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Communicating change :
b an ethnography of women's sensemaking on menopause, hormone replacement therapies, and the Women's Health Initiative
h [electronic resource] /
by Linda Vangelis.
[Tampa, Fla] :
University of South Florida,
ABSTRACT: As a result of the recent findings of the Women's Health Initiative (WHI), many women who have been on hormone replacement therapies (HRT) have begun to renegotiate their understandings and strategies of this stage of their lives. The WHI findings suggested that the risks of HRT outweighed the benefits for healthy menopausal women. This study examined women's emerging sensemaking regarding HRT and menopause in light of the WHI findings. Seven women in the Tampa Bay area, who were in various stages of menopause, participated in three focus group sessions and two one-on-one interviews to discuss their lives in menopause. Based upon the women's conversations, I constructed individual stories about each of the women. I included my voice in each step of the process, both participating in the focus group and interview discussions and inserting my voice in the women's stories as an interview and focus group participant. I analyzed the stories to determine categories in the w omen's emerging sensemaking. A theme of change emerged in terms of loss, decay, and decline. The women talked about change while discussing personal issues such as children, their bodies, aging, health concerns, and sex. Throughout their discussions, the women spoke about the contradictions and dilemmas they faced as they tried to sort through the conflicting and sometimes contradictory information they have been receiving about the effects of menopause and HRT on their bodies. Emily Martin's medical metaphors, Michel Foucault's ideas on discourse, and Watzlawick, Weakland, and Fisch's theory of change helped me understand the women's sensemaking. Many of the women framed their sensemaking within the biomedical model of health care, using what Martin called the body-as-machine metaphor, thereby making a first-order change, even though they changed from one HRT formula to another, from "synthetic" to "natural" HRT, or stopped taking HRT entirely. One woman appeared to make a secon d-order change. Overall, the women felt they had little to guide them as they determined how to take care of themselves in the menopausal stage of their lives.
Dissertation (Ph.D.)--University of South Florida, 2006.
Includes bibliographical references.
Text (Electronic dissertation) in PDF format.
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Mode of access: World Wide Web.
Title from PDF of title page.
Document formatted into pages; contains 240 pages.
Adviser: Kenneth N. Cissna, Ph.D.
Women's Health Initiative.
t USF Electronic Theses and Dissertations.
Communicating Change: An Ethnography of Womens Sensemaking on Menopause, Hormone Replacement Therapies, and the Womens Health Initiative by Linda Vangelis A dissertation submitted in partial fulfillment of the requirements for the degree of Doctor of Philosophy Department of Communication College of Arts and Sciences University of South Florida Major Professor: Kenneth N. Cissna, Ph.D. Elizabeth Bell, Ph.D. Carolyn Ellis, Ph.D. Jane Jorgenson, Ph.D. Anna Parsons, M.D. Date of Approval: July 14, 2006 Keywords: Framing, Menopause, Sensemaking, Communic ation, Personal Narrative, Womens Health Initiative, Women, Focus Groups, Sto ries Copyright 2006, Linda Vangelis
ACKNOWLEDGMENTS First, I am grateful to my research participants, Alexandria, Anna, Bunnie, Jane, Lynn, Malika, Mary C, Ruby, Stephanie, and Vina, wh o shared their time and experiences with me. Second, I am grateful for the generous support and guidance I received from Dr. Kenneth N. Cissna, my dissertatio n advisor. He gave me much needed encouragement, was tireless in his efforts to help me refine my research, and never lost faith in me over the years it took to complete this project. Third, I thank my dissertation committee members, Dr. Elizabeth Bell, Dr. Carolyn Ellis, Dr. Jane Jorgenson, and Dr. Anna Parsons for their participation on my committe e and for their helpful comments. I thank my family for their love and constant suppo rt: my mother, Jeanette Vangelis; my brother, James Vangelis; my sister, Ge orgia Cienkus; my niece and nephews, Stephanie and Jon Vollentine, and James an d Tammy Cienkus; and my great niece and nephews, Delaney and Zachary Cienkus and Wil and Elizabeth Vollentine for their unending supply of hugs and kisses. I thank my friends: Shane Moreman, who developed sympathetic symptoms of menopause, includ ing hot flashes, as a result of the many conversations we had about my research project ; Charles Grant, who encouraged me to get that dissertation done; Shirlan William s, Elizabeth Curry, Cris Davis, Patricia Jeffers, and Nancy Carazo who talked to me when I w as lonely; and my cousins Michael Auriene and Butch Auriene who offered me their time and emotional support. And finally, I am grateful to Dr. John B. Martin, who e ncouraged me to follow my dreams.
i TABLE OF CONTENTS ABSTRACT iii PREFACE 1 PRELUDE 2 Moment One . The Shock 2 Moment Two . The Biomedical Quagmire 4 CHAPTER ONE MENOPAUSE 8 In Good Health 8 The Problem with Hormone Replacement Therapy 12 Defining Menopause The Three Stages 17 Research Questions 19 CHAPTER TWO METHODOLOGY 21 Entering the Conversation 21 The Telephone Screening Interview 29 The First One-on-One Interview 31 The Focus Group Process 33 The Final One-on-One Interview 34 The Transcription Process and Issues 35 Rationale for My Methodological Strategies 37 Focus Groups 37 Interactive and Collaborative Interviews 46 In-Depth Interviews 47 Autoethnography 48 Constructing Personal Narratives and Category Ana lysis 49 Issues and Concerns with My Methodological Strateg ies 50 Reflections on My Methodology 51 One Final Thought 52 CHAPTER THREE STORIES ON MENOPAUSE 53 Stephanies Story 54 Bunnies Story 75 Annas Story 92 Janes Story 108 Alexandrias Story 123
ii Rubys Story 136 Malikas Story 153 CHAPTER FOUR ANALYSIS OF THE WOMENS STORIES 173 The Journey 174 Age-Grading Bodies-in-Menopause 187 Change and Reframing 198 CHAPTER FIVE FINAL PERSPECTIVES 207 Ambivalence 207 Wishes 209 Future Areas of Research 211 Final Words 212 REFERENCES 217 APPENDICES 224 Appendix A:Telephone Screening Interview Script 22 5 Appendix B: Screening Criteria for Including Women in the 229 Research Project Appendix C: Plan for the First One-on-One Intervie w 231 Including Questions Appendix D: Interview Questions for Final One-on-O ne Interview 232 Appendix E: Demographic Information 235 Appendix F: Focus Group Introduction and Question s 236 Appendix G: Asking Reflective Questions 240 ABOUT THE AUTHOR End Page
iii Communicating Change: An Ethnography of Womens Sensemaking on Menopause, Hormone Replacement Therapies, and the Womens Health Initiative Linda Vangelis ABSTRACT As a result of the recent findings of the Womens Health Initiative (WHI), many women who have been on hormone replacement therapie s (HRT) have begun to renegotiate their understandings and strategies of this stage of their lives. The WHI findings suggested that the risks of HRT outweighed the benefits for healthy menopausal women. This study examined womens emerging sensem aking regarding HRT and menopause in light of the WHI findings. Seven women in the Tampa Bay area, who were in var ious stages of menopause, participated in three focus group sessions and two one-on-one interviews to discuss their lives in menopause. Based upon the womens convers ations, I constructed individual stories about each of the women. I included my voi ce in each step of the process, both participating in the focus group and interview disc ussions and inserting my voice in the womens stories as an interview and focus group par ticipant. I analyzed the stories to determine categories in the womens emerging sensem aking. A theme of change emerged in terms of loss, decay, and decline. The women talked about change while discussing personal issues such as children, their bodies, aging, health concerns, and sex.
iv Throughout their discussions, the women spoke about the contradictions and dilemmas they faced as they tried to sort through the confli cting and sometimes contradictory information they have been receiving about the effe cts of menopause and HRT on their bodies. Emily Martins medical metaphors, Michel F oucaults ideas on discourse, and Watzlawick, Weakland, and Fischs theory of change helped me understand the womens sensemaking. Many of the women framed their sensem aking within the biomedical model of health care, using what Martin called the body-as-machine metaphor, thereby making a first-order change, even though they chang ed from one HRT formula to another, from synthetic to natural HRT, or stop ped taking HRT entirely. One woman appeared to make a second-order change. Overall, t he women felt they had little to guide them as they determined how to take care of themsel ves in the menopausal stage of their lives.
1 PREFACE This research project is the culmination of a pers onal journey that began when I first discovered I was entering menopause. In our society, women are labeled young and vibrant until they approach menopause. But once a woman enters menopause, she is no longer considered a productive member in our soci ety. She can no longer function as a baby-making machine. Hence, she no longer has soci al capital to trade. She is considered over-the-hill, a has-been, an old crone, or just plain old. Many times the mature, menopausal woman becomes invisible at this stage in her life. So, I set out to talk with women about their experiences of menopaus e. In the following pages, I attempt to make sense of the dizzying array of issues that surround women in menopause in our society. I share my journey with you through my pe rsonal stories and through the stories that I heard from other women.
2 PRELUDE Moment One . The Shock An intake nurse at the Student Health Center escor ts me into a small, windowless office decorated with several pictures of children. I guess her age to be somewhere in the late fifties or early sixties, based upon her silve red hair and lined face. Dressed in a traditional, white nurses uniform, with a gray swe ater covering her shoulders, she offers me a seat adjacent to the side of her desk, and sit s down in her chair. Facing me with alert blue eyes, she waits for me to explain the re ason for my visit today. I must be coming down with something. Maybe its the flu, I sputter, trying to keep my voice calm. I feel as if I have a tempera ture, and have felt this way for about two months now, but I never seem to get sick. Ive taken my temperature a thousand times, but its always 98.7. And Im taking aspiri n regularly, just to head off the bug I must have caught. My voice quivers. The nurse nods and offers me a smile of encouragem ent. I suck in a deep breath to regain my composure and scoot closer to the edge of my seat to face her more directly. My voice begins to rise with my rising frustration, and my words shoot out machine gun style. Im really worried because I wake up in the middl e of the night and my hair and nightclothes are completely drenched. I think I mi ght be really sick. Arent night sweats
3 an indication that something has gone wrong with my body? Arent night sweats an indication of a serious illness? A surge of warmth swells through my body. The roo m has been blasted with 100degree heat; at least thats how I experience it. I try my best to hold back the tears welling in my eyes, but they spill down my cheeks, and I begin to sob. The nurse offers me a tissue and smiles sympathetically. I dab my e yes and smooth a lock of hair off my forehead before I continue. I dont know why I cry so much. As a way to soo the myself between sobs, and to reassure the nurse that Im not weird, I explain Im really okay. Honestly, I am. I just cant seem to stop crying these days. My sho ulders heave up and down, and I try unsuccessfully to take a deep breath to short circu it my sobs. And I cry for the littlest reason. Like, if anyone stares at me with a stern look on their face, Ill burst into tears. Still weeping, but worried that she will think that Im crazy, I explain again, Im okay, honestly. Im just a little emotional these days. Im actually an emotional person by nature. I wipe the tears from my face, and make s hort sniffling sounds as I try to stifle the sobs that have welled up inside of me again. The nurse hesitates for a moment, and gives me a r eassuring nod. I can see by her empathic smile that she does not think that Im cra zy. Youre 50 years old now, Linda she says calmly, and at the right age to be going through menopause. You are describing classi c symptoms of menopause. We need to get you in to see the gynecologist. She ca n prescribe hormone replacement therapy for those hot flashes that you have been ex periencing.
4 I am surprised to hear these words. This is the f irst time that my identity has been connected to the words menopause and hot flashes . A swirl of conflicting thoughts and feelings flood my mind, while I try to take in the meaning of her words. I am startled to have been labeled menopausal, yet I am relieved to have a label to go with my symptoms. I am also stunned by the sudden realizat ion that my understanding of who I am has suddenly shifted with her words. Moment Two . The Biomedical Quagmire Several weeks later, I meet with Marsha, a nurse pr actitioner. She is trim and youthful looking, in her mid-forties and very petit e. She is dressed in a stylish slacks outfit. Compared to her, I feel fat and out of sty le in my size extra-large baggy sweats. We chat for a few minutes before beginning the exam ination. As Marsha talks, heat rises up from deep within my chest, and spreads quickly t hrough my body out to the tips of my fingers and toes. I bite the inside of my lower li p in an attempt to keep myself composed. But finally, I can't hold back, and tears slowly ca scade down my cheeks. "Something is going on with my body. I alternate f rom getting hot and cold, and am so emotional." My voice quivers. I blot my tea rs with a tissue and take in a deep breath. "And I'm concerned because sometimes I hav e to work really hard to stay focused." I dab my eyes again. "I have never had a problem in the past focusing." I gasp softly, taking in a breath of air. My chest heaves up and down as I try to squelch my sobs. "Yep, I'm pretty sure that you are perimenopausal, Linda," she responds sympathetically. You are at the right age and your symptoms are very normal. We'll do a routine gynecological examination today, and I'll give you a prescription for a
5 mammogram. When we're finished, we'll talk about p utting you on hormone replacement therapy. Of course I'll need to see the results of your lab work before you can begin taking hormones. And we'll test your Follicle Stim ulating Hormone (FSH) level to see if it is still within the normal range. That will tel l us whether you are perimenopausal or going into menopause. Since you are getting regula r periods, I suspect you are perimenopausal." I nod in agreement, but I keep my real response hid den. I'm not sure I want to take hormone therapy right n ow or ever. I don't like taking any medicine unless it's absolu tely necessary. I'm worried about ingesting something that may incr ease my chances for strokes, breast cancer, or other complications. I'm nice and healthy, but what if taking this medic ine hurts me in the long term. How will I pay for medicine on my meager budget? A flash of heat courses through my body at lighteni ng speed. Tears fill my eyes. I'm so embarrassed at crying so easily. I feel like a big baby. She must think I'm crazy or off balance. You're going to be okay, Linda, just hang on. Marsha sits on the lower rung of the examination c hair, facing me, with her legs crossed and tucked up under her. She looks like a youngster, sitting curled up, and I notice that she has positioned herself in a non-thr eatening manner. "Taking hormone therapy will put your ovaries to sleep," she calmly explains. The hormone medication will do the job of your ovaries."
6 My mind leaps into high gear, like a car engine shi fting from 0 to 60. It sounds as if I'm performing an act of mercy on m y ovaries. I'm afraid I'll destroy them with the hormone medicine. I'm afraid to take medication unless I'm really sic k. I'm not equipped to make this decision right now. Oh, no, I haven't thought this through yet. I force myself to stop my thoughts and pause for a moment with the promise that I don't have to take the medicine if I don't want to. "But does that mean that my ovaries won't work any longer? I ask. "For example, what happens if I decide to go off the med ication? Will my ovaries begin to work again, or will they be unable to function?" An intense surge of heat shoots though my body like a bolt of lightening. What if the hormone therapy closes down my ovaries permanently, or causes them to atrophy prematurely. What if taking this medicine shuts down my normal m enstrual processes prematurely. I do not want to fool around with my hormone levels "Linda, I want you to know that I have been on estr ogen replacement therapy for a few years now. I feel great! I don't get hot fl ashes any longer, and my husband appreciates the fact that my moods don't swing wild ly either!" I am shocked to hear that she is on hormone therapy She looks so young and trim and calm. She couldn't possibly be suffering from hot flashes
7 She is so calm and relaxed. Marsha reassures me that I too will begin to feel g reat, and that hormone replacement therapy should eliminate my hot flashes and mood swings. She says that once I am on estrogen, I should begin to feel like my old self in a few days. It would be great to feel like my old self again. I would feel strong and vibrant and independent aga in, able to handle problems without shedding a tear. I would have my energy level back, and never feel f uzzy-minded. I won't cry at the drop of a hat. I'll have control over my life again. Ah, it would be great to feel like my old self agai n. But, I don't understand what effects the hormone th erapy would have on my body in the long term. I leave Marshas office with a prescription for Pre mpro and a promise to her that I will fill the prescription if I continue to feel to o uncomfortable.
8 CHAPTER ONE MENOPAUSE In Good Health Dr. Lee! a heavy-set woman calls out. I have ju st one question for you. The forty-something woman bounds towards our table, smiling broadly at the white-haired man in a conservative, black business suit sitting to my right. She is clutching a copy of his latest book on breast cance r (Lee, Zava, & Hopkins, 2002) close to her chest. Stopping directly in front of him, s he pauses, waiting for him to acknowledge her. Her outburst momentarily breaks m y concentration, and I look up to see a group of women jockeying for position behind the heavy-set woman. They quickly cue up in a haphazard line that begins to snake aro und the perimeter of the large convention room. I cant see the end of the line f rom my vantage point sitting next to Dr. Lee at a small table covered in a crisp, white tabl e cloth, in the lobby of the Crosstown Church in Brandon, Florida. Dr. Lee is a well-know n proponent of using progesterone cream to stay healthy during menopause and as a rep lacement for synthetic forms of hormone replacement therapy to help alleviate menop ausal symptoms. I have come here today to hear him speak. I pull my attention back to our private conversation. So, Dr. Lee continues, staring directly into my e yes. When they draw your blood, they spin it down in a centrifuge and all th e water goes to one end and all the fat goes to the other, and then they look in the water end. Isnt that amazing! His eyes
9 twinkle. I am surprised at how sharp and alert he appears to be for a man in his early eighties. Okay! the heavy-set woman interrupts again. She scoots so close to the front of our table that she is almost leaning against it. S he pauses for a just moment before plunging into her story. I had a hysterectomy las t year and You had a what? demands the doctor, curtly, stopp ing her in mid-sentence. I had a hysterectomy last year, she starts again, only softer this time. She offers him her copy of his book, as if to bridge the tensi on that seems to have formed between them. Why? he inquires, his brow beginning to crease. He accepts the book, pulls open the front cover, and begins to scrawl on the c lean, white page. He confides to me that he would like to learn how to write the words good health, in Greek, since Greece was the beginning of medicine. But today, he write s these words in English, signs his name underneath the message, and returns the autogr aphed book to the heavy-set woman. They said I had a growth there, whatever, so they took my uterus out, the heavy-set woman explains. Now, when you say hysterectomy, do you mean remova l of the uterus? he asks, smiling up at her. Everything, she explains. No! No! Hyster is Greek for uterus. There is no o ther meaning. If he removed your nose, or your left ear, or your toe, or your a ppendix, or the ovaries, hes doing something else. Hyster is Greek for the uterus, pe riod! The man is an idiot, he shouts at her.
10 She, the heavy-set woman quietly corrects him. She doesnt have the balls, the guts, to say and by the way I castrated you too. They took away your ovaries and the ovaries make th ree different kinds of estrogen. They make testosterone, they make progesterone, and of all those, what did they give you back after taking it away? he scowls at her. Tears well up in the womans eyes. Her lower lip b egins to quiver. Yet she continues to ask him questions about the estrogen t hat she is currently taking. She wants to know if she should continue taking it. While th ey talk, I wonder to myself why he is so angry and why he would talk to her in this way, since she had had the hysterectomy such a long time ago. And I am startled to hear he r ask him for personal medical advice in this open environment, especially as Dr. Lee has not been a practicing physician for over fifteen years. All right, so when they give the estrogen, its ju st like the farmers giving estrogen to steers, he explains to her. Steers h ave been castrated too, just like you were. And guess what? They give the steers estrog en and do you know why? It makes them fat! It makes them fat? she repeats, innocently. So they get to be market weight sooner, less time, less money, less feed, less everything. Isnt that amazing. All the farmers k now it, and your doctor doesnt know it. He is giving you medicine that prevents you from bu rning fat. You cannot burn fat for fuel. He sounds agitated. So, I can get off of that is what youre saying? she asks.
