passed arou nd for those interested in participating in future studies. The meetings were brought to a close by repeating the appreciation exercise. Information was also gathered through informal interviews with the noted community resource people as well as with loc al community members. Due to the limited availability of information and the currently ongoing Global AIDS C onference in Bangkok, phone interviews with the Ministerio de Salud produced minimal results. With the participants permission, the interviews an d g roup meetings were tape recorded and note s taken The designs and the research conclusions were presented at a community presentation. The newly designed educational material was graphically enhanced by the researchers and one or more of the final produ cts will be printed by the Monteverde Institute and distributed to all of the participants. In the future, it may also be made available to the local clinic and education programs via the Monteverde Institute. Data Analysis D emographic information and mat erial evaluations are summarized in Appendix F & I Material evaluations were scored in accordance with Likert scale results and relevant comments. The 22 item questionnaire was broken down into the following five categories: 13 transmission, 3 biology, 2 prevention, 2 stereotypes and 2 treatment. The researchers reviewed the results of the r isk perception exercises in order to guide the discussion about prevention and transmission methods in the third meeting. In order to p rotect the identity of project participants, we use d alphanumeric codes instead of names in all documents derived from the project. Any forms that contain identifying information
6 will be stored in a locked cabinet at the Monteverde Institute along with al l tape recordings and notes A ll of these will be destroyed in three years. Results A total of eight women participated in this intervention project. They ranged in age from 23 to over 50 All of these women were married and had children that range d in age from 21 months to over 30 years The majority of women had a primary educational level one had high school and one had attended c ollege. makers and they had resided in the Monteverde area between six and fifty years. The first questionnaire showed that subjects displayed minimal knowledge of all five categories presented. The second showed marked improvement in all categories. The risk collage game also revealed a lack of knowledge regar d ing pathways of transmission, biology, prevention and treatment It also revealed some existing stereotypes regarding who is at risk for becoming infected. Many of the women thought that HIV could be transmitted through kissing. Some also thought that a condom would not prevent infection because they perceive it as not always preventing pregnancy. They categorized men in the military and a man dressed only in his oup of For additional results from this exercise, refer to Appendix M After the educational talk, it was concluded that it was not ce rtain types of people who are at risk but rather certain b ehaviors that put people at risk. The most notable results were the designs that were generated by the women. They were an receptiveness at the local presentation was an indication of the success of the interv ention. All of the designs were all rated favorably on a Likert scale (a total o f 16 people responded)
7 Conclusions Upon assessing the questionnaire, it was noted that most of the questions (13 out of 22) were about transmission. This is not necessaril y a limitation, however, as it is important to understand transmission in order to avoid infection. Also, many of the transmission questions overlap with the other categories of prevention and biology. Question number 22 on the questionnaire was problema tic construed as a correct response. These issues should be addressed prior to repeating the intervention. the people with a nd for 1995: 1674) In designing the research with an assessment, education represent and assist the people with whom they wor ked. The design flowed well through the three focus groups and it produced results within a two week time period. Though there were relatively few women involved, the women that were involved seem to be active within the community and are very interest ed in continuing a project related to HIV/AIDS either with the help of the Monteverde Institute or on their own. Acknowledgements We would like to thank the community of Caitas and the women who participated in this project. Additionally we are indeb ted to our course coordinators Elsa Batres Boni and Gaudy Picado and our faculty members Nancy Romero Daza, David Himmelgreen and Lynn Morgan. Invaluable support was also provided by community leader Maria Elena Corrales and by local artists P atricia Jim nez and Marcos Brenes
8 Limitations of Study Time and money restrictions confined the study to the immediate rural community that the researchers were staying in. Due to the small sample size, this data can not be generalized as a representation of the p opulation nor can the findings be considered statistically significant. Recommendations for Future Studies o Tape record all sessions. o Offer incentive for parti cipants to attend all meetings (more than just cookies and coffee) o Childcare during meetings! o Co mmunity door to door for recruitment. o Utilize Patricia as a resource to reach over 100 women involved in various local art activities. (She has already been contacted and has indicated an interest in participating in future studies). o Re plicate this interve ntion model with other communities: women, men, partners, young people and families o Develop a static, interactive HIV/AIDS charla that could be used in: o P eer to peer education program for adults and youth. o Clinical or scholastic settings.
9 Referenc es AIDS in Costa Rica: www.unaids.org Boletn epidemiolgico: SIDA en Costa Rica : http://www.netsalud.sa.cr/ms/estadist/boletin/a2002 Corrales, M aria Elena. Science teacher at Colegio Santa Elena. Spanish proficiency: Native speaker. Cornwall A, R. Jewkes (1995) What is participatory research? Social Science and Medicine 41:1667 1676 Klempner Sofia MPH Clave Centro Cultural. Spanish proficienc y: fluent. Morgan, L. 1993. Community Participation in Health: The politics of primary care in Costa Rica. Boston: Cambridge University Press. Murillo, Guillermo. Executive Co Director of AGUA PURA and human rights activist. Spanish proficiency: Nativ e speaker. Nichter, M (1999) Project Community Diagnosis: Participatory research as a first step toward community involvement in Primary health care. In R. Hahn (ed.) Anthropology in Public Health: Bridging Differences in Culture and Society Oxford Univer sity Press, New York: 300 324. Oficina Fundo Global. Contact people: Sara and Margarita. 506 256 9413, 506 248 2261. Para controlar la epidemia del SIDA, Centroamrica debe invertir ms en prevencin http://www.hiv lac epinet.org/?view=1&cat=64&sub_select=5 Salas, Jessica. Ministerio de Salud. 506 223 0333. Schwartz NB (1981) Anthropological views of community and community development. Human Organization 40:313 322 Scrimshaw SCM, Hurtado E. Rapid Assessment Procedures for Nutrition and Primary Health Care: Anthropological Approaches to Improving Programme Effectiveness Published
10 jointly by the UCLA Latin American Center, the United Nations University (Tokyo) and UNICEF. 1 987. Spradley, James P. The Ethnographic Interview Fort Worth: Harcourt Brace Jovanovich College Publishers. 1979. pp. 45 68, 78 91. Terwes, Gloria. Programa Control SIDA. 506 256 9630. Vargas, Noe. Community member, participated in HIV research with t he Monteverde Institute in 2003. Spanish proficiency: Native speaker. World AIDS Campaign 2004: Strategy Note : www.unaids.org Yach, D (1992) The use and value of qualitative methods in health research in developing countries. Social Science and Medicine 603 612.
11 Mujeres Eduquen a su comunidad sobre SIDA!! Diseen un Poster, Camiseta, Calendario, Bolsa u otro material educativo original Habr un premio para el mejor diseo!!! El diseo ganador ser pres entado para la comunidad el 26 de Julio y ser impreso y publicado para la comunidad. Primera Reunin en Casa Club Miercoles 14 Julio 4:00PM Habr Refrigerios y Snacks L ogo borrowed from firstname.lastname@example.org. Appendix A
12 Mujeres Eduquen a su comun idad sobre SIDA!! Diseen un Poster, Camiseta, Calendario, Bolsa u otro material educativo original. Habr un premio para el mejor diseo!!! El diseo ganador ser presentado para la comunidad el 26 de Julio y ser impreso y publicado para la comunidad Primera Reunin en Casa Club Miercoles 14 Julio 4:00PM Habr Refrigerios y Snacks Si tiene ms de 18 aos y est interesada en participar, recorte esta parte, rellene los datos y entrguela en la caja Nombre (o cua lquier apodo): ------------------------------Telfono de contacto: ------------------------------------------podr acudir a la reunin del Mircoles 14 Julio o es mejor otro da para usted? Gracias por tu colaboracin!!!!!! C alendar for ¨Women Speak: June & July 2004 Appendix B Appendix C
13 Sunday Monday Tuesday Wednesday Thursday Friday Saturday 27 28 Meet with Noe Vargas to discuss past HIV/AIDS work 29 30 Informal Interview with Dulce (community member ) 1 Informal Interview with Cristina 2 nformal Interview wit h Sofia 3 4 5 Contact Guillermo about national available information on AIDS. 6 7 Invite women from the Clinic to participate Contact Maria Elena (science teacher) 8 Chequeo Mdico and recruitment of women participants 9 Contact women who volunteered to participate. 10 Meet with womens group to recruit participants 11 Prepare material for Workshop/ First meeting 12 Prepare material for Workshop/ 13 Prepare material for Workshop Call women who signed up 14 First Workshop 15 Analysis of first group mee ting and preparation for second. 16 Preparation for second meeting and Call women who signed up. 17 Second group meeting 18 Analysis of second meeting preparation for third 19 Analysis of second meeting and preparation for third 20 Analysis of second m eeting and preparation for third 21 Third Group meeting 22 Meet with Marcos to discuss artistic enhancement of design. 23 Analysis of third meeting and preparation for community presentation. 24 Preparation for presentation (Graphically enhance designs) 25 Analyze data and prepare presentation 26 Present results to the community 27 Additional results from community presentation analyzed and added to final product. 28 Additional results from community presentation analyzed and added to final product. 29 Academic Presentation in Monteverde Institute 30 31 Additional Meetings may be scheduled according to the participants availability.