11 Of course. He concedes. You are a factory of f at right now. Do you understand what is happening? He turns to me. I ts a crisis and look what is happening! And [her physician] is going to keep on doing this until she creates a problem that kills this lady. Its gonna create br east cancer, gonna create strokes, gonna create heart trouble, gonna create God knows what! Its a terrible thing. Mother nature never, never, never wanted humans to only be taking estrogen. The heavy-set woman bows her head and moves aside, clutching her signed copy of Dr. Lees book. The line of women inches forwar d slowly, each taking her turn at the table. Dr. Lee, I developed asthma when my estrogen went to zero. They put me on Premarin. Is that at all coincidental? a woman as ks staring at him earnestly. My progesterone level was at 11,509! another woma n confides to him. My mother had a hysterectomy. Can she do without estrogen completely? a woman inquires. For a few years I have suffered with the swings an d the crying and the hot sweats, once an hour, for two minutes in length. a nother woman confesses. My daughter has been on oral hormones. Would you recommend a compound for her? Where can I go to have a saliva test? another wom an asks. Dr. Lee fields the womens questions until, finally it is time for his lecture to begin.
12 The Problem with Hormone Replacement Therapy Each day approximately 3,500 women in the United S tates enter menopause (Vital Stats, 2002, p. 176). As women enter this stage of their lives, they may experience uncomfortable symptoms associated with m enopause, such as night sweats, hot flushes, and mood swings. Until recently, horm one replacement therapy 1 (HRT) was the conventional, recommended therapy used to contr ol these uncomfortable symptoms and to head off certain diseases associated with th e loss of estrogen, such as osteoporosis. For a time, HRT appeared to be a panacea for the ol der woman. It was heralded as a vehicle that could help a woman maintain her youth, beauty, and health. Most healthy menopausal women were encouraged by their physician s to use HRT (Masse & Legare, 2001, p. 51). But the recent findings of the Women s Health Initiative (WHI) have forced many women to revisit their understanding of HRT and to reconsider their decision to take HRT to stay healthy in their older years. The WHI found that giving HRT to healthy, menopausal women may do more harm t han good (Writing Group for the Womens Health Initiative Investigators, 2002). This research study found that HRT increased a womans risk of developing breast cance r, heart disease, and circulatory disorders (Writing Group for the Womens Health Ini tiative Investigators, 2002). 2 1 Hormone replacement therapy (HRT) is used to augmen t a womans natural levels of estrogen and/or progesterone with either a synthetic or bio-identic al form of estrogen and/or progesterone. Recently, the National Institutes of Healths website has used th e terms menopausal hormone therapy and postmenopausal hormone therapy in place of the term hormone replacement therapy ( Facts about Menopausal Hormone Therapy, n.d.). In this study, I have retained the original term, hormone replacement therapy or HRT, as my participants used this term in their discussions. 2 The Womens Health Initiative is a large-scale, lo ngitudinal, national health study of postmenopausal women between the ages of 50 and 79. This study so ught to examine the most common causes of several chronic diseases in postmenopausal women, such as c ardiovascular disease, cancer, and osteoporosis. T wo randomized, clinical trials of hormone therapy were components of this study. One of the hormone tria ls examined the health effects of the use of estrogen plus progestin among healthy postmenopausal women.
13 Since the first release of the WHI findings in ear ly July of 2002, mainstream information in the news media on menopause and HRT has been conflicting and very confusing. Some articles have reported on the dang ers of HRT, explaining that the benefits of HRT have been overrated (Study, 2003, pp. 1A, 4A; FDA, 2003, p. 13A) and that HRT does nothing to help most women cope w ith menopausal symptoms (Stein, 2003, p. 4). Other articles have warned that it is important for women to take estrogen after menopause in order to stay healthy, explainin g that premenopausal women hardly ever have heart attacks, but postmenopausal women, whose hearts are no longer protected by estrogen, quickly become more vulnerable than me n to heart attacks (Gupta, 2003, p. 84). Yet other articles explain that taking HRT do ubles the risk of a heart attack during the first year of therapy (Duenwald, 2003, p.10). Some articles have touted the benefits of taking lower doses of HRT, which appear to provi de menopausal women with the same benefits as the higher doses of HRT (Minkin, 2 002, p. 168). And yet other articles have touted the benefits of taking natural or pla nt-based formulas of HRT rather than synthetic hormone replacement therapies (Aschoff, 2 003, p. 3D). What is a menopausal woman to do? Women who are i nterested in staying abreast of the latest information on menopause, HRT and health are having a difficult time navigating the quagmire of medical contradicti ons and competing claims available today. Coping with menopause and its related sympt oms has become confusing for any This trial was halted in July 2002 after 5.2 years of follow-up because the overall health risks to participants exceeded the benefits. Research found an increase in coronary heart disease, stroke, and venus thromboembolic disease among the treatment group (W riting Group for the Womens Health Initiative Investigators, 2002). The second trial examined th e effects of estrogen alone on women whose uteruses had been removed. This trial was halted at the end of February 2004 because of an increased risk of s troke among the women taking estrogen compared with the p lacebo (Writing Group for the Womens Health Initiative Investigators, 2004). For a readable ex planation of this study and its results written for a lay audience, see Facts about Menopausal Hormone Thera py (n.d.).
14 woman who is interested in relieving her menopausal symptoms, yet hoping to stay healthy into her old age. Thus, it is difficult be ing a menopausal woman in America today, especially if you are one of the 14 million women who have been on HRT (Okie, 2002, p. 1). How can we keep our bodies healthy in light of the results of the Womens Health Initiative? What long-term dangers lurk within tho se HRT remedies? Is there any real difference between natural and synthetic formul as of HRT? And whom can we believe? These are just a few of the many issues m enopausal women grapple with today, while navigating the menopausal stage of their live s. The existing research on women in menopause and HR T explores several themes. One key area of research frames the menopausal woma n as a body in distress. The womans body in menopause has been constructed as i n decay, decline, and disease (Daly, 1995; Gannon, 1998; Guillemin, 2000; Klein & Dumble, 1994; Martin, 1992) or sick, aging, and old (Gullett, 1994). This line of research, following what is termed the biomedical model of health care, has been the pre dominant paradigm framing womens sensemaking on menopause. The biomedical perspecti ve frames menopause as a deficiency disease caused by diminishing levels of estrogen (Gonyea, 1996; Hunter, 1996; Shore, 1999). Negative changes such as hot flushes, night sweats, headaches, and increased weight have been associated with menopaus e. Gannon (1998) includes other negative symptoms associated with menopause: Dryness and thinning of the vaginal walls, increase d incidence of vaginal infections, loss of breast firmness, dizziness, sen sations of cold in the hands and feet, irritability, depression, insomnia, pruritus of the sexual organs, constipation,
15 atherosclerosis, osteoporosis, and incontinence hav e traditionally been attributed to hormonal changes associated with menopause and h ave been assumed to be effectively treated with hormonal replacement thera py. (p. 289) The biomedical perspective encourages women to trea t their estrogen deficiency symptoms with medicine, either estrogen alone for w omen without a uterus, or with both estrogen and progesterone for women with a uterus. But women who frame menopause within the biomedical paradigm and view menopause a s a medical disorder have a tendency to develop more negative attitudes toward menopause, which may lead them to have a more negative menopausal experience (Gannon & Ekstrom, 1993). They may also become more fearful about their health and wel l-being during menopause and beyond (Hunter, 1996, p. 119). Various news media have been the primary source of information about HRT for most women (Griffiths, 1999, p. 473), but the media appear to convey a relatively limited perspective on menopause, generally describing meno pause as a negative experience, as a disease in need of medical treatment (Gannon & Stev ens, 1998, p. 1). So, the limited perspective available through the news media may al so serve to encourage women to accept the biomedical paradigm. Feminists have argued that the biomedical paradigm of menopause, which frames menopause as a sex-related, endocrine deficiency di sease, disempowers women in a number of ways. First, it medicalizes a womans no rmal aging process, ensuring that an entire population of healthy women will be medicate d throughout the second half of their lives (Gonyea, 1996, p. 416). Second, it leaves me nopausally-ill women disadvantaged relative to men by defining menopausal women as pro ducts of their hormones (Gonyea,
16 1996, p. 418). Third, it assigns decisions related to womens health to the medical and pharmaceutical community (Gonyea, 1996, p. 418). I n fact, women generally perceive the medical community as the experts on menopause deferring to the experts opinion on whether they should use HRT (Shore, 1999, p. 173 ). The severity of hot flashes is an important determinant in a womans decision to use HRT (Walsh, Brown, Rubin, Kagawa, & Grady, 1997, p. 43), but a physicians re commendation is also a powerful determinant in this decision (Finley, Gregg, Solomo n, & Gay, 2001, p. 46; Walsh et al., 1997). The biomedical lexicon surrounding the menopausal womens body serves to construct a negative perspective of aging women in our society (Martin, 2001). Medical metaphors of womens bodies model prevailing capita list ideologies and social hierarchical structures in our society and serve to frame the way we talk and think about womens bodies in menopause. Medical metaphors, su ch as body-as-machine or body-as-signal-response-system (Martin, 2001), se rve to define womens bodies as separate from their selves, and position women as p assive vessels acted upon or controlled by their own body parts and/or controlle d by men using technology to act upon womens bodies. Although research has discussed how menopause has b een framed within the biomedical model, how it affects womens perception s on aging and womens attitudes towards menopause, the characteristics of women who use HRT, and how the biomedical model serves to disempower women, we have yet to in vestigate how women are currently coping with and making sense of menopause in light of the current findings of the Womens Health Initiative. This is the area that I explore. In this research study, I
17 examine how women are negotiating and making sense of the menopausal stage of their lives in light of the recent findings of the Women s Health Initiative research study. In the remainder of this chapter, I review the stages of menopause, explain my research questions, and provide a preview of subsequent chap ters. Defining Menopause The Three Stages Medical literature traditionally labels menopause a s a three-stage process in a womans life: the perimenopausal, menopausal, and the postmenopausal stages. Perimenopause generally refers to the 15-year trans itional period of time when a womans level of estrogen declines (Huston & Lanka, 1997, p. 4). During this time, a womans periods may become irregular, either heavie r or lighter than normal, or longer or shorter in duration, and she may develop other b odily symptoms such as hot flushes, fragmented sleep, mood swings, short-term memory lo ss, and unexplained fatigue (Huston & Lanka, 1997, p. 5). A woman is considere d to be in menopause when she has not had a period for one full year. Postmenopause refers to the time after menopause. But it is possible for menopausal and postmenopausa l women to experience some of the symptoms associated with the perimenopausal stage, except for problems with menstruation. Although these different definitions mark three sta ges of the menopausal process, all three stages, perimenopause, menopause, and pos tmenopause, mark one continuous and very powerful, systemic process of change that occurs in every womans body. In this study, I include women who are in the various stages of the menopausal process, because sensemaking occurs during all three of thes e stages. For example, the perimenopausal woman may encounter a shock or surprise as a
18 result of the new and unusual physical symptoms she is experiencing. This shock or surprise might push her into a framing dilemmathat is, how to make sense of the new bodily experiences that serve to mark her entry int o a vague identity category that indicates that she is getting older. This perimeno pausal stage may be a rich environment to explore negotiated sensemaking, as often sensema king occasions are marked by surprise (Luis, 1980, p. 238). By the time a woman enters menopause, she may have had the opportunity to negotiate and resolve some of the sensemaking issue s that mark this older woman stage of her life. But because these women may have bee n taking HRT for several years, they may be in the throes of panic, grappling with the m uch publicized findings that HRT may do more harm than good to healthy women over time. These menopausal women may be a rich source of information on how, or whether, HRT served to veil or mute the conversation over the inevitability and naturalness of aging female bodies. The women in the postmenopausal stage may also be a uniquely rich group with which to explore negotiated sensemaking in light of the findings of the Womens Health Initiative, because these women will have had time to reorder and renegotiate their relationships with others and within our culture at large. And, because all sensemaking is retrospective (Weick, 1995, pp. 61-62), women in th is end-stage of the menopausal process may have the greatest wealth of knowledge t o contribute to our understanding of how women make sense of and reframe their experienc e negotiating this powerful, systemic process of their lives. These women may have been the most secure in their belief that they could stay safely on HRT for life. These women may now feel a sense of
19 betrayal by the medical community and by their own bodies, as HRT may have served to delay their acceptance of their aging bodies. My research project includes women who are, had bee n, or are thinking about taking some form of hormone therapy, in a synthetic or natural form, to alleviate or ward off some of the real or perceived symptoms related to menopause. This study includes participants who have used synthetic forms of HRT, but it also includes several participants who have been using natural remedies such as soy products, customdesigned formulas compounded at a pharmacy, and pro gesterone cream that has been purchased at a health store. Research Questions The research questions listed below were designed t o help me understand womens sensemaking within several themes: womens current medical concerns, symptoms and coping strategies of menopause, aging concerns related to menopause, and emotional support of family members. I interview w omen in various stages of menopause with a view to answering the following re search questions: 1. What stories do the women tell about their exper iences with menopause? 2. What common themes arise as a result of the wome ns stories? 3. How do individual women make sense of the vague and often conflicting information they receive about their menopausal si tuation? 4. How do the women make sense of their situations in light of the Womens Health Initiative? 5. How do women come to an understanding of who the y are based upon the changes they perceive taking place in their bodies ?
20 6. How does the menopausal woman reconcile with and reassert a renewed positionality in a society that has traditionally c oveted and placed higher value on the younger rather than the older woman? This report of my study is divided into several cha pters. In the next chapter, I discuss my research methodology and review some of the problems I encountered during the data gathering stage of my research. In the th ird chapter, I tell the stories of my participants and embed my own story within theirs, in order to show how my participants and I are making sense of menopause in light of the recent findings of the Womens Health Initiative. Then I analyze the womens sens emaking on menopause, and finally I discuss avenues for future research on this topic.
21 CHAPTER TWO METHODOLOGY Entering The Conversation The handwritten sign directing me to the seminar on menopause is barely visible from the street. I slam on the brakes, make a shar p right turn, and with a sigh of resignation, steer my car down the winding road tow ard my destination, the Crosstown Church. I imagine that this evening might be a bu st, another dead end in my search for an angle for my dissertation topic on menopause. S o much has been written about menopause that I have been worried over how I will situate myself within this research topic without rehashing what has been done before. Ill stay a half-hour, I promise myself, and if I dont like the presentations, or if its too hot in the meeting hall, Ill simply leave My promise seems to alleviate the apprehension I am feeling about this event. Its an August evening in Brandon, Florida. Cold a ir is blasting from the air vents of my Ford Escort, but that does little to assuage the waves of heat coursing through my body, one after another, after another, after anoth er. Hot flashes have become so familiar to me that I can no longer remember a day without f urnace-like heat radiating from the center of my chest out to the tips of my fingers an d down to my toes. I experience hot flashes as wave after wave of intense heat, and est imate that I have at least three flashes an hour, sometimes more. They have become a daily reminder that my body is
22 transitioning into old age. My intense hot flashes are one of the reasons menopause has become such an interesting topic for me. I am stru ggling to cope with this uncomfortable stage of my life, and I wonder how other women are managing this life-stage. I pull into a parking space next to a shiny, black Volvo. A thin, neatly groomed, dark-haired woman is standing at the back of the ca r unloading large cardboard boxes. I pop a fresh tape into my tape recorder before jumpi ng out of my Escort, and, with a smile on my face, I offer her a cheery greeting, just as she slams another large box to the ground. The box splits open to reveal a familiar b ook with a purple and white cover. This box is filled with copies of a popular book on menopause written by Dr. Lee (Lee & Hopkins, 1996; Lee, Hanley, & Hopkins, 1999; Lee, Z ava, & Hopkins, 2002), a proponent of natural methods of hormone replacement therapy (HRT). I walk up to the woman and introduce myself. I discover that the wo man in the black Volvo is named Lela. She tells me that she owns a health food sto re in Brandon, and suddenly I realize that this is the woman whom I contacted a couple of weeks ago inquiring about a free ticket to this event. She turned me down. I move quickly to the main entrance to the church a nd stop to hold the door open for several vendors who are carrying boxes of merch andise. This event was advertised as a forum on the pros and cons of synthetic hormones vs. bio-identical hormones. But I had no idea that it would also serve as a venue for vendors who espouse a natural philosophy on HRT to sell their wares. The main lobby fills quickly with vendors setting u p their displays. Participants slowly file into the lobby, and begin to mull aroun d, browsing. I see saliva kits for sale, books on natural methods of menopause, bottles of e strogen creams, progesterone
23 creams, and other potions designed to help with lib ido problems. I grab a brochure at a booth that advertises Bills Prescription Center as a full service pharmacy and compounding specialists, and scoop up several broc hures on anti-aging and pain at Hoyes Natural Pharmacy booth. A green-colored fl yer with a list of instructions on using HRT catches my eye. Written in all capital l etters, the list instructs the reader on how to make the transition from synthetic to natura l forms of HRT: *STOP ALL SYNTHETIC HORMONES OVER TWO MONTHS (every other day for the first month, then every three days for the second month.) *HAVE SALIVA HORMONE TESTING TO GUIDE REPLACMENT (estradiol, progesterone, testosterone, DHEA-S, cor tisol.) *IF NEEDED REPLACE HORMONES WITH A NATURAL, BIOIDEN TICAL FORM *IN MOST WOMEN ONLY PROGESTERONE NEEDS TO BE REPLAC ED (Community Forum, 2002) The instructions go on to explain that soy isoflavo nes or Black Cohosh can help with menopause, as well as B-complex vitamins, and concludes with a suggested reading list for Dr. Lees books (Lee & Hopkins, 1996; Lee, Hanley, & Hopkins, 1999; Lee, Zava, & Hopkins, 2002) on perimenopause, menopause, and breast cancer, and another book titled Adrenal Fatigue by Dr. James Wilson (2001). Terms, many of them unfamiliar to me, are scattered everywhereat the booths, on an overhead banner advertising this seminar, and in the products being sold, including bio-identical hormones, isoflavones, natural plant sources, wild yams, saliva tests, estriol, estradiol, estrone, testosterone, natural progester one, DHEA-S, cortisol, adrenal gland,
24 androstenedione, and on and on. My thoughts swirl with possibilities and connections as I struggle to make sense of these terms, similar to how one might struggle to navigate a first visit to a large and foreign city. I make a mental note to check out this menopause lexicon in the future. The lobby is now filled to capacity with middle-age d women. Some jostle for a spot near a booth, hoping for a chance to talk with one of the specialists before the seminar begins. Others stand side-by-side with fri ends, chatting. A row of women are standing shoulder-to-shoulder, bent forward, survey ing an array of potions for sale at the long tables in the far corner. I stand in the cent er of the lobby, listening to the cacophony of female voices clashing and clanging together lik e cymbals in an orchestra. I decide to check out the room where the seminar wi ll be held and am surprised to find myself standing in a huge auditorium-like hall filled with hundreds of stationary seats. Women, some of whom are chatting with a fri end, already claim some of the seats. Other women milling around, killing time until the seminar begins. A cameraman is setting up video equipment in the center of the roo m. Two large television screens hang from overhead black steel arms situated on each sid e of the long stage at the far end of the room. I am amazed at the sophisticated acousti cs at this church. This hall can hold 500 people easily. Suddenly, I realize that this might be the perfect opportunity for me to test out the viability of the topic I am hoping to use for my di ssertation research, by asking some of the women if they would be interested in talking wi th me in the future. I rush back to the lobby and approach a woman who is alone, leaning ag ainst a column. I introduce myself as a doctoral student in the Department of Communic ation at the University of South
25 Florida, and explain my research project to her. When I ask her if she would be willing to talk with me in the future, she says yes, gives me her name and number without hesitation, and begins to tell me her story about P rempro, explaining that she just took herself off of Prempro because of the recent findin gs of the Womens Health Initiative. Whenever they came out with Prempro, thats when t hey [the doctor] switched me to that. Its got to be at least five years tha t I have been on it. She sounds worried. I read that five years is about the break-off poin t to taking HRT, at least that is what I read in the news lately. I try to soothe h er worry. But for the last four or five months, I just wante d a boost to my libido, so she put me on Estrotest, says the woman. Well, Estrotest has been just fine, my hair is thicker. Whats that? I ask. Its similar to testosterone. It helps your libid o. And I could see the difference in it. It was nice, but I dont want to take anyth ing for the rest of my life. But you do take vitamins everyday, so I want to educate myself Well, we go to the doctors and they give us a pill. We figure it has certain risks wit h it, but not all the stuff they came out with. [She means the findings of the Womens Healt h Initiative (WHI)]. I have a prolapsed valve, so I get arrhythmia, and Im on me dication for it, but Ive been on the same dosage for years. Lately Im getting more pal pitations. Do you exercise? asks a woman who has joined our conversation.
26 I havent been lately because of the heat. Usuall y at lunch I walk a half hour and at night Ill ride my bike, but not lately because it has been so hot. I still get those night sweats, says the first woman. Oh, those are horrible, says the second woman. Never during the day, never, says the first. Wh y is it at night, and then you wake up freezing. I have to change my pajamas beca use I am soaking wet. So now I dont bother with them because I know Im going to sweat anyway. Both women laugh before moving on. I talk with 33 women before the seminar begins, and almost every woman I approach (all but two) is willing to give me her na me and phone number. Some of the women also share a part of their stories on menopau se, usually complaining about somethingweight gain, mood swings, a low libido, f uzzy thinking, or fatigue since entering this stage of their lives. I am surprised at the level of information these women are willing to share with a stranger, but I am also elated to realize that I have a viable dissertation topic. Over the next six months, during the summer and fal l of 2002, I attended six seminars on menopause in the Tampa Bay area. Two w ere held at the Crosstown Church in Brandon, Florida, and one each at Tampa General Hospital, the Tampa Bay Performing Arts Center, the Marriott Westshore in T ampa, and the Clearwater Harborview Center in Clearwater. At each seminar, I spoke with some of the women and collected names and phone numbers. I tucked my lis ts away for future use. I defended my dissertation proposal in early Septem ber 2003. Because my proposal explained my methodological plan in detail I anticipated moving into the data
27 collection stage of my project quickly. I prepared my IRB application for initial review several weeks after defending my proposal, and expe cted a quick approval, as my research fit within their low-risk category. Unfor tunately, I had overestimated the Boards understanding of qualitative research. Two days after I had submitted my IRB application for initial review, I received an e-mai l from their office, informing me that my application had been referred to a full board revie w. I was invited to attend the next Board meeting, which was scheduled to be held in ea rly November, and was asked to submit a formal response to a list of eight questio ns about my research project before the next board meeting. This turn of events not only d ashed my hopes for moving quickly into my data collection stage but also shut down my ability to work on my research project. The first question on their list was the most worrisome, because it asked me to explain when my data collection process had begun. The IRB had erroneously assumed that I had begun my data collection process when I had secured the names and phone numbers of women while attending the seminars on me nopause the previous summer and fall. Over the next few weeks, with a great deal o f help from my major professor, we crafted a carefully worded response to each of the IRB questions. In early November 2003, my major professor and I appeared together in front of the full IRB Board and responded to questions. When we left that meeting, we were confident that we had addressed each of the Boards questions to their sa tisfaction, but two weeks after the Board meeting, I received yet another request from the Board asking me to respond to a number of additional questions. I thought that I w ould never begin my project. And because it had been over a year since I had compile d the list of potential participants, I had begun to think that my entire list of names mig ht be obsolete. But my major
28 professor came to the rescue by contacting the Chai r of the Board directly and, as a result of their conversation, I was asked to complete one additional task: compile a list of psychologists in the event the women needed to talk to someone during my study. I finally received official notification of the appro val of the IRB a few days before the Fall 2003 semester ended. The IRB fiasco had held up my research process for the entire semester, but I was finally ready to begin the data collection stage of my project.3 I planned a four-pronged approach to my data colle ction process. First, I planned to conduct a brief telephone interview using a scri pt to screen female participants for my study, culling potential participants from the list s of names of women that I had gathered at the seminars on menopause. Second, I planned to convene focus groups of women in various stages of menopause. Third, I planned to h old two one-on-one interviews with the women who fit the criteria for the study and ag reed to participate in the study. The first interview would be conducted before convening the focus groups and the second interview after the focus groups had been completed And fourth, I planned to include my voice in each step of the process, while partici pating in the interviews and focus groups, and through autoethnographic vignettes. I also planned to give each woman a disposable camera and ask her to take pictures of h er life in menopause, and return the camera to me for developing. We would talk about t he pictures during the final interview. 3 Frustrated about what had happened to me and inter ested in telling my story to my community, my major professor and I submitted a short narrative to the Journal of Applied Communication Research for its special issue on experiences with Institutional Rev iew Boards (Dougherty & Kramer, 2005).
29 The Telephone Screening Interview In early January of 2004, I began to work my way t hrough my list of names and phone numbers looking for potential participants to my study. Using a planned telephone script, I asked each woman I spoke with a standardi zed list of questions about menopause in order to determine whether she would be willing to make the time commitment necessary to participate in my research project. I tape-recorded each conversation, with the womans consent. The telephone script, contain ed in Appendix A, provided the woman with a comprehensive overview of the project plan by explaining the nature and scope of my research project, including information on the two required one-on-one interviews, the three required focus groups, and an estimated time commitment necessary to participate in the whole process. At this time, I also collected demographic information about the women, including age, race, a nd educational level. I encountered several problems securing participant s for my study from the original list of approximately 75 names that I had gathered at the menopause seminars. Some of the phone numbers had been disconnected by the time I called them. Other potential participants turned down my invitation to participate in the telephone interview. When I phoned possible participants, I left message s for them on their answering machines explaining the reason for my call. Only o ne of these women called me back. I left messages with each of them on three separate o ccasions before assuming that a woman did not want to talk with me. I was able to conduct telephone interviews with 30 of the women who were in various stages of menopause in the Tampa Bay area. All of these women said I could use
30 the information from their telephone interview in m y project, whether or not they decided to participate in the full study. At this stage of the process, my plan was to screen potential participants according to the list of criteria I had established (see Appendix B). Mainly, I wanted to know if they were willing to attend two interviews and three focus groups. If a woman said she was willing to participate in the full stu dy, and agreed to the interview and focus group processes, I invited her into the project. E ven though my preliminary list of criteria included screening participants for age, e thnicity, and educational levels to include a diverse range of women in the study, I di d not use these criteria due to the limited number of women who were willing to partici pate in the study. During the telephone interview, I also asked each participant to give me a pseudonym to use in place of her name, so she would remain anonymous. My original plan called for me to include 8-12 wome n in the study, so I planned to stop recruiting women via the telephone intervie w process when I had at least 16 women who were willing to participate. Doing this would ensure that, once the first oneon-one interviews were completed, I had at least 8 to 12 participants. I reasoned that, if by chance all of the women I met face-to-face agree d to be in the study after we had a chance to talk about the study in more detail, I wo uld simply include all 16. Therefore, I was surprised when I barely met my quota. Many of the women I called (53%) did not want to participate in the full study. They had a variety of reasons for not participating, but most of them explained that they had either a p ersonal or work commitment and just couldnt make the 10-hour time commitment necessary for this project. At this point, I was grateful to have found 15 women who agreed to p articipate in the study.
31 The First One-on-One Interview The next step in the process entailed conducting t he first one-on-one interview with each of the 15 women. My objective for this f irst interview was to establish the groundwork for our relationship. I wanted to get t o know a little about each participant and to help her begin to feel comfortable with me. As a result, I decided to conduct our preliminary interview in a casual, open-ended manne r. I did, however, have a general plan. (See Appendix C for my plan and list of ques tions for this interview.) During the first one-on-one interview, I also reviewed the con sent form with each participant, obtained her signature on the consent form, and pas sed out a disposable camera with instructions to take pictures of her life in menopa use. I asked each of the women to bring her camera to the first focus group so I could have the film developed before our final interview. My intention was to use their pictures in our final interview to identify areas of their lives that were important to them, and to give us an additional topic of conversation during the final interview. When I made plans to meet with the women for the fi rst one-on-one interview, I offered to meet them at a location convenient to th em. As a result, I met three of the women at a conference room in the Department of Com munication at the University of South Florida. I met three of the women at restaur ants they selected. I interviewed two of the women at their offices. Six women invited m e to their homes. And one woman, who joined the research while she was in town from Wisconsin visiting her daughter, was interviewed at her daughters home. All of the int erviews were tape-recorded. Holding the interviews in a restaurant proved to be problematic, because the loud background music in restaurants interfered with the quality of my tape recording. For
32 example, I met one of the participants at the Paner as Restaurant in Carrollwood at 6:00 p.m., after she finished work one evening. I was a ble to review the consent form with her, which she signed, agreeing to be in the study. But as the noise in the restaurant was too loud for us to conduct a taped interview, we ma de plans to meet at her home the following week. That interview never took place. I was never able to re-establish contact with her, and after several phone calls and messages, I decided that she had dropped out of the study. During the first round of interviews, I found two p articipants unsuitable for the study. One woman stood me up on two occasions, eve n though I confirmed our appointments. When I finally did meet with her, I noticed that her interpersonal behavior seemed off. She didnt crack a smile as we talke d, she yelled at me for no apparent reason, and generally appeared to be angry. When s he revealed to me that she had a short-term memory problem as a result of a car acci dent, I decided to drop her from the process. I was uncertain whether she would remembe r to attend the group sessions, and concerned about how she would mix with the other wo men. I dropped the other woman from my study because she did not seem to be partic ularly interested in talking about menopause. This left me with a final group of twel ve women who agreed to participate in the study. They had been interviewed over the telephone, interviewed a second time in person, and had signed the consent form. These initial one-on-one interviews took anywhere from one to two hours, with one exception. The mother of one of my participants was visiting from Wisconsin when we he ld our first focus group at that participants home. Because the mother joined the project the day of our first focus
33 group, I conducted the preliminary screening interv iew as well as the initial one-on-one interview and consent process in person before the focus group convened that day. The Focus Group Process I had originally planned to hold six focus group s essions. Because I had asked each of the women to attend at least three sessions I had thought that six sessions would be enough to allow each woman room to select three sessions. But this goal proved to be unrealistic. In order to accommodate each of the p articipants schedules and to ensure that each of them attended three focus groups, I he ld eight focus group sessions over a span of one month, during March 2004. It took quit e a bit of coordinating and many phone calls in order to schedule the women into the focus groups. But this process worked out nicely. I held three of the focus groups on consecutive Sun day mornings, in a conference room in the Department of Communication at the Univ ersity of South Florida. The same four participants attended all three of the Sunday focus groups. (When I discuss this particular set of focus groups, Ill identify this one as the Sunday group). I held another three focus groups in the home of one of th e participants who lived in south Tampa. Two of these meetings were held on subseque nt Mondays, but the third interview was held on a Thursday. The number of pa rticipants varied from session to session, with a high of five attending the first se ssion, three attending the second, and four the third session. (When talking about these focus groups, Ill identify them as the Monday group.) And I held two additional focus g roups, one on Tuesday and one on Wednesday, in a conference room in the Department o f Communication at USF. (When talking about these focus groups, Ill identify the m as the Tuesday group.)
34 All of the focus groups were held during the day. I had originally planned to hold one series of focus groups in the evening to accomm odate the womens work schedules, but this became a moot issue when the women wanted to attend during daytime hours. I brought a variety of pastries, bagels, cheeses, bre ads, fresh fruits, coffees, teas, and juices to each focus group meeting. All of the focus grou p sessions were tape-recorded. The time frames for each of the focus group sessions va ried from one and a half to two hours. For the most part, the women stayed within the same groups for the entire three sessions, except for one woman who attended five groups. I m oved two women from the Monday group to the Wednesday group in order to balance th e number of participants and assure at least three per group. Three women dropped out or were not scheduled into the focus groups. One woman wanted to attend an evening session, but I ne ver convened an evening focus group because the other participants were not inter ested in attending an evening session, so she was dropped from the study. Another partici pant appeared to have a scheduling problem, but when I talked with her in more detail about the schedule, she revealed to me that she felt her English wasnt good enough to be understood by the other participants. I tried unsuccessfully to coax her into joining a gro up. One woman came to one focus group and then dropped out because she had a confli ct with her job. These changes left me with a total of nine participants who participat ed in the preliminary telephone interview, the first one-on-one interview, and thre e separate focus group sessions. The Final One-on-One Interview The final one-on-one interviews were held at my apa rtment in New Tampa during the summer and fall of 2004. I served lunch or din ner at each of these final meetings to
35 all but one participant who turned down a dinner in favor of tea and pastries. This final interview was by far the most intimate and open con versation that I had with each of the women, including the time we spent talking in the f ocus groups. I believe that this occurred because I had by this time talked face-toface with each participant on at least four separate occasions. I incorporated a discussi on of the womens pictures in this interview. The final one-on-one interviews lasted from 2 to 3 hours and were taperecorded. (See Appendix D for a list of questions for the final one-on-one interview.) I was able to contact each of the participants in o rder to schedule these final interviews, except for the mother/daughter pair of participants. During the summer and early fall of 2004, I tried several times to contac t the daughter, who lived in Tampa, to arrange a final interview with her but was unsucces sful. By early November of 2004, all of the remaining final interviews were completed, s o I decided to close down the data collection stage of my research. As a result, two participants were not interviewed during the final round of one-on-one interviews. This lef t me with seven participants who completed the entire process of interviews and focu s groups. The Transcription Process and Issues Transcribing the myriad tapes I had recorded was a time-consuming process. I had 35 interview events with my participants to tra nscribe, including 3 interviews for each of the 9 participants (including their initial telephone interview) and a total of 8 focus group sessions. Additionally, I had the tape recordings from the six seminars I attended in the Tampa Bay area. I also had to tran scribe an additional 21 telephone interviews from the women who did not participate i n my study, but agreed to interview over the telephone. My initial thought was to doub le space the transcripts, and to include
36 every sound the women made such as every um, ye s, and other sounds I heard on the tapes as I transcribed them. But doing that be came unwieldy, when several of the focus group transcripts ran over 200 pages. During my transcription of the focus groups, I also discovered that the women talked over one an other, each forming half-sentences before the other woman would interject her thoughts So I had overlapping conversations. I tried to incorporate the overlapp ing conversations when possible, but if the thought was so disjointed as to not make sense when read, I then gathered up the fragments of the thought and pieced them together a s a complete sentence where I could. But as I mentioned earlier, I also left some of the half sentences intact, when the flow of conversation was discernable. During my second pass listening to each of the tape s, I decided to single space the transcripts to reduce the volume of paper to a more manageable level, and I edited the first draft of each transcript to eliminate some of the ums and other sounds that didnt seem to add to the conversation. As a result of th ese changes, each of the transcripts averaged approximately 55 pages (excluding the tele phone interviews). I transcribed some of the tapes myself, but also I enlisted the h elp of several transcription services to help with the transcription process. Every tape wa s reviewed twice, either twice by me, if I did the transcription myself, or once by the tran scriber and then once by me. I had to decide what to do with the data I had coll ected from the women who dropped out during the study. I decided not to tra nscribe the initial one-on-one interview with the woman who attended only one focus group. I did transcribe the one-on-one interviews with the mother/daughter pair, but decid ed against writing individual vignettes about any of these three women, because they did no t complete the entire process. But,
37 because one of the women attended one focus group a nd the mother/daughter pair attended three focus groups, I decided to include t heir voices in the focus group conversations, as it would be too difficult to elim inate their voices from the flow of conversation. And each of these participants, espe cially the mother/daughter pair, had contributed actively to the meanings and flow of co nversation in the focus groups they attended. A summary of the demographic information about the nine women who participated in the study is detailed in Appendix E Included in the demographic information are the three women who attended at lea st one focus group, but dropped out before the final interview sessions. I also includ ed demographic information about myself, because I participated in the study as a wo man in menopause. Rationale for My Methodological Strategies Focus Groups Focus groups can be a rich source of information w hen a people get together to talk about a topic that is important to them (Morga n, 2002, p. 151). Interviews are an appropriate methodology to use when the topic being studied does not revolve around a particular setting, but instead concerns understand ing common themes between respondents (Warren, 2002, p. 85). As my research project fit both of these criteria, I decided to incorporate a blend of focus groups and interactive, collaborative, and in-depth interviews when collecting my data. In the next se veral pages, I first enter into my discussion on focus groups with a brief vignette of my first focus group session; second, I
38 discuss my rationale for holding unstructured, inte ractive focus groups and collaborative interviews, and finally I consider some of the pros and cons of these methods. * * * * * Freshly ground coffee is brewing in the large coffe e pot I brought from home, as the women begin to arrive to our first, Sunday morn ing focus group session. I am in a conference room in the Department of Communication, at the University of South Florida. I came in an hour early, in order to make sure that I had time to prepare the conference room for my very first group. I cover t he counter at the far end of the conference room with a white, paper tablecloth, and as I begin to lay out a breakfast spread, I feel a familiar deep, warmth blast throug h my body. I continue working, ignoring the beads of perspiration that form on my forehead. I lay out bottles of chilled water, a variety of non-dairy flavored creamers, an d a plate of fresh strawberries to go with the pound cake I bought at Sams Club yesterda y. I quickly stack whole wheat and cinnamon-raisin bagels on a plate next to a row of sliced cheese. I wipe my brow and continue working, arranging pink, plastic cups and plates to the far left side of the counter. The women begin to stream into the confer ence room. They tell me that they could smell the aroma of coffee wafting down the ha llway. We congregate next to the spread of food, chitchatt ing while we fill our plates. Did you see that they stopped the second study? asks Anna. No, I didnt see that. They stopped it? I respo nd, startled. It was in the paper, explains Malika. Too many strokes, says Anna. Its scary.