14 Educacin para un Futuro Sostenible... Education for a Sustainable Future Consentimiento Para Su Participacin E n Un Estudio de Investigacin Instituto Monteverde Quines somos y por qu se me est pidiendo que participe en este proyecto? Somos un grupo es estudiantes del programa de Salud Pblica del Instituto de Monteverde. Estamos interesados en trabajar con m ujeres de la comunidad para disenar materiales educativos sobre el VIH SIDA que sean apopiados para las mujeres de la zona. Estamos invitando a todas las mujeres mayores de 18 aos que quieran participar en 2 a 4 reuniones. Qu tendr que hacer? Tendr la oportunidad de participar en un taller educativo donde se pondr a mi disposicin toda la informacin ms reciente sobre VIH/SIDA. Se me pedir que adems participe en una o ms sesiones donde las participantes disearan un material educativo vlido p ara la comunidad acerca de la prevencin de VIH/SIDA. Cmo se utilizar la informacin? La informacin obtenida de las sesiones ser utilizada para desarrollar materiales educativos dirigidos especialmente a las mujeres. Estos materiales podrn servir de modelo para programas similares en otras comunidades. El 26 o 27 de Julio habr una presentacin final para toda la comunidad de los resultados de este proyecto as como de los materiales que se desarrollen. Cules son las caractersticas de este conse ntimiento? Le estamos pidiendo su consentimiento para participar en este proyecto. Su participacin es completamente voluntaria. Podr mantener su nombre confidencial. Su nombre no ser incluido en ninguna informacin que pueda identificarla. Adems, usted puede rechazar contestar a cualquier pregunta que no quiera discutir. Usted podr interrumpir la colaboracin con el programa en cualquier momento sin ninguna consecuencia para usted. Y si tengo preguntas sobre el estudio? Si tiene preguntas mientras o despus del estudio, o si decide que no quiere incluir sus respuestas, puede contactar a Elsa Batres o Nancy Romero Daza en el Instituto Monteverde (506 645 5053). Cmo voy a beneficiar de este estudio? No ser compensada por su participacin en el es tudio. Pero si proveer informacin importante para ayudar a aumentar el conocimiento sobre VIH/SIDA. Como agradecimiento por su participacin, le brindaremos refrescos y meriendas durante las reuniones. Adems el mejor diseo ser recompensado con la pub licacin del mismo y su presentacin para toda la comunidad. S_____ No_____ Yo quiero participar en el estudio. S_____ No_____ Estoy de acuerdo con que se tomen fotos y entiendo que mi foto podrn ser parte del reporte. S_____ No_____ Estoy de acuerdo con que se grabe en cinta la voz de mis conversaciones que ser guardada con seguridad y destruida en tres aos. _________ ___________________________________ Fecha Firma __________________________________________________ Nombre Escrito de la Participante Firma De La Persona Pidiendo El Consentimiento Appendix D
15 Educacin p ara un Futuro Sostenible... Education for a Sustainable Future Informacin General Edad____ Estado civil: Casada____ Soltera____ Divorciada____ Separada_____ N mero de hijos(as)_____ Edades de hijos(as)_____ __________ Cu ntos personas viven en s u casa? ___________________ Cuntos aos vive en la regin de Monteverde?__________ Nivel de educacin: Primaria____ Secundaria____ Universidad____ Otra (lista)___________________ Ocupacin (trabajo)_______________________ Appendix E
16 Demographics of Part icipants Range VIH 01 VIH 02 VIH 03 VIH 04 VIH 05 VIH 06 VIH 07 VIH 08 Age 23 mid 50's 50 ? 23 40 30 35 23 52 Civil State All Married Married Married Married Married Married Married Married Number of Children 1 to 6 6 6 2 3 2 3 1 4 Ages of Chil dren 1.9 months to mid 40's 29, 26, 25, 19, 18, 16 yrs ? 2 yrs 6 mos, 5 yrs 4 mos 14, 11, 9 yrs 10 yrs, 1.9 mos 15, 14 12 yrs 6 yrs 23, 22, 20, 18 yrs How many people live in your house? 3 to 8 8 3 4 5 4 5 5 4 How many years living in the Montever de region? 6 to 50 yrs 21 yrs 50 yrs 6 yrs 18 yrs 30 yrs 12 yrs 23 yrs 38 yrs Level of Education Elementary (2nd) To College College Elementary 2 Elementary 5 Elementary Secondary Elementary Elementary Elementary Occupation (Job) Retired Domestic Hom e maker Home maker Home maker Home maker Home maker Home maker Appendix F