39 I lost one ovary to a tubule pregnancy, but I sti ll have the other one, confides Malika. Before the patches came out they had pell ets. They cut my hips every other month and inserted a pellet. I guess they did this for the month I would ovulate from the missing ovary. She lets out a slight giggle. We all gasp in reaction to her statement. How could cutting and possible disfigurement happe n in the name of HRT? I wonder. I never heard of HRT in the form of a pellet. And what does she mean she ovulates every other month? Shouldnt she ovulate every month, even with one ovary? I reason. I make a mental note to ask a medical doctor about those pellets. Just then, the final woman arrives and we all exchange introductio ns again. While the women carry their filled plates to the conference table and cla im chairs around the table, still chatting to one another, I hurriedly set the steaming pot of coffee onto a trivet at the table and arrange a small container of half-and-half and bowl of sugar next to the coffee pot. I check my microphone and tape recorder one more time to ensure both are working before sinking into an empty chair at the conference table My heart is racing. Okay, this is it, Linda. I think to myself. I hope all of my planning pays off. My first focus group session for my dissertation re search is about to begin. Whew! I hope I get good data from this session. I take a deep breath. My palms are sweating. I ca n barely concentrate on the continual stream of conversation I hear from the wo men sitting around the table. But I am aware that the women have been revealing tidbits of their lives to one another: where
40 they work, what they do, where they live. My mind is a swirl of competing thoughts. On the one hand, I am marveling at how nicely they are talking together with no prompting from me. But on the other, I am wondering if I sho uld say something formally to start our conversation on menopause. Should I let them just continue talking? I ponder this idea. No, that might be too risky. Especially for this s ession, my first focus group. What if they dont talk about menopause? Then what would I do? I reason. I had better set the stage for our talk today, even though I had hoped to let them just talk about anything today, in a more or less f ree-flowing, interactive manner with little help from me. I am way too nervous to follow my instincts. My daughter is going to be a freshman in college t his September, declares Anna. I interrupt her to begin my introduction. Thank you for being here today, I begin, breathle ss with excitement. In unison, the room goes silent. All eyes turn to face me. The silence continues. Oh, no, I think to myself, staring blankly at the four wom en. I just foiled my plan to test out my new idea for focus group intera ctions. The women were talking together so nicely before I interrupted them. I ju st interjected a frame of formality into their conversation I should not have inserted my authority into their conversation . My heart sinks. At this moment I am deeply aware of m y inexperience as a researcher. Too late to do anything else, I plunge ahead.
41 Essentially, I want you to talk today about your e xperiences with menopause in light of the recent findings of the Womens Health Initiative. And I do want to keep the conversation as open and flexible as possible, so t hat you each have the opportunity to share what ever you want. I really want to hear yo ur opinions with very little prompting from me. So over the next hour and a half, I would like you to share with the group your personal experience in your stage of menopause. Fe el free to move the conversation in any direction you want to go. Feel free to share y our opinions with the group. I may interject a question just to clarify a response, bu t as I am also a woman in menopause, Im going to be interjecting my opinions, too. Wou ld you like a list of questions before we begin? I am grateful when the women turn down my offer. W ithout hesitation, they turn to each other again and begin to chat. I let out a sigh of relief. I have learned my first applied lesson on interactive focus groups; let the conversation emerge with a minimum of help from the researcher. * * * * * Focus groups are a good methodological choice when the researcher wants to investigate complex behavior and motivations (Morga n & Krueger, 1993, p. 16). Focus groups have also become a prominent tool for giving voice to the marginalized and those outside mainstream society (Morgan, 2002, p. 142). They can be a rich source of information if you have a group of people talking t ogether about a topic that is important to them (p. 151). I had hoped that by using a focu s group format the women in my study would share their stories and experiences with one another in the present moment, and provide a rich source of data. And because I had p lanned on including minority women
42 and older women in my study, I thought that this me thodological choice might also help give voice to those who may have been marginalized or outside of mainstream society. Focus groups can serve to expose and validate wome ns everyday experiences of subjugation and their individual and collective sur vival and resistance strategies (Madriz, 2000, p. 836). Focus groups also allow th e researcher to observe the interactional processes among participants (p. 836) And as I was hoping to recognize changes in the womens perspectives on their lives in menopause, focus groups appeared to be an appropriate methodological choice. When scheduling women into the groups, I didnt seg ment them into groups based upon their stage of menopause or age. Rather I developed a list of dates and times for the various focus groups and asked my participa nts to self-select the dates most convenient to their schedules. By mixing the women in various stages of menopause, I hoped we would develop a richer interactional proce ss, as the women were sharing different information and experiences. I conducted the focus groups in an unstructured man ner, because focus group participants who are emotionally involved with the topic find it easy to start and maintain a discussion (Morgan, 2002, p. 148). My objective was to allow the participants to reveal their own perspectives and issues regarding menopau se. A less structured approach works best when the participants themselves are jus t as interested in the topic as the researcher is (p. 149). Madriz (2000, p. 840) ex plains that participants in focus groups who are discussing issues that interest them are ab le to carry on the conversation on their own without any prompting from the moderator. I al so planned to join the conversation
43 as a participant observer, sharing my own stories a nd experiences on menopause with the women. But, unfortunately, I did not adhere to my plan. A s the previous vignette shows, I panicked when holding my first Sunday focus group a nd framed the start of the discussion by introducing myself, the study, and en couraging the women to talk freely without a moderator. Unfortunately, during this fi rst focus group session, I also worked into the discussion some of the planned questions I had developed. I did this because it seemed that the women were talking around the topic and I wanted to ensure that my questions were answered. I was worried that I migh t not obtain good data. Much later, after I had finished transcribing the Sunday tapes, I matched the transcripts to my planned list of questions and discovered that the women ans wered every question I had thought of asking and went beyond to talk about issues I had n ot thought to include. Fortunately, I was able to refrain from inserting an initial intro duction into the opening sessions of the Monday and Tuesday focus groups and didnt need my planned questions. I simply started the tape recorder and let the conversation, rules, and roles of the participants emerge. I went along with the flow. This worked w ell and I followed this plan with the second sessions of all of the groups. During my fi nal (third) focus group sessions with each group, I made a point to ask my planned interv iew questions to the group of women to ensure that I received answers to the questions I had originally planned and also to give me a benchmark to determine whether I was receiving data that were richer than I might have received if I had only followed my planned int erview questions. (See Appendix F for a complete list of planned questions for the fo cus groups.)
44 Some problems arose from using an unstructured focu s group strategy and sharing my own stories with the group. There is no doubt th at I, as the researcher, was framing the sessions. There were the material props, such as the two tape recorders and the microphone sitting in the center of our table durin g each session. Most of the focus group sessions were held in a relatively formal env ironment, in a conference room at the University of South Florida, except for the Monday sessions, which were held in the home of a participant in south Tampa. All of these trappings served to frame our work together, and to situate me as the researcher in th e eyes of the participants. And as the researcher, I was aware that I was already position ed as an authority figure, but I noticed that the women managed to insert themselves into th e group process nicely, including the material processes. For example, they helped with the tape recording process. Sometimes they reminded me that it was time to turn over the tape; other times, they took charge of the tape turning process. And on occasio n they would also ask if I had checked to make sure the tape was turned on and recording. After each session, the women would help me pack up my equipment and help me clean up. And although the women seemed to make a space for m e in the conversational process, I wondered how much of this was a result o f the power differential between us as researcher-participant. As a result of my curio sity about this issue, during my final one-on-one interview I asked the women what they th ought about me joining the conversation. Without exception, they said my acti ve participation in the talk was a positive influence on them. They appreciated that I had joined in the conversation, because it drove home the point for them that this study was an important research project for me (later I discuss the researcher-part icipant issue further).
45 However, when I transcribed the Sunday focus groups I found myself groaning every time I heard myself chatting away on the tape droning on and on about my own hot flashes, the large polyp I had removed from my uterus, my weight problem, and the mystery of my thyroid closing down seemingly in tan dem with the onset of severe hot flashes. How boring it was for me to hear myself o n tape! I felt that I had taken up precious time talking about myself and found myself wishing I had stopped talking. On the other hand, I also knew that a give-and-take, t o-and fro, spontaneous interaction is necessary in order to make space for moments of dia logue (Cissna & Anderson, 1998). And as each set of focus groups had different women in attendance, I was forced to listen to myself happily tell my stories over and over aga in to the different groups of women. I tried not to moderate the flow of conversation in the groups, but inserted my voice in the flow of conversation. The women appea red to share the floor with each other, with each having time to express her ideas, except for the mother of one of the participants in the Monday groups. She talked infr equently, with most of her conversation in the form of agreements such as um and ahhh. One woman in the Monday group did appear to dominate the conversatio nal flow. But the other members of the group seemed to be strong enough to express the mselves, especially when sharing a different perspective with the group (Morgan & Krue ger, 1993, p. 33). In thinking about the dynamics of the group interactions, I believe t hat a group leader emerged in the Monday group sessions because I did not lay out gro und rules during my initial meeting with that group.
46 Interactive and Collaborative Interviews Qualitative interviewing may be viewed as a collabo rative process between the interviewer and the interviewee (Ellis, Kiesinger, & Tillmann-Healy, 1997). A collaborative dimension to the interview process wa s particularly important to my research project, as I had hoped that a more dialog ic process would emerge as a result of my interactions with the respondents and that such a collaborative process would set the stage for a richer exchange between me and my resea rch participants. Although genuine dialogue cannot be planned beforehand and must occu r spontaneously between the people (Buber, 1998, p. 77), I had hoped that a col laborative interview process would provide the frame for me and my participants to rem ain open to engage in dialogue, if an occasion were to occur during the interviewing proc esses. As I had also hoped to blur the boundaries between the researcher and the subject, I used interactive interviewing as a means to engag e in joint sensemaking with my participants. Ellis and Berger (2002) used interac tive interviewing successfully, and explain that the collaborative and relational aspec ts of this interview process aids in the construction of the meanings that emerge from the i nterview. Interactive interviewing also helps the researcher obtain a more intimate un derstanding of peoples experience and is good to use when working with emotionally charge d and intimate topics (Ellis et al., 1997, p. 121). Interactive interviewing works best in small groups, and when the researcher has personal experience with the topic. The goal of this type of interview process is for the researcher to act as both resear cher and research participant. Interactive interviewing usually requires multiple interviews a nd requires that the researcher and participant develop a relationship so that the rese archer and participant engage in joint
47 sensemaking (Ellis et al., 1997, p. 121). Although interactive interviewing works best when all the participants are trained as researcher s, this style of interviewing may work with participants who are not researchers, if the p articipants are given a role in the content and interpretation of the meanings in the i nterviews (Ellis & Berger, 2002, p. 857). My participants had a say in the direction and cont ent of both the interviews and focus groups meetings. For the most part, they con trolled the direction of the conversation, the flow of conversations, and the to pics that were discussed. As much as possible, I tried not to lead the conversation, but to join them as a researcher-participant by sharing my experiences of menopause and my obser vations on whatever topic we were discussing at the moment. But, as I mentioned earlier, as the researcher, I realize that I did have an impact on the interview and focu s group processes. In addition to having a say in the direction of the conversation during the interviews and focus groups, the participants also had the opportunity to read a copy of the final vignettes I wrote about them and to comme nt on them. I mailed each woman a copy of her vignette, and followed-up with a phone call asking if she agreed with my portrayal of her. Not every participant returned m y call. But those I talked with agreed with my portrayal of them. As I did not hear from the others, I assume that they also felt comfortable with my portrayal of them. In-Depth Interviews In-depth interviewing was a second qualitative inte rviewing process that I used in conjunction with interactive and collaborative inte rviewing. In-depth interviewing allowed me to disclose my personal views and feelin gs to the participants. In-depth
48 interviewing can be used successfully when the rese archer is also a member of that class of research participants that are being studied. I n-depth interviewing seeks deep information and understanding and is usually used w hen the information that is sought is not readily articulated or is taken for granted (Jo hnson, 2002, p. 105). I had hoped that in-depth interviewing would help me understand how the women had resolved certain issues, such as the invisibility of older woman in our society. I had also hoped that their stories might help me recognize their taken-for-gra nted underlying assumptions and sensemaking processes, helping me to recognize a pa rticipants underlying value system and common assumptions about the world by her way o f talking about herself and her life in menopause (Johnson, 2002, p. 106). In-depth int erviewing was incorporated within each meeting with my participants, allowing the wom en to become more comfortable with me as the data gathering progressed, with them most comfortable during our final interview. As a result, I noticed that many of the women disclosed more intimate details of their lives during our final interview. Autoethnography Autoethnography provided a way for me to insert my own voice and life experiences, as a woman in menopause, into my resea rch study. I did this in several ways: by writing reflexive stories about myself and my personal experiences, through reflexive analysis of my interactions with the resp ondents, and through the reflections I had while I wrote the other womens stories. Refl exive autoethnography, also known as personal narrative, informed my research study. Au toethnograhy is an autobiographical genre of writing and research that is highly perso nalized (Ellis & Bochner, 2000, p. 730). Through autoethnography, authors tell stori es about their own lived experiences,
49 relating the personal to the cultural (Richardson, 2000, p. 931). Usually written in the first person, the researcher moves back and forth b etween the cultural and personal aspects of her experience (Ellis & Bochner, 2000, p 739). The goal, which focuses on the researchers life, is to understand some aspect of the researchers lived cultural experience. I wrote evocative, emotionally rooted, autoethnogr aphic, and impressionistic tales in the form of vignettes of my personal experiences coping with and making sense of menopause. Autoethnography also has allowed me to capture the rich, emotional aspects of my experiences and reflections while interviewin g the respondents and while participating in the focus group sessions. Impress ionist tales reconstruct in dramatic form those periods the author regards as especially notable and hence reportable (Van Maanen, 1988, p. 102). Impressionistic tales are evocative narratives complete with plot, character development, and suspense and can usually stand alone without extensive commentary (Van Maanen, 1988, p. 103). I used sociological introspection to help me exami ne how my social and personal experiences fused into felt emotions (Ellis, 1991 p.23). Sociological introspection helped me delve into my own sensemaking, allowing m e to root out my underlying values and frames in order to write richer, more ev ocative, and emotionally felt stories about my personal experiences and those of my parti cipants. Constructing Personal Narratives and Category Analy sis I wrote stories about the womens experiences in m enopause in addition to writing my own stories. I developed these stories from the focus group and one-on-one conversations. When deciding what to include in ea ch of the womens stories, I read the
50 transcripts repeatedly to identify topics that were important to the woman, so I looked for topics that the women discussed repeatedly during t he interviews and focus groups sessions. Although I did not code my data in the t raditional sense, I identified the topics that emerged in the womens stories. I then used t hose categories in my analysis of the womens sensemaking. Issues and Concerns with My Methodological Strategi es It can be problematic for me as the researcher to write myself into the research project as I did. By doing so, I may have inadvert ently silenced the voice of the other. In addition, my interviews may have served to create a nd sustain power relations in society and may have served to exclude the diverse voices t hat I tried to include through the interview processes (Briggs, 2002). So, even thoug h I incorporated reflexive interviewing strategies into my research conversati ons while I was interviewing the women and while I was interacting with the women in the focus groups, in order to make my research collaborative and inclusive of the othe r, I recognize that I need to reflect upon some of the issues that called me to this proj ect. When telling the story of the research, the interviewers might reflect deeply on the personal experiences that brought them to the topic, what they learned about and from themselves and their emotional responses in the course of the interview, and/or ho w they used knowledge of the self or the topic at hand to understand what the interviewe e was saying (Ellis & Berger, 2002, p. 854). In reflecting upon the reason for conduct ing this research study, I realized that this project was really about me. It was about my frame, my sensemaking, my way of seeing and being in the world, and my body. As a r esult of this issue, I kept field notes,
51 and notes on notes about my personal reflections du ring this project so that I could reflect upon some key issues, such as: 1. To what extent has my analysis offered an altern ative to the dominant discourse? 2. Have I worked to explain the position from which the participants spoke? 3. Have the participants reviewed the material and had the opportunity to dissent or challenge my interpretation of their sto ry? If so, how do I report these departures? A more complete list of key reflexive questions is included in Appendix G. Reflections on My Methodology It sounds so neat and clean to say that I wanted to provide a venue for women who may have been marginalized to have a space to e xpress their personal standpoints through my project. But as I analyze my data I mus t stay alert to whose voice I am hearing. Understanding ownership of the voice is c omplex and messy. For example, will I hear the voice of the medical community? Will I hear the voice of a single mom trying to cope with financial burdens in addition to copin g with menopause? Will I hear the voice of a married woman reflecting patriarchal val ues? The respondents voice might shift from one standpoint of experience to another over the course of the interview cycle (Warren, 2002, p. 84). Whose voice is it anyway? And how will I know which voice I am hearing? By choosing to talk with women who hav e bought into the idea of using HRT, have I already skewed the potential for this p roject to include the voice of women on the margins, as women of higher income levels ma y be more likely to take HRT than women of lower income (Finley, Gregg, Solomon, & Ga y 2001)? Will the stories I hear
52 belong to the women, or will they be no more than a relanguaging of the discursive formations in our society that serve to constrain a nd frame our everyday experiences and understandings? Who owns the opinions and stories that will be expressed in the interviews that I plan to conduct (Gubrium & Holste in, 2002, p. 22), and can we ever discern ownership in individual terms(p. 24)? And how dialogic can I really be as a researcher, when Im trying to root out anothers s tory? I need to be sensitive to these issues while I reflect upon and process the womens stories that Ill hear in my project. One Final Thought During my research study, I carried with me a prepa red list of psychiatrists available for the participants, but no one asked fo r this information, or appeared to me to be in need of it. One of my participants did phone me asking for the name of a physician who practiced natural methods of HRT that another p articipant had mentioned during one of our focus group sessions. I gave her the name o f the physician that the participant had mentioned. This woman phoned me again more recentl y asking for the same information. This time I dug into the pile of info rmation I had gathered when I had attended the seminars in the Tampa Bay area of HRT and the WHI. I was able to give her additional contact names of physicians who prac ticed natural methods of HRT. In the next chapter I share the stories I heard fro m the women. In chapter four I analyze the womens sensemaking and in the final ch apter, I reflect on my findings and discuss areas for future research.
53 CHAPTER 3 STORIES ON MENOPAUSE Stories are the narrative frames within which we m ake our experiences meaningful (Bochner, 2002, p. 73). When we tell s tories about our lives, we engage in retrospective sensemaking, interpreting and reinter preting past events. In the process of doing this, the meanings we derive from, and the se nse that we make of, our stories, changes over time. This helps us bridge our presen t selves to our past. Threads of our stories form a special bond between the storyteller and the listener, in that the process requires collaborative sensemaking between all part ies. The goal of any story is to help the teller come to terms with an event: Why did t his happen? How can I understand what it means? What lesson have I learned? (Bochne r, 2002, p. 81). So stories help us manage uncertainty and adversity in our lives. The y provide us with a means to cope with the mundane but also the challenging. And dia logue helps to set the ground for the process of storytelling. In order to be in dialog ue, one must be an active, in-the-presentmoment participant in the interaction (Buber, 1999) Being in-the-moment allows the stage to be set for co-creating joint meanings with the other. The stories that follow explore my participants sensemaking on menopause. All of the stories were constructed from the transcripts of my one-on-one interviews an d focus group sessions with the women, except for the final story written about Mal ika. That story was constructed exclusively from the transcripts of the Tuesday foc us group sessions. I included one
54 focus group story for several reasons: (a) Because Malikas one-on-one interviews did not address the topic of menopause as directly as t he other womens interviews did, I used a focus group to produce her story, and (b) I planned to incorporate at least one focus group story in my study in order to add an ad ditional depth and breadth to my research project, so it seemed appropriate to incor porate Malikas story in this way. Stephanies Story I am driving south on I-75 this bright Wednesday m orning, to meet with Stephanie, one of my research participants, for our first one-on-one interview. Cold air is blasting from the air conditioner of my Ford Escort and my hands are gripping the steering wheel in the traditional 10 and 2 oclock positions, as I speed down the expressway. The radio is tuned into a PBS document ary about people who like tattoos, but I barely hear the commentary. My attention is focused on my preparation for my meeting with Stephanie. Lets see, I brought two tape recorders with me. I tested the larger one at the seminars on menopause that I attended last summer. So, I know it does a great job recording. But the smaller one, my backup, has not been tested. I hope I brought enough tapes for both units. I hope I brought enough batteries for both units. Where did I put those batteries? I snake my right hand into the opening of the black briefcase lying on the passenger seat next to me and rummage around, until I feel the hard roundness of the large batteries. I conti nue rummaging through the briefcase until my hand comes in contact with the smaller, AA -sized batteries. I sigh.
55 What if she and I dont click? Then what should I do? I dont want to appear rude or awkward. Well, Ill just have to wing it and hope things wor k out. Stop worrying! You are an excellent interviewer. You have interviewed people a thousand times before so just try to relax and be yourself. Yes, I affirm, as a way to soothe myself. You are an experienced interviewer. And people feel comfortable around you. I reflect on the career I had in business before en tering my Ph.D. program. I have always worked with people, facilitating meetings or interv iewing employees while in management, professional sales, or organizational d evelopment. Yep, I should be okay, I conclude. And Stephanie appeared to be very verbal, open, and fri endly when we talked over the telephone last week, I reason. I should be okay. Well, I hope she feels comfortable talking about he rself with me this morning. An SUV cuts in front of me. I slam on the brakes a nd slow down to create more distance between us. Crazy driver! Drivers are so reckless in Florida. I shake my head.
56 Stephanie and I had talked over the phone a few wee ks ago to arrange this meeting. At that time, she gave me detailed direct ions to her place of business and told me to expect the drive to take around 45 minutes. I left an hour early to be sure I was on time for our 9:00 appointment, because I thought th e morning traffic would be heavier than it is today. Stephanie, a 50-something year o ld Caucasian woman, works at a medical facility in west central Florida. I am hap py that she is the first of the group of women whom I will be interviewing for my research p roject. I think we have a lot in common. We are both childless We are in our 50s, but she is a few years younger t han I am. We are both single, but she has a live-in partner. I have none. We both have advanced degrees. We are both in professional careers. Well, I rationalize I am a doctoral candidate at the moment, but will soon be working as an assistant professor, once I finish my dissertation and get a real job. But Im close enough to a professional status, I reason And we are both through menopause. I pull off the expressway at the next exit. The si ght of beautiful, stately palm trees lining both sides of the road catches my attention, even though I have lived in Tampa for 5 years. Im originally from Illinois, so Im not accustomed to such a beautiful sight on a daily basis. Living in Tampa has been like living in paradise, except for the fact that I have never had the time or money to enjoy my surrou ndings since Ive been here. My Ph.D. program has required all of my energy.
57 I pull into the parking garage, park my car, and fo llow the exit signs to the lobby elevator. Stephanies directions call for me to ta ke the elevator to the top floor and walk to an adjoining hallway that will lead me to her of fice. I hop into the elevator, press the number, and wait. My heart beats faster. My hands begin to sweat. A broad grin forms on my face. I am elated to be here today, starting my data collection process. When the elevator doors swing open, I step into a d imly lit hallway. The smell of antiseptic assaults my nostrils. Pine Sol! I am surprised to make this connection. The squeal of a skid, straining under its load, pulls into my mind. No, this cant be, I reason. I look to my right and see the sign, Dialysis. Sometimes our memories lie dormant just below the s urface of our consciousness, tucked away in a private place in our mind, ready t o leap into the present without warning. Like water spilling from a cracked glass, seeping slowly through the seam at first, until it bursts through the jagged hole, in an ever-widening circle. Certain memories retain their power, long after the sharp edges of the actual incident have faded, like a wound that wont heal p roperly. Walking through the dialysis ward on my way to Stephanies office caught me off guard this day, flooding my consciousness with a cacophony of memories from my past. The screech of iron wheels straining against the ce ment floor. Darkly colored, wooden skids piled 6 high by 6 deep, loaded with bo xes of fresh, eviscerated chickens being pulled into the doorway. The antiseptic smel l of Pine Sol mixed with the sour
58 scent of chicken water wafting through the air. Wi llie B, tall, dark, and handsome, dressed in the markets traditional blue and white stripped smock, standing over a skid of chickens with a half-smoked cigar hanging out of hi s lower lip, screaming out the weights of the boxes in his deep, guttural voice: 65, 73, 61, 69, 62, while telephones ring in the background, demanding attent ion. An image with my father pulls into my mind. Linda, L-i-n-d-a! He yells up the stairs of our home. Its time to get up. Its 5:00 a.m., time to get up. Youre going to be late for work if you dont leave soon . He rests a spindly leg against the banister, hangin g onto the railing for support with an equally thin arm. A black patch covers his clouded right eye, the result of a stray blood clot. My sweet father, diagnosed with kidney failure at the young age of 46, is too weak to work any longer. His body is filled with a mixture of Demerol to ease his pain and waste materials that need to be flushed out of his blood, because his kidneys have stopped functioning. Dialysis centers were not common in 1967, when my f ather was diagnosed with kidney failure, and little government support was a vailable. Six months after he was diagnosed, his medical insurance coverage was exhau sted because the medical bills were so high. My mom shuttled my dad back and forth to a hospital in Iowa City for over a year, so he could be dialyzed three times a week. Sometimes they spent months and months in Iowa City, when my fathers condition was so critical that the doctors thought we could lose him at any moment. But eventually, w hen he was strong enough to come home, we purchased a new washing-machine-sized kidn ey machine, arranged the den
59 like a hospital room, and my mother learned how to dialyze my dad at home. She would dialyze my father three times a week for about 4 ho urs each time. During the three-year period my father was ill, I s tepped into his role as the owner and manager of a small wholesale poultry business a t the Fulton Market in Chicago, Illinois. Six days a week, week after week, I trek ked into the city, leaving home before dawn and arriving back home long after nightfall, s ometimes as late as 10:00 p.m. in order to manage an unfamiliar business in a dangero us part of town so that we could ensure that my fathers medical bills and our house bills were paid. I purchased two semi-trailer loads of fresh eviscerated chickens fr om a supplier in the south. The chickens were trucked to me in an air-conditioned t railer, smothered in layers of ice and packed in sturdy boxes for the long trip to the Ful ton Market. I sold the boxes of chickens to restaurants and grocery stores in the C hicago metropolitan area and handled the normal day-to-day troubles associated with a sm all business as best I could. The staff consisted of three or four drivers who delivered th e chickens, two housemen who cut the chickens for special orders, and Willie B, who help ed with anything that needed to be done, such as dispatching the drivers, arranging th eir routes, and loading the delivery trucks. He also watched over my safety. Six days a week I sold boxes of chickens, took in the cash from the drivers, generally watched ove r the business, and handled any problems. On Sundays I worked on the books, paying bills, posting to the accounts receivables, and preparing statements. I was ninet een. Should I tell Stephanie part of my story? I wonder. Should I tell her about the memories that have been swirling through my mind si nce I stepped off the elevator and found myself on the dialysis floor of this building ?
60 I stop in front of a small, but brightly lit office Stephanie, wearing a traditional length white smock covering her street clothes, inv ites me in. After our greetings, she offers me a seat across from her at a round table t hat takes up half the space of her office. On the far side of the table is a file cabinet next to a small refrigerator. Perched above the file cabinet is her Masters diploma. A computer, printer, and small tabletop desk stacked with neat piles of file folders line the entire wall on my right. This is a dialysis area, isnt it? I ask, still m ulling over how much to tell her about my flashbacks and when to do so. This interview between Stephanie and me is a social production, a collaborative construction between the two of usa site for know ledge production rather than simply a neutral conduit for experiential knowledge, as tr aditionally believed (Fontana, 2002, p. 166). Interviews are situationally and contextuall y produced. During my interviews, I want to bridge the traditional relational gap that exists between the respondent and interviewer, with the hope that together we can bec ome more equal partners in a negotiated dialogue. Even though traditional inter view protocols would encourage me to maintain a distance from the participant, and to ho ld off from revealing my experiences about my life to the participant, I want to close t he hierarchical distance between us (Reinharz & Chase, 2002, p. 228). I think about my hopes for our interview, while I mull over what to reveal to her. But there are other issues I need to consider as we ll. Would my impending selfdisclosure serve to tighten our bond, putting Steph anie at ease and on a more equal footing with me, or will it serve to pressure her t o reveal things she might not want to reveal? Will revealing my memories serve to share power with Stephanie, or will it
61 simply allow me to drone on and on about myself rat her than listening carefully to Stephanies story (Reinharz & Chase, 2002, p. 228)? I need to be cautious, especially as this is my fir st meeting with her. But our relationship is reciprocal, I reason, so shouldnt I share my in-the-moment thoughts? Yes, that area is dialysis, she responds, interru pting my ruminating. My dad was a dialysis patient a long time ago, in the late 1960s, I blurt out. Wow, before transplants. Well, thats right, for the most part. He passed away in 1970. My mom learned how to dialyze him at home, dialysis centers were j ust forming at this time, and we bought a kidney machine and dialyzed him at home. Can you believe that? Was it peritoneal? she asks. Not exactly. He didnt know what was wrong with h im at first. He wasnt feeling well and although he had been thin all of h is life, he had noticed that he had begun to put on a little weight. I was home from c ollege that summer, my first year, and my dad had just opened a wholesale poultry business a couple of months earlier. On the day he finally decided to see a doctor to inquire a bout his symptoms, he asked me to go down to his business to take in the cash. I had ne ver worked before this, except for babysitting a few times. I didnt know anything ab out business. My dad dragged himself, actually drove himself, first to see his p hysician and then to the hospital, and he never came out of the hospital. His blood count wa s so low that the doctors didnt know how he made it to the hospital without getting in a n accident. They thought he should have passed out. So they ran tests and found that he was in kidney failure. They did use peritoneal on him at first, but he wouldnt have su rvived for very long on that.
62 Because some peopleI imagine theyve probably imp roved the technology over the years, she suggests. I know at that time, as I understood things, you c ouldnt live very long on peritoneal, I explain. Where did you grow up? she asks. I tell her more about my background, and we contin ue or conversation on kidney disease. I describe how the dialysis process worke d when my mom dialyzed my dad at home and talk more about my memories of managing my fathers business. So, anyway, I sigh, that is what happened to me when I walked onto the floor of the dialysis unit today. It brought back a lot of memories for you, she c onfirms. Yes, even though I didnt spend time at the hospi tal when my dad was sick. It certainly changed your life, she declares. I am surprised at her level of reflexivity on this topic. And she certainly seems interested in knowing about me. Yep, I state, matter-of-factly. I was nineteen a baby. And I didnt know anything. I was clueless about my dads illness an d how to manage a business. But I did it for three years, and then my dad passed away. Were you the only child? she inquires. I tell her about my older sister and younger broth er. Were your parents immigrants? she asks. No, but I found out much later that this is somet hing that first-generation immigrants do [own wholesale businesses]. My fathe r was born in Greece, but brought
63 to America when he was eight-months old. He had be en in the grocery business most of his adult life, owning a grocery store before he st arted the wholesale poultry business, I explain. It sounds like he was an immigrant, or a first-ge neration or somebody who came over [from Europe], because your family bonds were so tight. It sounds like you really did something to help your family out, and you felt like thats what you had to do, she comments. I didnt see an option, I explain. I couldnt imagine doing anything else at the time. Even now, years later, when I think about th at very painful and difficult time of my life, I am so happy that I did not walk away from m y family, I confide. I would not have had it any other way, even though roles revers ed and I lost all of my friends during that time. I had to grow up too quickly. Yeah, yeah, it sounds like you have a strong fami ly, which, I dont know [her voice trails off.] You know, its funny, because I never thought of my family as being particularly strong, so when I come across people w ho are so tight, so close, as I do in my work here, I recognize that its different for my o wn family. My family was pretty laid back about things, and they didnt bring the childr en into a lot. Like if there were troubles, we were protected from it, she explains. Me, too. Growing up I led a pretty sheltered lif e. In fact when my dad first became sick, my mom didnt tell us about it, so I r eally didnt know for a while how severely sick he was. She just told us that he was going to be in the hospital for a few days. And I dont recall anyone asking me to stay at my dads business. My dad asked me to go in one day to take in the cash, and thats what I did, day after day, I just took in
64 the cash. Things evolved from that, and I never st opped going. My mom was in a crisis situation, but I didnt realize it at first. My boyfriends parents are German. For the longe st time I thought he was an immigrant, until I discovered that he was born in N ew York. But they spoke German at home, and his parents had been immigrants, and it s ounds like they had that kind of family, where you would automatically help out, no questions asked, she explains. We talk more about my background, before reviewing the IRB consent form. After we finish with it, I explain that I came here today to chat with her a little bit and that we could talk about whatever she wanted to tal k about. Doesnt necessarily have to do with menopause, rig ht? she asks. No, because your whole life experience affects wha t you are today and how you make sense of your life in menopause. I explain. Well, I grew up in Tampa, actually born in Orlando but within a month of my birth my parents moved to Tampa. They went to the university there, and we lived in the married dormitories until I was around 3-years old. Around that time we moved into my grandmothers home where my father had grown up. S o, we lived there for a while. I went to grammar school, the same one my father went to, and then we moved to south Tampa and I went to private school from then on. Sounds nice! I exclaim, marveling at how differen t my own parents background had been. Her parents were college-educ ated mine were not. Mmm, it was convenient, she confirms. I have an older brother and younger sister and they too went to private school for a wh ile, until they got into high school and then they transferred to the public schools because they didnt like private school. I went
65 to a public college, and got a degree in economics. I have never been married. But Ive always lived with guys and in the interim have had various boyfriends. Youve never been married? I inquire. Thats in teresting. No, and no children, she confirms. Ive never been married, either, I acknowledge. I think were relics. There you go, she agrees. What would you call i ta response or result of the womens movement? Do you think so? I ask. Oh, yeah. I always felt that I would have to be a ble to afford a nanny and that my kids would have to go to private school. And if I couldnt do that then I just didnt want to have children, she confides. Did you feel like you couldnt afford to have chil dren? I ask, thinking about my own situation. Oh, yeah. Absolutely. Isnt that interesting! I exclaim. I have always felt that I couldnt afford to bring a child into the world because I was too poor And then you look around and see other people having children and living paycheck to paycheck, and they seem to have managed. So, did you ever wonder about that contra diction? That you thoughtthats interesting that you thought the same thing I didI thought how could I bring a child into this world when Im not financially set? Thats right! Thats exactly how I felt, she exc laims. And I might not have a husband, and I wanted to do it [have children]. The RIGHT WAY, she interjects.
66 And what is that right way? I ask. Well, for me it would definitely be having a partn er to share the responsibilities, and Ive never thought of any other kind of relatio nship besides being in a married relationship. I dont necessarily have to be marri ed to have children, but I never thought I would be in an unmarried relationship with children Thats not me, she explains. I tell her my story about Buzz, a close friend from high school who agreed to be my sperm donor when I was ready to have children if I was not married at that time. Oh, I had plenty of sperm donors, she confides. I wasnt concerned about that. I was concerned about having that perfect situation which of course never really arises. I figured that if I had things financially or materia lly, I could provide the rest. Ive had three or four abortions, so its not like I couldn t have kids, or I didnt have somebody. I just did not feel that it was right for me to have children at that time, because the relationship was probably in turmoil. I knew it wa snt going to last, or something like that. Sounds like your focus was really having the perfe ct nuclear familya family unit with a partner, a male partner, before you had a child, I conclude. Right, yes, she confirms. Our conversation turns to menopause. I had some mild heat flashing, Stephanie explains But that isnt why I decided to go onto HRT. I developed a deep burning that fe lt like I had a thousand bugs burrowing into my vulva. It wasnt vaginal or ins ide. It was like when you get sweaty. I would be at work and would have to run to the bat hroom. Standing in the small stall, I
67 would rub and scratch the area until it was ragged and raw. I thought I would lose my mind. I could hardly make it through the day. Ugh! That sounds awful, I exclaim. Stephanie grins, and small wrinkles form in the cor ners of her twinkling blue eyes. Scooting her chair closer to the table, she leans forward and clasps her hands together. Lowering her voice to a confidential lev el, she continues her story. I was in graduate school. I mentioned it to someone. I said God, this is insane. I have this itching. And they said, yeah, me too. And they were about my age. We were all in our mid-forties and we were all laughing, saying we had had this experience. But nobody else seemed to really find it life changing but jus t an annoyance. So I went on like that for a few years, and it kept getting worse and wors e. I went from top gynecologist to top gynecologist, but the doctors didnt want to give m e anything because I still had my period. No one seemed to recognize this problem as being related to menopause. I went to a dermatologist who suggested I shave it to see if that helped. I let out a small gasp, thinking how uncomfortable that would be. And I guess I was too stupid to think about going on birth control pills, especially because I knew that birth control pills would prevent me from losing weight. I felt like I had gotten fat on them in the past, so I wouldnt take the birth control pills. I didnt recognize the possibly that they might have helped my vulva itching. But nobody really sits down and has a great discussion with yo u about this stuff. Youre on your own. She opens her hands wide for emphasis. Her shoulder-length thick, blond hair bounces in unison with her animated body movements. Finally, I went to a nurse
68 practitioner and she was appalled and said I would have to see the doctor. And I knew it was cancer! I moan, Oh, God. How frightening that must have been. Because just out of college, when I was 21, I got a job at a hospital. I used to pull specimens out of the refrigerator. This was a round 30 years ago. I pulled this bag out of the refrigerator and it was a shaved vulva! Yikes, I exclaim. Ill never forget that. Ill never forget the ma le doctors cutting up this specimen trying to make light of it. The doctors couldnt h elp but mention that this woman had six kids and wasnt ready to dieshe was young. And yo u know that picture stayed with me all of my life. Thinking that this could actually happen to someonethey could have their vulva removed. She halts. I dont know. [her voice trails off for a moment]. So the doctor goes, Oh, I think we need a biopsy , Stephanie continues. And Im like, here we go! And of course its very uncom fortable. You can imagine. They take a little chunk of skin. And they give you som ething numbing, but still, its like oh, my gosh! But it came back as just dry skin. It w as called vulvar distonia or something like that. Im 50 now, and have been having hot fl ashes for a few years. My periods stopped about two years ago. Right now Im taking Ortho-Prefest, which is like a low dose hormone. My gynecologist recommended I take i t because of my vulva itching. But going through menopause with these symptoms was a big surprise to me. Honestly! My mother said that she never went through it, she just stopped having her periods and she just never noticed it.