17 Educacin para un Futuro Sostenible... Education for a Sustainable Future 1. Puede contraer VIH/SIDA a l utilizar los mismos platos, vasos o cubiertos ? Si / No 2. VIH es una bacteria? S / No 3. Puede contraer VIH/SIDA a travs de animales? S / No 4. Puede contraer VIH/SIDA por va sexual? Si / No 5. Se transmite el VIH/SIDA por la leche materna de la madre infectada? Si / No 6. Puede contraer VIH/SIDA en baos o piscinas? Si / No 7. Puede contraer VIH/SIDA por su esposo? Si / No 8. El preservativo es el mtodo ms eficaz para prevenir la transmisin del VIH/SIDA en las relaciones sexuales? Si / No 9. Puede contraer VIH/SIDA por el aire? Si / No 10. VIH es un virus? Si / No 11. Puede contraer VIH/SIDA por picaduras de insectos? Si / No 12. Puede contraer VIH/SIDA al estrechar la mano, abrazar o besar? Si / No 13. Se transmite el VIH/SIDA por va perinatal a travs de la placenta de la madre infectada? Si / No 14. Solamente personas promiscuas pueden contraer VIH/SIDA. Si / No 15. Con la nueva medicacin, una persona con VIH/SIDA puede vivir muchos aos con pocos sntomas. Si / No 16. Son VIH y SIDA lo mismo? Si / No 17. Los preservativos no son efectivos po rque VIH es algo tan fino que lo pasan? Si / No 18. Puede contraer VIH/SIDA por va buco genital? Si / No 19. Puede contraer VIH/SIDA co n las perillas y los telfonos? Si / No 20. Puede contraer VIH/SIDA por va sangunea, a travs de transfusiones, jeringas y objetos punzo cortantes? Si / No 21. Solamente personas homosexuales pueden contraer VIH/SIDA. Si / No 22. No hay ninguna cura para VIH/SIDA. Si / No Appendix G
18 Appendix H
19 Educacin para un Futuro Sostenible... Education for a Sustainable Future Numero______ Instrucciones: Una vez visto el material responda a las preguntas y califique lo que se pide conforme a la escala que considere usted apropiada. 1. Que da claro el mensaje que presenta este material ? 1 2 3 4 5 Poco claro Muy claro 2. Cun a gusto estara compartiendo esta material con sus amigos ? 1 2 3 4 5 Incmodo Muy a gusto 3. Cun a gusto estara compartiendo esta material con su familia ? 1 2 3 4 5 4. Consider usted que ste es un buen material educ ativo ? Si No Por qu si? Por qu no? _______________________________________________________________________________ ___________________________________ ____________________________________________ ____________________________________________________ ___________________________ _______________________________________________________________________________ __________________________________________________________________________ _____ ________________________________________ _______________________________ ________ Appendix I
20 Order of events for Focus Group 1 (July 14, 2004) : 1. description of what our objective is for the meeting and for the project as a whole. 2. Distributio n of consent forms and general information forms to all of the women at the meeting (see Appendix). a. After everyone has both forms one of the researchers introduced the consent form. She described para esta p that everyone would read it together. While the researcher read the consent form, questions were welcomed. The final part of the form, where the participants are supposed to mark whether they agree to the terms, was further explained (about taking pictures and recording their voices). b. After the consent form was complete, a researcher read the general information form out loud and individual assistance was provided as needed. 3. Distribution of the 22 Item Si/No ques tionnaire to all of the participants (see Appendix). The questionnaire was first explained and participants were asked to answer individually. They were also informed that if they were unsure of the answer they could leave it blank or if they agreed with part of the question but not with another they could circle both. They were also encouraged to write any comments on the paper. The questionnaire was then administered orally by one of the researchers and there were pauses between each question for the participants to mark their answer. Again, another researcher was available to provide individual help on questions if it was necessary. (We found that people tried to collaborate on this exercise if they were not initially told to work on their own. Becau se the next part of the meeting was a collaborative effort we kindly discouraged collaboration on this one). 4. Collection of questionnaires. We set placed the questionnaires in a folder out of the way. People asked many questions at this point but we d id not answer them until after the next exercise. (This was a little difficult as their curiosity and concern were peaked from the questionnaire). 