69 Stephanies head bobs from side-to-side as she talk s. Strands of blond hair slip forward, hiding her face for a moment. So I never had a mother who set an example, she c ontinues. I dont think that I ever really thought a whole lot about it, you kno w, going through menopause. I never thought that I would have problems. She pushes a wayward hair behind her ear while lett ing out a long sigh, and leans back in her chair. She stares off into space, refl ectively for a moment. I am surprised to hear that she didnt realize she was going through menopause, especially as she is educated. She has masters de gree. I imagine that educated people, especially people working in the health care field, would know just what to do. They would know the facts, but things dont work that way with some medical conditions, and menopause is one of those. How long do you plan to take HRT? I ask, wonderi ng if the recent findings of the Womens Health Initiative have scared her. I went off the Ortho-Prefest for a while, because of the scare about hormones causing breast cancer, but then my symptoms returne d. So I went back on them at the same dosage. I envision taking HRT as long as they keep my symptoms at bay, and I dont know how long that is going to be. What have you learned about menopause and HRT late ly? I ask. I have learned that hormones keep you kind of fat, and I have totally lost my, eh, not ambition, but my desire to exercise. I got int o this thing with a personal trainer, but then all of a sudden I did not want to do it anymor e. It kind of coincided with menopause. I dont know why, but I have learned th at HRT could be dangerous, if you
70 have a propensity towards breast cancer, but that h asnt stopped me. My vulva itching was way too intense to stay off HRT! Its made a b ig difference taking HRT. I plan to stay on it as long as I can. She adjusts her glasses, scoots to the edge of her chair and crosses her legs. Looking straight into my eyes with a wide grin on h er face, the room goes silent for a moment. * * * * Stephanie and I hold our second and final intervie w at my apartment in New Tampa. Her interview is my last for my research pr oject. We tried to get together several times, but each week our appointment was mo ved. She has just recovered from a nasty cold, and had been taking antibiotics for it. She came over for brunch on a Saturday morning in mid-November. I served a three -cheese quiche, fresh strawberries, sliced cantaloupe, steamed asparagus, sliced tomato es, orange slices, whole wheat bread with hummus, orange juice, and freshly ground coffe e, brewed the way Stephanie likes it, very, very strong and served with loads of cream. Is this your mother? she asks admiring the family pictures that are sitting on the mantle in the living room. Oh, she looks so young ! Yeah, I respond. Thats my mom. She is sittin g next to my uncle Fiore, her brother. These are my Italian relatives. This pic ture was taken at my nephews wedding. I point to the man standing next to my m om. Thats my brother Jimmy, my sister Georgia, and there is my niece Stephanie wit h her fianc Jon. There is my nephew Jim with his wife, Tammy. Oh, and there is my cous in Mike. He helped me drive my car to Florida from Illinois this summer.
71 I point to a picture of me dressed in a black and w hite costume, black top hat, white gloves, and holding a long cigarette holder. There is a white carnation on my lapel. I look like an old-fashioned hatcheck girl. I was a penguin for Halloween one year, I explain. You cant see my feet, but I had huge or ange feet and a big belly. A friend of mine made the hat, cigarette holder, and a wonderfu l black mask with a huge orange beak. We load our plates with food and settle in at a sma ll table in the living room. I double-check the tape recorder to ensure that it is working properly. So, what are we going to talk about today? she as ks. I want to catch up, ask if you have changed anythi ng since we talked last, go through your pictures, and I have a few questions t o ask as a wrap up. I explain. Because of the scare on the estrogen and everythin g, I switched. My doctor asked if I would like to switch over to something e lse because of all of the dangers that are associated with estrogen. He said that I could try progesterone, plain old progesterone for a while. Was it a pill? I ask. Yeah. How did it feel? I ask. Oh, I didnt think that it did anything, so I went back to Prefest. I was on OrthoPrefest when we spoke last, but the manufacturer ch anged and the pill is now just Prefest. I guess Ortho is finished with HRT now. And that is an estrogen/progesterone combination, right?
72 Yes. I was getting some hot flashes. So I caught my doctor in the hallway [at her job] and I said, I think I want to go back on the Prefest. He said, Thats fine. You have to do what makes you feel good. He said, If I were a woman and I had symptoms, I would probably take estrogen too. I mean, I gue ss he couldnt come right out and say that its fine to take estrogen, but he said he wou ld probably be doing that [taking HRT]. Did you have any particular symptoms that caused y ou to return to HRT? I ask. Yeah, um, I had hot flashes again, and my vulva it ching came back. It was not pleasant. She complains that the small chairs were sitting i n are not comfortable, so she moves to the chaise lounge, the only real piece of furniture I have in my living room. I sit next to her in a collapsible, patio chair. So, she continues. The only disappointment I ha ve is the fact that I feel like I am overweight. Of course, I am overweight accordin g to the standard, but I dont notice it too much, except when I try to do certain positi ons in yoga, like putting my head to my knees. My partner wants me to lose weight. I want to lose weight, but I dont want to put any effort into it. Thats the bottom line. I dont want the hassle. My partner has gone back to working out with weights. So he will probably lose plenty of weight and look great. Men lose weight quickly, I suggest. Isnt that just the rudest thing? she complains. I think its because they dont have much estrogen in their bodies. I read somewhere that its difficult to lose weight once a woman hits menopause. It takes a
73 great effort. Did your vulva itching go away when you went to back to taking your Prefest? I ask. Yeah. How long do you think you will stay on the Prefest ? I ask. I dont know. I also dont want to get wrinkly lo oking, so Im going to get some StriVectin. Its the newest thing out for your com plexion and getting rid of wrinkles. Have you heard of it? she asks. No, but you dont have any wrinkles, Stephanie. Y ou have beautiful skin. We look at the pictures she took of herself in meno pause and one of them is a picture of several bottles of pills. There is her HRT bottle, and next to it is a bottle of Lipitor. I take Lipitor for cholesterol, because once you h it menopause your cholesterol goes up. Mine was almost 300, but it used to be 18 0, she says. I wonder if it does have something to do with our loss of estrogen, I ask. I think it is related to menopause, because it hap pens to most women, their cholesterol goes up, she concludes. A friend of mine is a transplant cardiologist, a real believer in medicine and she told me I had to go on the Lipitor. Doctors cant deal with anything else [besides pills]. She kept telling me that I needed to go on it. I didnt want to because you hear about all of these side effects but my primary care physician also said I should go on it. He told me his 85-year old father was on it, so I finally went on it and my cholesterol dropped to 200. So, why did you take this picture of your medicine ? I ask.
74 Its just an indication that Im getting older. I went from never taking anything to talking a lot of stuff. You are healthy, though. Yes, and I could probably do without them, except for my Lipitor. I think if I exercised I wouldnt need Lipitor. I think I need that because of a lack of exercise and because of the hormonal changes. We look at the remainder of her pictures. Most of them are pictures of people that she works with. During the focus groups you had a chance to talk a bout menopause with other members and I wondered how you felt being a part of the focus groups. How did you feel about them? I felt like we had very similar experiences. Im very open, so I dont have a problem with that kind of stuff, but I thought the Muslim lady was a little off-beat. But it takes all kinds of people for the world to go aroun d. I liked talking with the ladies. And Ruby, the older woman was in such good shape. What did you think about having me as a participan t in the focus groups. Well, it felt like you had issues you wanted to wo rk on. Like you were being affected by all of this too, just like we were and you had questions, and it was kind of like, Godthere are other people going through this too? So having me as a group member, participating, was all right with you? Oh, God, yes.
75 Bunnies Story I am speeding south on I-75 today, on my way to me et Bunnie, the youngest of my participants, for her first interview. She has graciously invited me to lunch at her home. She gave me excellent directions to her home and traffic is light this morning, so I arrive a few minutes early and locate her home easi ly. But I roll slowly past it, in order to admire the neatly manicured lawns, stately palm trees, and beautiful homes in her neighborhood. I have lived in Florida for 5 years now, but I still enjoy looking at Floridian-style architecture and landscaping, rathe r than the Illinois styles I am familiar with. I am particularly fond of miniature palm tre es that remind me of oversized pineapple tops. I think they are cute. The street is silent, except for a few short bursts of laughter coming from two blond-haired children enga ged in a game of tag on the lawn of a lushly landscaped front yard. This silence is a far cry from the bustle of people and heavy traffic of my Temple Terrace neighborhood. At 10:30 on the dot I pull into her empty driveway, and jump out of my car with smile on my face and my book bag slung over my righ t arm. I walk briskly to her front door, past a mound of dirt on the front lawn and pr ess my finger firmly on the doorbell. At that moment, I realize that, as a good ethnograp her, I ought to be recording the very start of our conversation. I plunge my hand into t he book bag, frantically feeling my way past cellophane-covered tapes and a spiral notebook searching for the tape recorder I purchased specifically for my interviews. I am rel ieved when she does not answer, so I
76 run back to the car to set up the tape recorder jus t as a Maroon SUV whips past my car and screeches to a stop near the side garage doors. A petite and trim young woman, with shiny, auburn chin-length hair bounds out of the ca r smiling and waves energetically to me. She is dressed in a white outfit traditionally worn by people who are involved in the martial arts. She is the picture of health, with a lert brown eyes, and a dewy complexion that is the hallmark of a young person. Hello, Linda, she says, pronouncing the i in my name like a hard e. I hope you have not been waiting too long. I am so sorry to be late. My Tai-Kwon-Do lesson went a little longer than usual, she explains, smi ling at me, her accent slowing down my comprehension of her words. Please come in, and w elcome to my home. Bunnie steps aside to let me inside the front door. The interior of her house is arranged in a traditio nal two-story colonial style similar to the homes Im familiar with in my hometo wn in Illinois, with a living room to the right of the foyer, and the dining room to the left and stairs off the foyer leading to the second floor. She leads me through the dining room to the kitchen. The kitchen has a row of windows stretching across one side of the ro om, letting in bright, Floridian sunlight. Beyond the kitchen window is undeveloped land as far as my eye can see. While she explains to me that the house sits on two acres of land, I notice that the backdoor is ajar. I can feel a cool breeze moving through the kitchen, but I dont complain. I know that the breeze will come in hand y in the near future, when surges of heat begin to course through my body. Its so sweet of you to invite me to your home, B unnie, I state. Its beautiful and your yard is so large.
77 The house is 22-years old. We moved in around 2 y ears ago. We had to remodel the kitchen, bathroom, and the pool area, b ut were still working on the landscaping, she explains in her thick accent. B ut first we had to get our beeseness going. Bees-nest? I ponder her meaning. Excuse me, Bunnie? What di d you say? Oh, my goodness, she exclaims. My accent gets i n my way. She laughs. My husband and I have a bees-i-ness. She enuncia tes each syllable slowly. Business! Oh, what business are you in? I inqui re. Im an architect and my husband is a builder, sh e explains. We have a construction company. Were in the process of buil ding a neighborhood. Wow! I exclaim. Isnt that neat. Yeah, all of the houses are traditional, American architecture. So they will have porches and columns, and shutters, she explains. Would you like Jasmine or Persian tea? She hastily begins filling the large teapot with cold water from the kitchen tap. I dont think Ive had either type, I confess. Then lets try Persian. She nods her head. Your backyard is beautiful, I exclaim, still adm iring the view out her kitchen window. It goes all the way back to a big pond. But we h avent cleared all the way there yet. We tried to clear the area, but the brush gre w back. I would like to have an orchard back there someday, she confides. With a little picket fence and an arbor with plants growing. And then I would like to place that littl e shed over there, and put it right in the
78 middle of the property with flowers all around it. She points to an imaginary center of the outside yard. And then have mango, orange, gu ava and all kinds of trees. Oh, that would be lovely. If I let them, the children will go all the way b ack, especially my younger one. He will just go and go, she laughs. The older on e knows better than to take off, but the younger one is very curious, so Im afraid that he might cut himself with a branch. But its nice to have a place where the children can explore. A sweet scent wafts through the air. Mmmm, I marvel, what is that wonderful smell? Its Cardimon. It gives a really nice touch to t he tea. Where would you like to sit, Linda? Would you feel more comfortable here o r in the living room by the bay window? Lets sit here in the kitchen, by the door, I st ate, thinking strategically again about the cool breeze. I begin pulling items out o f my book bag: tape recorder, two copies of the informed consent forms, extra tapes, and note pad, arranging them neatly on the kitchen table. You home is so private, Bunnie I love it! Yeah, I like it here a lot. Sometimes I forget w here I am and think I am on vacation. Im cooking and cleaning and doing my ow n thing. I feel like I am someplace else, in a country house. What is the name of the class that you are taking ? I ask. Tai-Kwon-Do. Its a Korean martial art. Its th e best thing I have ever done. I have adapted very well to learning this sport. It challenges my body and mind, and it is translating into my daily life as well, she explai ns.
79 How is that? I ask. I have a very tough schedule keeping up with two boys. They are very active. I pride myself in making sure that they eat fresh foo d everyday, cooked from scratch. They are very well kept, and I dedicate myself to t hem that the house is clean and organized, that there is order in their lives and f un, and that we are close. And I participate in their things. I started taking TaiKwon-Do because they started taking it. What a nice way to be involved in your childrens lives! I exclaim. And they cannot tell me that they cannot do it, t hats its too difficult, she chuckles softly. Because you can do it. I finish her thought. Exactly! And I think that if I would not have st arted with the progesterone cream, I wouldnt have the energy to do it all. I had a great lack of energy. I was really tired and I felt sad for no reason. And of course all the other symptoms that we know are related to the hormonal imbalance that comes with p remenopause, she explains. Like what? I inquire. Because Im in my thirties. I was always wonderi ng when that would start [menopause] because I had my first period one month exactly one month, before I turned 10 years old. That was many years ago. So I knew that sometime early in my life I would have the symptoms of menopause. But I never thought they would happen this early. I didnt know there was such a thing as pre menopause. Her auburn hair bounces when she shakes her head in amazement. I too had my first period at the age of ten. I smile at this recollection. My mother gave me a pamphlet called, Now you are Ten. And wh en I finally did have my first
80 period, my mom celebrated with me by taking me out for an ice cream cone. I felt special, but at the same time confused, because I h ad blood pouring out of me, and my mom announced that now I was a woman! Wow, I was f ar from that! I was a baby, a tomboy, who was also a fast runner able to outrun m ost of the 8th grade boys on the playground, still sporting long, blond pigtails. A nd I didnt really realize that I was going through menopause when I turned 50. I went t o the health center thinking I had symptoms of the flu. But now that I know some of t he symptoms of perimenopause, I recognize that I had had sporadic symptoms of perim enopause in my late 30s and 40s. I am surprised to realize that Bunnie is so aware of her body. I, on the other hand, am dense. She definitely has a deeper level of awaren ess of her body than I did at her young age. So it was interesting when I went to see the doct or, she continues. He looked at my body and said, Youre keeping weight in the middle section of your body because your estrogen is too big. I was high on estrogen dominant. I was estrogen dominant. Of course, I am Spanish and have wide hips, but it was more than that. So, that is how it started. We did the saliva test and it showed that I was really out-of-balance, she smiles. You had more estrogen? I ask. I had too much estrogen and very little progester one. So I started using the progesterone cream. And it made a big difference. It took about a month for me to feel better, she explains. Oh, there is someone in the garden, I interrupt, startled to see a man walking through her backyard.
81 Yeah, thats our gardener. Dont worry, Linda. Anyway, it took about a month, but I really started to see changes. The first one was that I didnt feel so tired anymore and I didnt feel so anxious. And I had also been having trouble with my bladder, so I went to the doctor to find a solution to that probl em at the same time that I started on the progesterone cream. He suggested that I have surge ry because the uterus is pressing against the bladder. But my situation isnt so bad yet. Im too young to have surgery and I dont want to have my uterus removed just because of that, she confides. I went to a urologist to have further testing done, and we conc luded that it wasnt necessary for me to do that yet, because with Kegel exercises, I can keep the symptoms under control. Oh, thats good! I exclaim. And then when I started with the cream, I noticed a big difference. I rarely have a problem now, she smiles and lets out a sigh of r elief. I think I met the doctor you are talking about at one of the seminars at the Marriott in Tampa. Well, you heard in his seminar that this discover y of the progesterone cream actually turned his practice all the way around bec ause he was not doing this kind of therapy before, she explains. He was working in traditional medicine before. T hats what he told me. I think back to the doctors presentation at the seminar I had attended. Now he is more understanding that there are other ways to actually improve health without being so radical with traditional me dicine. He also has a great knowledge of vitamins and minerals. He has recommended the v itamins to take and all of that, but I have a hard time taking stuff because they make my stomach very sick. So through my
82 diet, I would rather come to a more healthy way of being, although I know that they can benefit me a lot, the fatty acids and a complete mu lti-vitamin for women, and also the calcium, she explains. I too have a difficult time taking daily vitamins but for a different reason. I explain. My thyroid closed down about a year or s o ago, since Ive been in my Ph.D. program, so now I have to take Synthroid daily. Th e endocrinologist I saw diagnosed me with nonspecific thyroiditis. I have to take the m edicine early morning and wait for one hour before I can eat anything. But by the time th e hour is up, I have to leave for school, so Ill bring yogurt or something else that is port able to eat while Im at school, and as a result, I usually forget to take a daily vitamin pi ll. The room goes silent. I reflect for a moment on the struggles I have had with a weight pr oblem since Ive been in my doctoral program and since I was diagnosed with a thyroid pr oblem. Linda, did you say you dont even eat? she asks, surprised at my announcement. No, I cant eat until the hour is up. I explain sighing in resignation over my dilemma with eating and weight management. Can you wake earlier and take it, then go back to sleep? she offers. Well, I usually get up at 6:00 a.m., but now Im trying to get up at 5:00 a.m. to take the medicine. But I usually dont make it up that early. Since Ive been on Synthroid, Ive had a problem losing weight. I can t keep the weight off. Its so uncomfortable to be heavyold clothes dont fit me anymore. Ive been healthy all of my life, but now Im obese and its not good going into old age carrying so much extra weight, I complain. Are you using the cream? she asks, giving me an encouraging smile.
83 Im not using anything, especially now that the W omens Health Initiative findings came out. Im afraid to use anything, I explain. Well, the first thing you need to do is take the saliva test. And one of the benefits when I started taking the Progesterone cre am is that I lost 10 pounds, she confides. Because when estrogen is very dominant i n your body, your body tends to balance things off by keeping fat in the mid-area o f your body. Wow, I am carrying weight in my stomach. I have a belly and I never had one before! I exclaim, wondering if maybe there is a c onnection here. But my situation might be different. My weight pro blem might be the result of eating too much ice cream and M&Ms while studying late at night. Well, it must be because of that [estrogen domina nce], she states, matter-offactly. I would strongly suggest, because of pers onal experience, that you go ahead and have a saliva test, because that way you know exact ly how much you need from the cream and then start the cream. You will be amazed .4 Did the doctor give you a specific dosage to take ? I inquire. Ive been to the health food store and have seen the bottles of prog esterone cream, but I dont know how 4 Later in the day, after I have left Bunnies home I remember that I took a saliva test a long time ago, when I first started struggling with severe hot fla shes. I had read a book by Dr. Lee, a proponent of natural methods of HRT, who suggested that progesterone cre am was the panacea to help alleviate the symptoms of menopause. His book suggested that taking a sal iva test was the first step to a proper diagnosis. The home saliva test was expensive, costing about $200 in total, but it was bundled in with several other tests. I remember I had to chew a piece of gum to work up en ough saliva, then spit into a tube and mail the specimen to an out-of-state lab. I received a prin tout of the results a few weeks later, along with t he name of a physician in the Brandon area who practiced natural methods of m edicine. My results showed that I had very little progesterone and estrogen in my bod y. I didnt act on the results, because I didnt know if the test was accurate, nor did I understand what th e test results meant in terms of my overall health and menopause. I also did not phone the physician for an appointment, because my student health insurance policy didnt cover these types of services. I pai d for the test on my own, using student loan money, and afterward I regretted spending so much money on som ething that had no apparent benefit to me. This is probably why I forgot about taking the saliva test.
84 much progesterone is in the cream. So I wonder if your doctor gave you a prescription for a specific dosage, or sent you to a pharmacist a compounder who could mix a specific dosage for your unique needs. I used to take 100-milligram tablets of Prometrium, which is considered natural progesterone in soft pill form, while I was using t he Climara patch to deliver estrogen into my body. Now I wonder why I needed such a hig h dosage of progesterone. I recall that Dr. Lee told me that doctors practicing tradit ional medicine gave their patients too much progesterone. Did I need a larger dosage beca use the pill was metabolized through my liver? I wonder about this and the ongo ing debate over natural vs. synthetic HRT. Prometrium is considered natural , but how does it compare to the cream? Based on the imbalance that you have with your ho rmones, [the doctor] will determine how much you need of the cream, she cont inues. In my case, I use one full pump in the morning and one full pump at night. Bu t since I now feel balanced, I am using only one full pump of progesterone cream at n ight. Do you purchase your progesterone at a health foo d store? I inquire. Yes, you dont need a prescription. Pro-Life has a nice version that is standardized. Thats the key to taking this cream. Many of the other creams on the market are not standardized in their dosage, she e xplains. Im taking 40 milligrams a week, but I used to take 40 milligrams every day. Linda, taking this cream will benefit you in so many ways. Your hair, your skin, your mo od, your energy, and it will also regulate your period and the amount of water that y oure keeping. I am retaining water, I confide.
85 I also used to wake up soaked, but I dont anymor e, she nods at me, knowingly. Now Im through menopause, because my period has stopped, I state. Then you will need a different dosage. But I still get terrible hot flashes. Sometimes they are so uncomfortable that I have a hard time teaching, because Im so hot. I c ant stand it, I explain. Youre burning from inside, she interjects. Yeah, its like I want to get out of my skin. I want to leave my own skin. I was working out regularly for a while. I mean really w orking out and losing some of my weight, but I still got hot flashes regularly. The exercise didnt seem to help me. So I dont know if the hot flashes are caused by nerves or stress, I state. You need to start that cream, she states, in an encouragingly voice. I really felt stressed too, but the cream helped me stay more cal m because it controls the mood swings. And if you dont get the hot flashes, you dont feel so irritated, she explains. It would be so nice to be through menopause, I think to myself. I wonder if I should try this cream. Wouldnt it be nice if some thing as simple as a topical cream that appears to be less harmful would alleviate my uncom fortable symptoms of menopause? And I wonder if taking the cream would help me head off some health problems in the future. I just dont know what is the right thing to do here. I ponder my situation. How do you apply it? I inquire, curious about wh ether this treatment could actually help alleviate my severe hot flashes. You apply it to the tender skin on your body, so one time you use your arm, and then another time you can do it on your breast. I dont do it on my chest because mine will hurt me. So I go to the other arm and then to the inside of my thigh, and then to the
86 other thigh. There are receptors in the skin, she explains, confidently. So when you apply the cream, its like a keyhole and a key. It goes right in. The cream works like a key. So you have to wait for the receptors to be f ree again in order to apply the cream there again. Thats why you have to switch the pla ces in your body every time you apply it. Its a very good thing to do, she concludes, smiling at me in earnest. She is so sweet, and wanting very much to help me o ut with this dilemma. How can she trust non-traditional medical remedies so e asily? I wonder about my distrust for non-medical and medical remedies. What a conundrum I have placed myself in here. I dont know what to do to stay well and healthy in t he future. My hot flashes are not small flashes. I state. You wonder who came up with the term flash as a label for the heat we feel. I chuckle. Probably a male! We laugh. I actually timed my flashes in the past, a nd one flash, well, maybe there were a bunch of them coming at the same time, but one of m ine seemed to last 3 hours! I guess they were probably not all one flash, but I experie nced them as one long and continuous, uncomfortable surge of hot, hot heat. I keep the a ir in my apartment at 68 degrees, otherwise Im not comfortable. I can feel the diff erence if I set the air to 70 degrees. Thats too hot for my comfort level. I cant be ar ound too much heat these days. Oh, my God, I can barely stand my hot flashes. They almos t drive me crazy. I know, she says comforting me, they are awful. Its like having internal combustion in your body. You feel like you are burning up and cant get re lief. I concur. Do start the cream, she implores. And read Dr. Lees books. They will give you the whole scientific explanation.
87 Oh, that breeze feels so good! I interrupt. As if on cue, heat has surged through my body. I love it, too, she confesses. You, too? I inquire, surprised. Im a tropical girl, too, you know, she laughs. I highly recommend the cream, she continues. I thought there was someth ing really wrong in my life and I wasnt sure if it was emotional or physical, or a c ombination of both. I didnt know why I would start crying and crying. I went to see a n eurologist. It was awful. It was a really dark time for me because I thought I had something wrong. My hands would shake. And I was wondering if it had something to do with my b lood sugar, because I have hypoglycemia. That is why I am so conscientious ab out my eating habits all day long. I have to keep my blood sugar up all of the time, eve n though the clinical tests doesnt show it, I have all of the symptoms. I go crazy if I dont eat at certain times, she explains. What happens? I ask. I would grab the food out of my kids hands. I r eally get into an emergency mode. My body starts to shake inside and I get des perate. I need to eat, literally. I dont go for sugar or simple carbohydrates, but go for a combination of complex carbohydrates and protein with a little bit of fat, she states. The teapot whistle tells us its time for tea. Bu nnie pulls down two cups and saucers from the cabinet and sets them down on the kitchen table. She lays out silverware and fills a plate with small pastries.
88 So, for example, like maybe you will eat a piece of cheese on whole wheat bread? I ask. Yes, exactly, and maybe a little piece of fruit, or Ill have a half of sandwich and then a little fruit or some juice or tea. But I ha ve to eat 6 meals a day, and pace myself throughout the day. In my car, I carry notes and d ry fruits, she explains. You carry notes? I ask. Oh, there is my accent again, getting in the way! I carry n-u-t-s and dry fruits, or crackers and peanut butter and cheese, she explain s. She pours me a steaming cup of tea. Mmmm, I love your tea, I interrupt, taking a sip of the deliciously brewed Persian tea she has placed in front of me. Thank you, Linda. Add a little brown sugar to br ing out the flavor, she offers. No, thanks, I explain, not interested in talking about my weight problem once again. Anyway, she continues, I was so distraught. I couldnt lose any weight, no matter what I tried. I was running every day. I w as watching my diet. And because my sons were allergic to milk and eggs, especially the older one, our diet here was so much healthier. We dont even drink sados at home. What? I ask. Pepsi, Mountain Dew. Oh, sodas. Okay! I thought you said sawdust! I laugh. That is my eternal, unavoidable accent, she laug hs. But I was feeling awful, I would cry for no reason. And I wasnt sleeping wel l. I was getting hot flashes and
89 waking up soaked, getting vaginal dryness and my pe riod was hurting me. All kinds of things. My nails were brittle, and Ive always had strong nails. My hair was falling out. So then I started with the cream and it was like ma gic! My life got together, I lost weight, I felt happier and energized. Now I go, go go all day, and its 9 or 10 oclock at night and Im still going. I couldnt do that befo re I used the cream. By 7 or 8 oclock I wanted to hit the bed with the kids. Excuse me, Linda, Ill be right back. Bunnie ru ns out of the kitchen. I hear her footsteps pounding up the hall stairs. She returns a few minutes later with a bottle of the progesterone cream, packaged in a cool-looking whit e bottle. She reads the instructions to me. It says here that for menstruating women, apply o nce a day at bedtime on days 12 through 27 of your cycle, or as recommended by y our physician. But for menopausal or post menopausal women, like you, Linda, apply on ce a day at bedtime for 25 consecutive days, followed by a 5-day break or as r ecommended by your physician. So, lets say you start the first day of the month, you count 25 days and then you stop for 5 days. Then you start all over again, she explains to me. This brand, Life-Flow progesterone cream, comes from wild yams. But its standardized, as I mentioned earlier, to 20 milligrams for one full pump. And it has oth er ingredients in it like aloe and its very pleasant to use. She pulls off the cap and pumps a small dollop of the cream into my outstretched hand. Oh, and it doesnt have a scent, I state, sniffi ng the white cream in my hand. Thats nice. I rub the cream onto my inner arm. By the way, what are wild yams?
90 See how pleasant it feels? It has coconut oil an d sunflower seed oil in it, and also shea butter, which is rich in essential fatty acids and vitamins A and E. Shea butter helps to make your skin really soft, she explains. When you take this cream on a regular basis, your body is going to start to stabi lize. Even your adrenal glands get affected, because hormones regulate the whole body. And your thyroid will improve too. It does feel smooth on my skin, I marvel to her. Are the wild yams from the vegetable? I ask her again, only this time I am d istracted by the savory smells of balsamic rice, chick peas, and prunes that have bee n steaming since I walked into her kitchen. Is it time to eat? Im starving! Me too. Im glad you mentioned that, because I w as waiting for your cue, she confides, getting up from the kitchen table. Wer e going to have a traditional Persian dish that I cooked without meat. It normally is ma de with lamb, but I thought you wouldnt want to eat any meat. And Im going to tr eat you as if you were part of my family. Oh, I prefer that! I exclaim. So were going to eat on our regular kitchen plate s. She begins pulling down plates from the cabinet, examining each, looking fo r two that do not have cracks in them. Weve had these plates for 10 years now, and I use them daily. They have held up pretty well, but when we remodel the kitchen I woul d like to get new dishes. While she chops a cucumber, I set the table. Im making a Persian salad. Its very simple, sh e explains. Its made with cucumber, yogurt, salt and pepper, and crushed mint .
91 This dish reminds me of a Greek dish called skorda lia. Its made with a lot of garlic and potatoes mashed together, and its a spr ead you can put onto bread. But when you eat skordalia, you reek of garlic for several d ays! I explain. I dont mind, though, because I love garlic. So do I. We do this dish with garlic too, and we do it with spinach. Oh, thats another good Greek dish. We call it sp inach and rice, I state. I know about that, she says. Your cooking is not too different from the Greeks, I conclude. Here we go, she says, a traditional Persian meal . With a ceremonial swirl, she places a large platter onto the table. The pla tter is filled with cooked rice shaped like a huge loaf of bread. The outside of the loaf has a crusty, crispy-looking golden outer shell. But she tears into the outer shell to revea l a soft and creamy interior to the loaf of rice. She places a huge dollop of the steaming ric e onto a plate, adds cooked prunes to the top, scoops some warm juice over the rice, and adds a garnish of two cooked limes to the side before handing me the plate. Take the tabek, she explains, the crust of the r ice, with your hands, like this, she breaks a thick crust of golden rice off the loa f. We begin to eat and continue our conversation abou t the benefits of progesterone cream and menopausal symptoms. I use the tabek to sop up some of the juice from the steamed limes while we talk.
92 Annas Story Im driving south on I-75 this Saturday afternoon, on my way to meet with Anna for a 2:00 appointment. I met with her once before at a restaurant called Sweet Tomatoes. At that time, she signed the consent for m, but we couldnt conduct our first interview at the restaurant because it was too nois y. So she invited me to her home for our first interview. Earlier this morning I was wo rking with a colleague on a panel submission to our national professional association I left my friends place around noon with plenty of time to get something to eat before my appointment. Im driving at a nice clip and am happy that Im on schedule. My mind wa nders back to the recent flurry of telephone and face-to-face interviews I have had. I recall that one of the women I spoke with was not very verbal, and at the moment I cant seem to remember if that person was Anna. And because my participants need to be verba l enough to share information freely with one another, I am worried that my appointment today might not turn out well. But, I reason with myself, Ill just cross that bridge whe n I come to it. Familiar blasts of heat curse through my body at re gular intervals as I drive down the expressway. I left the house this morning with out eating breakfast, because I was running late for my morning meeting. And now Im v ery, very tired. I wonder if there is a connection between hot flashes and exhaustion. I also wonder if my severe hot flashes are a function of my poor eating habits. I dictate a note into my tape recorder to ask a physician about these connections sometime in the f uture.
93 Suddenly, taillights flash red in front of me. I s lam on my brakes and come to a stop just past the Mango exit. I notice several ca rs slowly backing down the expressway, hugging the right shoulder. They swing around and speed off the Mango exit. I think they are smart to get off the expressway, but since Im not familiar with this area and dont have a map in the car, I decide to stay the c ourse and wait for the traffic to move again. It shouldnt take too long. Ive driven th is expressway many times and Ive never been in heavy traffic for very long. But after for ty-five minutes, I am still standing in the same spot on the expressway. I havent moved an in ch. I dont own a cell phone, so I cant call Anna to let her know I will be late for our meeting. My worry kicks in. Will she still want to meet with me today? Will she be willing to reschedule our appointment? Will she think Im a flake? What if I lose her as a potential participant befor e I have a chance to meet her? Oh, Im so hungry. Why didnt I eat earlier? If I dont eat soon, Im going to start shaking. I wish I had brought a piece of fruit with me. I peer into the fanny pack sitting on the passenger seat, hoping to find a piece of gum or candy to help me through this rough spot. B ut all I see is my wallet, a wad of facial tissues, a couple of red pens, a few pennies and a bunch of lint. Another surge of heat moves through my body at lightening speed. I turn the air conditioner knob to the maximum setting and fiddle with my tape recorder, w aiting for cool air to wash over my skin. I press the playback button on my recorder, and try my best to focus on the running
94 stream of thoughts Ive been dictating into the mic rophone. My voice sounds clear and loud. Everything seems to be working well. Suddenly, my Escort rocks back and forth, and I loo k up just in time to see the taillights of a squad car zoom past me, driving on the right shoulder. A few minutes later my car rocks again when a flatbed tow truck speeds by on the shoulder. So now I know that there has been an accident up ahead. A little while later, traffic begins to snake forward at five miles per hour. After idling forwa rd for a few hundred feet, I see several police officers standing in the far left lane direc ting all of the traffic to merge into one lane. There is something sprawled across the road, lying belly up like a beached whale. I think its an RV, but am not sure. Shards of glass are scattered across all four lanes of traffic, and although only one squad car passed me on the road, there are at least three additional squad cars at the scene along with sever al tow trucks. I dont see any other cars around, nor do I see an ambulance, but neverth eless, I wonder if anyone has been seriously hurt. I swing off the expressway at the next exit and sto p at a Bob Evans, the first restaurant off the highway. I hastily place a call to Anna letting her know why Im running so late. She is very gracious and says tha t its okay for me to drive out later, after Ive had something to eat. I wolf down a sal ad and get back on the road quickly. By the time I roll up the circular driveway to Anna s home, it is 4:00 p.m. I am two hours late for our appointment! Hi, Anna! Im so sorry Im so late, I grin sheep ishly. Thats okay, she smiles. Ive been cleaning. I didnt have anything else to do today, she chuckles. She steps aside to let me in to the foyer of her home.
95 Oh, your home is so beautiful! I exclaim, startle d at the view from the entranceway. My eyes sweep past the formal living room decorated in muted shades of beige and rose, to an expanse of floor-to-ceiling g lass windows on the far side of the living room and to the pool area beyond. The deep azure water shimmers and glints from sunlight streaming in through the windows. The env ironment is so serene, that I feel like I have just stepped into a resort instead of a home I love your pool area! I exclaim. Did you and your husband design your home? We kinda changed the model around. We pushed a wa ll out a little and changed the windows, she explains. You have a wonderful sense of space in here. Its beautiful. I slip off the purple-with-black-trim nylon running jacket that I am wearing. This jacket served as an additional layer of warmth when I exercised outside on icy, winter days when I lived in Illinois. It now serves mainly as a reminder of th e fit person I used to be, before I stopped working out. Where should I put it? I as k her. Its so cold outside. I had all of the windows op en earlier, but all of sudden it got too cold. She takes my jacket and hangs it on the coat rack tucked away in a corner of the entranceway and motions for me to sit down at t he dining room table. The dining room, located to the right of the foyer, holds a few pieces of furniture. The square, wooden dining table covered with a pink cloth and the four matching chairs are the focal point in this room. A tall hutch dec orates one corner, and a small table stands against the far wall. Sitting on top of the small table are several framed pictures of
96 two young adults. I assume these are the two child ren she has mentioned to me in the past, a boy and a girl. Yeah, I didnt expect it to be so cold today eithe r, I agree, dropping my car keys into my fanny pack. I lay my large tape recorder o n top of the dining room table. The cassette tape enclosed in the unit has been capturi ng our words since the moment I entered Annas home. I think it was much warmer t his morning, I observe, pulling a fresh spiral note pad out of my briefcase. I slip a hand inside the briefcase looking for a pen. Did you get some lunch? she asks. I did. I ate at Bob Evans, I explain. I didnt want to eat there because I know their food isnt the healthiest, but it was close t o the highway. I fiddle with a corner of cellophane that is tightly wrapped around a blank t ape. Its difficult to pry open the edges of these cellophane wrappers, so I usually ge t a head start on this process before leaving for my interviews. But I didnt have time to unwrap the blank tapes before leaving home this morning. Good old Bob Evans, she laughs. Grandma and Gra ndpa used to take our daughter there when she was little. She used to ca ll it Bob Heavens. Cute! I interject. I finally catch the corner of the cellophane and begin unwrapping the clear plastic. So, that was our standing joke. We always went to Bob Heavens! She lets out a chuckle. Thats darling, I exclaim, smiling.
97 We sit down at the table, and, after arranging seve ral spare tapes, a spiral notebook, two pens, and my list of questions in fro nt of me I decide to check my tape recorder to ensure that our voices are loud enough to be recorded. My voice vibrates and booms though the speaker loudly and clearly. I mov e the tape recorder closer to Anna to ensure that the microphone will pick up her very so ft voice. Thank you, Anna, for seeing me today, I begin. I want to talk with you today about your life. I want you to tell me whatever yo u would like to tell me about yourself. About myself? she questions, unsure of what Im a sking of her. Yes, tell me whatever you want to tell me about yo urself. If you were telling someone a story about yourself, what would you want them to know? I ask, hoping to encourage her to talk as freely as possible. Gosh, I have not had to talk about myself in a lon g time. Hmmmm, well, I guess if I look at myself, first and foremost I think of myself as a mother, she explains. I guess that is because being a mom has taken up so m uch of my life. Im at the end of that now, because my kids are able to take care of thems elves now. One of my kids is 25 and other is 19. I marvel at how young she looks. She is slim and s mall-boned, probably no taller than 5 foot 4, with light-brown, curly hair framing chiseled features. She is dressed casually in a rust-colored tee shirt and form-fitti ng jeans. She doesnt have a line or a wrinkle on her face; definitely too young to have a 25-year old child, I think to myself. My youngest is ready to go off to college next yea r, she continues, so she will still be a part of my life for a while. My son is off in Miami, and I miss him, but we see him quite a bit, so that is working out. Lets see Im a nurse. That defines me more
98 right now, because I seem to spend more time doing that than anything. In fact I left work last night at 7:00 p.m. My job has gotten bus ier, because Im learning a new job. I was born and raised in Nebraska. I lived there for 21 years. And then I married a military man. We moved around until we came to Flo rida in the mid-eighties. And we have lived down here ever since. Recently, weve d ivorced in August, so my life has really changed totally. You have been through a huge change! I exclaim. Yes. We were married for 30 years. So, its bett er now, but its harder for me. Ive been trying to take care of this house by myse lf but I dont intend to do it for much longer. Im hoping to find a little townhouse up n orth if I can sell this place sometime later this summer, she explains. I tick off the recent stressful changes in her life Lets see, first you were divorced, and now you might uproot yourself by movi ng from the home you have lived in for about 18 years. That would be another huge cha nge in your life. And in addition to this, your children are leaving the roost. All of these changes are extremely stressful, Anna. I think that you are coping well. I think I got through the hardest part when my son left, she confirms. It was very difficult. I missed him so much. Of course, my husband and I were going through difficulties then too, so, ah, I was justprobably menopause was also a part of it. I was very weepy when my son left. I was busy working, b ut the menopause, the emotions and all of that may have been a part of it too. How did you come to realize that you were going th rough menopause? I ask. Tell me about it.