5. Risk collage game. The researchers taped a couple of large sheets of paper to the wall in the meeting roo m. They then divided the area into 3 columns: High Risk, Low Risk, and No Risk (Riesgo Aumentado, Riesgo Disminuido, y No Riesgo). They had previously typed and cut out phrases describing behaviors and illustrations of people and placed them in a mediu m sized envelope. One researcher passed the envelope around the table for each woman to blindly select a behavior or an image. They were then asked to decide whether this behavior or person should be categorized as high risk, low risk, or no risk. Anoth er researcher took the piece of paper and taped it under the column that the woman (women) selected. Discussion is part of the exercise and it was not uncommon that one participant would say that is was no risk and then a few seconds later, after some deb ate, it was decided that it was high risk. This exercise brings out a lot of interesting perceptions. It is important to either take detailed notes of this or record it. It is also an exercise that can take up to 30 or 45 minutes if there is a large gro up. It could be shortened by using fewer images and descriptions of behaviors if necessary. 6. HIV/AIDS educational talk. The researchers distributed a short packet of information on HIV/AIDS and then one of the researchers gave a talk that generally follow ed the format in the packet. The researcher that gave the talk also used two large sheets of paper listing the terminology and topics that would be addressed during the talk. The talk addressed all Appendix J
21 of the issues that were brought up by the questionnaire a nd the Risk collage game. The participants were encouraged to ask questions and interrupt for clarification as needed. 7. Time for discussion and questions. 8. Discussion of next meeting time and order of events. 9. Wrap up session using ball of yarn. Everyone stood in a circle (and since there was more than one researcher, we spaced ourselves out in the circle). A ball of yarn started at one of the researchers. She held it and said something that she appreciated about the session and then held the loose end o f the yarn and passed the ball to someone across the circle. That person repeated this and passed it to another. This continued until everyone had received the ball of yarn. The end result was a group of women standing together connected by a web of yar n. The unity continued in the act of wrapping the yarn the women continued to talk and share their enthusiasm about the project as they passed the yarn back through the circle. Order of e vents for Focus Group 2 (July 17, 2004) : 1. We arranged to have al l of the women who were planning to attend who had not attended the first meeting to come at 1PM and the others to come at 2PM. The first of the new group arrived at about 1:25. Going by our phone calls the night before, we were expecting between 4 and 6 new people so we waited for about 10 more minutes before beginning the session with the one new woman. 2. At 1:35 we began the session very informally and a couple of the researchers occupied themselves elsewhere so as not to overwhelm the single participa nt. One researcher gave her the brief welcome and introduction and another read the consent form. Just as this was finished, another new woman and one that had been at the last meeting arrived (sisters?). While the first researcher assisted the first wo man with the general information form (she said she had forgotten her glasses) the second gave the welcome and introduction to the second newcomer and read the consent form. The woman who had attended the last meeting sat outside with her children watch ing them play in the school yard. The two new women finished their general information forms at about the same time. 3. Another researcher then introduced the questionnaire and read it aloud as the participants answered the questions (same as the first focus group step 3). 4. The questionnaires were collected and put away. 5. Due to the small group and in the interest of time, we skipped the Risk collage game. Some of the pictures and phrases were incorporated into the next exercise. 6. HIV/AIDS educational talk. The researchers distributed a short packet of information on HIV/AIDS and then one of the researchers gave a talk that generally followed the format in the packet. The researcher that gave the talk also used two large sheets of paper listing the terminolo gy and topics that would be addressed during the talk. The participants were encouraged to ask questions and interrupt for clarification as needed. 7. Some discussion and a Break. 8. There were now a total of 4 women present: two new women and two women who h ad been present at focus group 1. It was around 2:15 so we decided to begin the poster evaluation exercise. 9. Poster Evaluation Exercise. The women were asked to go into the other classroom where we had set up 6 stations with either a poster or pamphlet di splayed at each. Five of these were not from Costa Rica they were from Spain. One pamphlet was from Costa Rica. There was a table and chair at each station and on the table was a pile of blank, numbered (numbers corresponded to the station number) quest ionnaire forms (see Appendix). One of
22 the researchers explained that the goal of the exercise was to get their opinions about what makes a good poster or pamphlet. The exercise was designed to both show them what prevention and educational material are av ailable and to help them visualize what they think is important to include in this kind of material. The women were asked to find a station, they were informed that there was no important order to go in, and when they arrived at their stations, the resear chers answered questions about the questionnaire form. 10. One more participant (who had been at focus group 1) arrived when the other women were almost finished with the poster evaluation exercise. We introduced the exercise to her and the other women were i nvited to have refreshments and then sit back down in the circle. One of the researchers distributed recent articles about HIV/AIDS and sex education in Costa Rica (mostly from La Nacion ). The group of women that were waiting was given time to read over some of these and the researcher read one of the articles out loud. 11. All of the posters were then moved and hung in a row at the front of the room. Two of the researchers led discussion about the posters probing for which ones the women liked the most an schools and the responsibility of the parents and the schools to work towards awareness among the youth. This discussion was taped and notes were taken during the meeting and a fterwards from the tape. 12. Step 11 led directly in to this step. The women were asked if they had thought of any ideas for a design. There was one participant who had. Her drawing was passed around and the women really liked it. There was discussion abou t adding some other ideas to it but overall it was very popular. 13. The researchers then asked about media types for the prevention message; whether the women liked the idea of a calendar, a bag, or a T shirt. The advantages and disadvantages were discusse d with each one, and if it was decided that it was not a good idea (like the 14. The last event for focus group 2 was the discussion of the next meeting what a good day and time is for everyone and who would be able to m ake it. The researchers thanked the women (and the women thanked the researchers). Order of events for Focus Group 3 (July 21, 2004) : 1. administer the post questio nnaire and to finalize the educational material designed by the women. As with the other two focus groups, the night before our third meeting all contacts were called: those who attended the first two as well as the ones who had not but whose contact numb ers we had from the Chequeo Medico. According to the phone calls, a larger turnout was expected but possibly, due to a heavy rain that occurred at the time of the meeting, attendance was small but productive. The attendees were the core members who atte nded all three focus groups. The researchers arrived at 3:00 at the community center where they held the first focus group and prepared for the arrival of the women at 4:00. Two of the researchers hung the educational posters that the participants had ev aluated at the last focus group, and the other two arranged the tables for work stations for the design project and prepared drinks and snacks. Elsa arrived wi th her tape recorder at 3:30. One of the researchers took pictures of the center inside and out 2. People began to arrive at 4:15 in the midst of the heavy rainstorm. After greeting the three participants, the researchers began an informal discussion about the plans for the day. a. Viewing of pictures for the approval of the group of women. b. Going over the phrases for the risk perception exercise
23 c. Design of the poster d. Post Questionnaire e. Pass around sign up sheet f. Yarn game 3. One of the researchers set up the computer for the women to view the pictures of the second meetings. The women appeared to en joy the pictures and agreed to include them all in the community presentation. 4. The researchers had reviewed the most problematic phrases of the risk game and theses were distributed among the women. The purpose of this exercise was to determine how effecti ve the educational component of this project was in terms of increased awareness of transmission and prevention. Then all of the phrases were passed out to everyone. One of the researchers explained how each person (including researchers) would discuss he r phrase and described her reason for indication of risk, high, medium, or no risk. All of the women answered with confidence and with correct responses. A few notes were taken by one of the researchers. The tape recorder was not functioning so there w as no recording for this session. 5. This exercise led into discussing the three designs created by the group The decision was involvement in education and prevention of HIV/ AIDS T he women chose the phrases from the risk ga mes to be placed on the designs. 6. The 22 item Si /No questionnaire that was administered on the first session was distributed among the women. The purpose was to determine through the same questionnaire how e ffective the educational component of the project is by comparing the pre scores to the post scores. 7. One of the researchers passed around the sign up sheet for those who would be interested in being contacted for future studies. 8. The last session ended the way the first one did: the appreciation exercise with the yarn (see Focus Group 1). As before, a group of women were connected through the ball of yarn and terrific feelings.
24 Design 1 Appendix K
25 Design 2
26 Design 3
27 Salud Comunitaria Actividad: Tres charlas (1/2 hora c/u) Fecha: Lunes, 26 de Julio 2004 Hora: 5:30 pm Lugar: Casa Club, Caitas Motivacin: Queremos invitarles a compartir los resultados de las investigaciones s obre VIH/SIDA, nutricin y tabaquismo. Ra, baile y participe. Favor de traer una comida para compartir. ¡Esperamos a toda su familia! Realizada por estudiantes de Salud Publica del Ins tituto Monteverde. Educacin para u n Futuro Sostenible... Education for a Sustainable Future Appendix L
28 Risk Exercise: Summary of the classifications of behaviors and people High Risk Diminished Risk No Risk Illustrations: 1. 3 men in military (implied military engage in risky behaviors) 2. 3 doctors 3. 2 women in bridal a ttire 4. one man in underwear provocatively posed Phrases: 1. Sexual relations without the protection of a condom. 2. Taking birth control pills to protect against HIV/AIDS. 3. Sharing manicure instruments without sterilization. 4. Kissing 5 Using a condom for all sexual interactions. 6 Sharing needles, syringes or similar things. 7 Buco genital relations without a condom. 8 Having a baby if you are seropositive (infected with HIV) Correct Phrases : (6) 1,2,3,6,7,8, Erroneous Phrase: : (2) 4 no ris k, 5 less risk Illustrations: 1. 2 couples: lesbian and gay 2. mother and baby 3. man and woman caption: just married Phrases: 1. Swimming in a swimming pool with a person who has AIDS. 2. Breast feeding can give it to the baby if the mother is ser opostive (infected with HIV). Correct Phrases: 0 Erroneous Phrases : (2) 1 no risk, 2 high risk. Illustrations: 1. 2 women sitting together 2. 6 children gathered around outside water: washing/drinking 3. elderly man and woman smiling affecti onately at each other 4. 3 mariachis 5. man and woman: no hugging/no kissing appear to be a couple Phrase s: 1. Using the telephone after a person who has HIV/AIDS. 2. Hugging 3. Receiving a transfusion of blood or donating blood in an official situ ation. 4. Getting a piercing or tatoo in a safe situation or with sterile material. 5. Abstinence 6. Waiting to have sexual relations until you are married. 7. Using a doorknob after someone with HIV/AIDS. Correct phrases: ( 4) 1,2,5,7 Erroneous Phr ases: (3) 3 diminished risk, 4 diminished risk, 6 diminished risk. Appendix M
29 The a ttached seven pages consist of the educ ational material that guided the HIV/AIDS talk and was also passed out to the participants. Appendix N