99 I dont think that I had even recognized it until I was at one of my yearly checkups. My doctor said to me, you ought to be on est rogen. I suppose I was in my late forties and my periods had already started to chang e a little bit. They had not stopped, but were just changing. I wasnt ready to be told I was going through menopause. I had not even thought about it. And my attitude toward it had always been that it couldnt be that big a deal. So, I really did not want to star t taking estrogen. I really didnt, and I discussed it with my gynecologist a number of times She kept insisting that it was very important that I take it and it would prevent me fr om getting osteoporosis and heart disease, both of which run in our family. Why didnt you want to start it? I ask for clarif ication. Well, I dont like taking medicine. Im a nurse. So I read everything I could about it and it just sounded unnatural. If were g oing to end [menstruating], well, it seems to be natural to just let it end. I felt tha t there were too many side effects, and I didnt want to deal with that. And I didnt feel l ike I needed it yet. Probably denial is what went through my mind initially. And I wear co ntacts and everything I read said that it might interfere with that and I didnt want to h ave that as a problem too. But I started taking it, and I guess I took it for a couple of ye ars, two years, maybe. And then a study came out. No, my timing must be wrong. I was prob ably over 50 or maybe 51. And as I took it, I finally started to slow down. I never d id stop [menstruating] entirely until I finally stopped taking estrogen. But the whole tim e that I took it I was not happy. And as soon as that study came out, she claps her hand s together hard, that was my ammunition to quit! She smiles and leans back in her chair. Did you quit on your own? I ask.
100 Yes, I called them [the doctors office] and told them I was going to quit. But I had, of course, already quit. She throws her head back and laughs heartily, pleased with her actions. And they told me, fine, if you don t have any problems going off it coldturkey thats fine. But if it bothers you take it every other day, then every other week, and see how, well, I hadnt had any problems, and I hadnt really gone through the hot flash business, maybe a little, but it didnt bothe r me that much, so I was happy to stop. But not long after we were going through our divorc e. So, you were going through a real rough time, I i nterject. Not long after stopping the estrogen, I just felt very depressed and as I said earlier, very weepy. I would just turn on the tear s anytime I thought about the problems we were having, the kids, or anything, so I thought maybe I should go back on estrogen just to help me out. I talked to my doctor again a nd Oops, kitties are visiting us! I interrupt, feeli ng something soft rub against my leg. Im allergic to cats, so I try to be careful not to touch them, even though I love cats. Ill stay still, and hope the cat will decide to mo ve on. I hear the sound of purring near my ankle. We have two cats. This is Mickey, he is usually v ery skittish, so I guess he has gotten used to you. Hey! Mickey, she yells out. I have a cockatiel named Mickey, I explain. My moms taking care of him for me. So he is with his grandma. These are my daughters cats, but you know who tak es care of them, she confides, laughing. She stands up and claps, and M ickey disappears into the living room. So, you called your doctor, I continue.
101 Yeah, I stopped taking the combination which was i n the study. Was it Prempro? I ask. Prempro was implicated i n the Womens Health Initiative research study. Yes, thats it. Thats what I had been taking. S o, the doctor gave me two pills. She gave me a lower dose of estrogen and, what was the other called? Prometrium? I interject. Yeah. I did that for a little while, thought I fe lt a little better, but still was not happy about taking estrogen. About this time I wen t to see another gynecologist who gave me a little patch and also gave me a number of options, she explains. Oh, thats right. I remember you telling me you t ook the Vivelle-Dot. I took that too. I liked that little dot! It was nice an d small, I exclaim. It was very easy to use. And I still didnt see m uch difference, but the gynecologist gave me a number of options when I tal ked with her and one of them was an antidepressant; I had a choice of an antidepressant all the herbal products on the market, nothing, vs. a lower, much lower dose of estrogen. She gave me prescriptions in fact. I had prescriptions for one higher dose and one lower dose of estrogen. So I tried both of those and still didnt see much difference. So I w ent back to my primary doctor and told her I thought I would try an antidepressant. Ive been on it for almost a year now, and its working for me. How often do you visit your doctor to make sure ev erything is okay? I ask. Im on an antihypertensive medicine too, so I see my doctor about every four months. I havent shed a tear lately and all throu gh the divorce too. My divorce was in August, but I started taking the antidepressant las t spring.
102 Thats great! It helped you, I state. Im on a fairly low dose and I sleep better. But it took a while. And they say that is the case, she explains. It takes around 30 days, right? I ask. It took me longer than that. But Im finally slee ping better. I used to have trouble with night sweats but that has subsided, s he confides. Do you plan to stay on it for a while? I ask. The doctor told me to stay on it for at least one year, but Im getting close to that anniversary. Im going back to her in June, she e xplains. And you might stay on it? I inquire. I dont know, she states. I think about my own problems with menopause. I t oo had a difficult time, I confess. I walked around like a zombie, weeping c onstantly. It was so embarrassing. I remember one day running into one of my professors in the department. She was sweet and very observant. She could see that something w as wrong, so she gently asked me how I was, and I burst into tears. I started blubb ering right there near the mailboxes in the department. So there I was, sobbing with tears streaming down my face and in between my sobs I would say, Im really okay, hone stly I am. Im just a little emotional these days. I laugh at the recollection. Im s ure she wondered if I was sane. In fact, Im sure the faculty thought I was out of my mind, or at the least the most emotional person they had ever met! We chuckle.
103 I continue my story. The gynecologist I saw also wanted to give me an antidepressant, because I was having such a difficu lt time with hot flashes. She said that antidepressants appear to help some women through t his difficult time of their lives but since I wasnt under her care full-time because I w as a student, I was afraid to take a drug that alters my brain chemistry without having someo ne monitor me. I had originally seen this particular gynecologist because I had begun to bleed every day, so the nurse practitioner at the Student Health Center referred me to a specialist. The gynecologist surgically removed a huge polyp from the middle of my uterus and my bleeding stopped immediately. I havent had a problem with uterine bleeding since then. I think you were right not to play around with ant idepressants. There was an article in the paper just last week about the numbe r of young adults, teenagers who are taking the new antidepressants. They are called se ratonin uptake and apparently they are causing more depression and suicides, Anna explain s. Ahh choo! Ahh choo! I sneeze. Oh, its the cats. Im so sorry, Anna states. Im usually okay if I dont touch them. Ahh, ahh, ahh, I stifle another sneeze. Ill be okay, I rummage through my fanny pack for a tissue. Would it help if I put the cats outside, she asks No, no, Ill be okay, I sniffle. Yeah, I continue our conversation, but that arti cle was about younger adults, not older people. I take in a deep breath through my mouth. And the doctor I saw did say that antidepressants do help women going throug h menopause, I state, sounding very nasal.
104 I do have a few friends who have taken it at diffe rent periods in their lives and it has helped them too, Anna confirms. Do you think your weepiness had anything to do wit h the major changes you were going through with your partner? I suggest. Thats what my husband thought. But I dont think so. I think going through these changes gave me the courage to end our marria ge. Our marriage had not been good for years, and five years ago I told him I was goin g to leave him. So that was long before I started menopause. But he thinks it has somethin g to do with it. The weepiness didnt start until after he left and we had so much troubl e deciding what to do. I feel stronger now than I did then. I made a decision that I had not been able to make for along time. I dont know if lack of estrogen helped me through th at or not, but Im certainly glad I did it. Now that you are going through menopause, do you f eel like you are making different decisions or more decisions than you did before? I inquire, curious how she sees this stage of her life. Ive never been on my own. This is the first time I have had to experience that! She confides. How old were you when you married? Almost 21. I went to college for a couple of year s and moved home until the day I got married. So I went from my folks house to m y husbands house. In our day, you went to college but you got married. All of my fri ends were married at 20 or 21. You were an old maid
105 You were an old maid at 25 or 26, right? I interj ect laughing. Well, then Im a real old, old maid! We chuckle. But really, this is the first time Ive had to do everything for myself, and I like it. Im overwhelmed at the moment because of this house There is so much to do to keep it up. Its a real money drain too. But Im really l ooking forward to having my own place and taking care of myself. I would much rather hav e a little place and be able to travel. Thats what I hope to do. I hope to have time to d o that or to do something else besides work in the house. It takes so much time. We used to spend our weekends maintaining the house, him on the outside and me on the inside. We didnt do much of anything else. Ive heard people say that whats important are th e regrets you think you might have on your death bed. I dont believe anyone on their death bed would be saying, oh, if only I had had the time to wash those windows! We laugh. Exactly! That is true. It doesnt make sense to spend so much time on the house. You didnt feel you were prepared for menopause, r ight? I ask. That was one of your concerns when the doctor told you to take H RT. No, I didnt think it was time yet. You dont fee l as old as you are and then my daughter was, Im trying to remember how old I was. Lets see, 47 and she was only 10, so it must have been after 50 when I started feelin g like I was going through it, because she had not started to menstruate as of yet. And I started thinking, oh, my gosh, I cant be ending before she even starts! And thats when I really noticed that something
106 different was going on and that I might feel kinda uncomfortable with this. I felt it was just going to be a part of life and I wasnt going to let it affect me and I didnt know anybody who really had had it affect them. I had h eard people talk about hot flashes, but big deal. But when I thought about my daughter bei ng that young and me being that old, that bothered me. So fortunately she started [mens truating] as soon as she was 13 and it stopped bothering me because we got to talk about i t together. We got to share that for a while and now I just laugh at her and say, ha, ha. And she says, ha, ha, youre old! But I truly did not want to take estrogen, and I wa snt prepared when she [the doctor] told me I needed to and I still dont know if it is nece ssary to take estrogen. I wonder, are we silly for not taking it? Are we going to end up al l wrinkly if we do live to be 90? But dont we have medication for our bones and better s tudies to assess whether we have osteoporosis. If we are smart, we are keeping trac k of our hearts and we wont get heart disease. My doctor told me the other day when I wa s in for my blood pressure check that 50 percent of the population over 50 years of age a re on an antihypertension drug. I read in the news that women have a higher chance of having heart problems than men! I confide. I was shocked. I am not on HRT. I, too, took myself off my Climara and Prometrium when the Womens Health Init iative came out, even though I think that my HRT formula was safer than Prempro. But it scared me, and Ive gained so much weight. Im scared because I dont want to ge t heart disease when I get older. And it runs in my family. Although Im healthy right n ow, there are no guarantees for the future. And I also worry about my vagina shrivelin g up. I think to myself, Oh, boy, Im never going to be able to have sex in the future. Ive had that thought too, Anna laughs.
107 Im afraid my vagina is already beginning to atrop hy, I declare, sounding worried. On the other hand, my mother-in-law never took est rogen. My mom didnt either, but she was only 65 years old when she died Did she ever talk with you about menopause? I ask No, we never did. I was only 40 years old when sh e died. You know, the gynecologist I saw told me that for vaginal health there are creams if you need them. And of course there are lubricants, she shares wit h me. But what if my vagina has already atrophied? I as k. Do you think it would atrophy, she asks. Well, I know it changes, especially without taking estrogen, I state. We both laugh. It gets dryer, she explains. I read that your vagina thins out, I state. By thins out I understand that to mean that ther e is less moisture there. And the tissue may break a little more easily. But I h ad thought if you introduce moisture to it, but whether you can just do that and have sex a nd have it to be comfortable, I dont know, she ponders this. Well have to test that theory sometime! We both laugh heartily. The gynecologist told me you need to use it or los e it, I announce, smiling broadly. Use it or lose it! I like that, She says. I sneeze again and again and finally decide its ti me for me to close the interview.
108 Janes Story Jane and I met for our first interview at T.J.s, a restaurant near the Cheesecake Factory in the International Mall in Tampa. Taping an interview in a restaurant can be a disaster because of the background noise, but I agr eed to meet at a restaurant, as this seemed to be the most convenient place for her to m eet with me. We grab a cup of coffee inside the restaurant, but decide to sit at one of the hunter green metal tables outside for our talk, because the background music inside the r estaurant is too loud for us to have a meaningful conversation. As usual, its beautiful in Tampa today. The sky is blue, the air is fresh, and the palm trees are gorgeous in th is part of town. When I told my husband that I was participating in this research, he said, Are you sure they have the right person? She brushes a stray strand of long, dark hair off her face and lets out a hearty, staccato laugh. He r bright, green eyes twinkle. Isnt that cute, I respond, smiling. Tell him t hat down the road I would love to talk with him. I was explaining this project to him, and I said, I dont think its from a medical standpoint. I think its more from a psychological perspective, how youre thinking and how youre feeling standpoint. He goes, Well, th en she definitely should be talking to me, not you! We both chuckle.
109 Tell him Ill take him up on that offer down the r oad, I holler out. I take a sip of my hot coffee. Its chilly today, so the warm c offee soothes me. I didnt bring along a jacket, as Im usually too hot. I notice that Jane is also not wearing a jacket. She is dressed in a chic-looking black slacks outfit. Is it too cold out here for you? I ask Jane. Not at all, she smiles. Its comfortable out he re. Okay, I have a funny story to tell you, I continu e. I was at a Federal Express office the other day, waiting in line when a major hot flash came on. So there I was standing in line fanning myself with a piece of pap er, saying Whew! And a sweet man said to me, Oh, I understand. Why dont you go ov er to that fan and stand under it? He pointed to a fan in the center of the room. And I did. I ran over and stood under the fan, craning my neck, holding my collar open, and trying to get as much cool air down my top as I could. There were a bunch of people in line, but they seemed to understand that I wasnt really trying to cut in front of them. The man said to me, What in the world could women have done to have to go through this st age in life? He told me that his mother-in-law is going through menopause and shes having a rough time too. And I thought he was so sweet to be so empathic, but on t he other hand, he also seemed to be blaming women for the problem. As if we did someth ing to cause menopause to happen to us! Yeah, hot flashes are terrible, Jane concurs. T here is no way to describe it. Its just like fire coming out of your head. And I m starting to have night sweats again. Oh, I get those too. They are terrible. Its hor rible. They wake you up. I hate them, I complain.
110 I havent had hot flashes for a long time, thank g oodness, but yeah, I know how horrible they can be, she says with empathy. Jane, you are so young to be having menopausal sym ptoms. I look closely at her dewy complexion for telltale signs of aging; a little wrinkle here, or sag there, but she has none. Her complexion is flawless. Why dont you tell me a little about yourself? I guess background information would probably be t he best place to start, she states. Whatever you would like to tell me is okay, I exp lain. Oh, lets see, Im 39, married, with one child who is 3 years old. After I had my child, I had some complications with moving my hand s. Like putting the key in the car and cranking the car up, or putting my arms up to w ash my hair. And Im a small-framed woman, she explains. Yes, youre tiny, I concur. She is so tiny, that I would guess her dress size to be a one or two. But I dont ask for confirmation on this point. And honestly, I just thought that the problem was from my pregnancy. I never had any medical complications, never thought about it at all. So, after giving birth, I still had problems, so the doctor started to do tests and they found out that I have a condition called myasthenia gravis, which is an autoimmune di sease. What they suggest you do when you have this particular disease is that you h ave your thymus gland out. Your thymus gland is located in your chest cavity. And in order to remove that, its very similar to open-heart surgery. I let out a small gasp at the thought of her having this type of invasive surgery.
111 Its the same full sternum split and they remove t his gland, she explains. Mine was enlarged, so they removed it. Do you need your thymus? I ask. Its large when you are born, when you are a child Then, as you get older it starts to shrink and it really doesnt have much fu nction in this world, she explains. So they took that out and after that I did not have a period. But I didnt think much about it. I thought, you know, well, my body just went throug h a major change and its probably just not time to have it yet. And so six to eight weeks passed and I started having night sweats. I didnt really think much about that eith er. In retrospect, I now realize that I started having night sweats when I was in my forties, and I, too, didnt think too much of them at the time. They werent severe at the start, and they were happening intermittently. I us ed to chalk them up to catching a mild cold or bug of some sort. But on occasion I rememb er worrying about whether I had something wrong with me, as I knew night sweats cou ld be a symptom of a serious illness. I never mentioned this to a doctor, mainly because I was healthy and didnt see doctors on a regular basis. I was pretty dense about my bo dy, or maybe I was simply in denial. But thinking about my body-in-menopause was just no t part of my frame. So, at that point in time, she continues, I went to the doctor and told the doctor about the problem. At that time, I thought they wo uld give me something, because I know that sometimes they can give you something to force your period. I wanted to be on birth control pills, because I didnt want to ha ve back-to-back babies. I wanted a bit of space between them. And so, ahwhat do you call it? Oh, Ive lost my train of thought!
112 It is somewhat comforting to know that other women who are going through menopause also have problems with memory lapse. Th ere have been many times that I have had a problem following the conversations in m y classes, since I have entered menopause. I remember having a particularly diffic ult time tracking the conversation in my Ph.D. seminar on Framing and Sensemaking. I wou ld be following the conversation, thinking about the issues my colleagues were discus sing and then all of a sudden a blanket of heat would engulf my body at lightening speech and zip, bam, boom, I would lose track of the conversation. It was so frustrati ng constantly to ask the person next to me what did she say? I used to take copious note s in class and try to ignore the heat cursing through my body, or the layer of sweat glis tening on my forearms, but after class, I would notice that my notes were mainly half sente nces of incomplete thoughts. Menopause has caused me much heartache. I pull my attention back to our conversation. You were telling me that you were getting night sw eats and you went to see the doctor, I remind her. Oh, yeah. So I went to the doctor and they were l ike, Well, lets do a test. Its probably nothing. And they called me with the res ults of the tests and said that I was in menopause, Jane explains matter-of-factly. Wow! You are so young, I mean very, very young to be in menopause, I state sympathetically. I know. I was like, What do you mean? So I did a lot of research on this, you know, trying to figure out whats going on with thi s and how it related to my MG
113 [myasthenia gravis]. The doctors said it was proba bly linked to having an autoimmune disease. How do you spell that disease? I ask. Its m-yI have to write it out. She opens one o f the napkins sitting on the table, borrows my pen and spells the name on the na pkin. The myasthenia gravis part of this problem means that antibodies are latching on to my receptors on my nerve endings so that the chemical cant get to them, or it break s down that chemical that affects my movement. Im extremely mild in my condition on th at. Does this condition give you pain? I ask. Its not painful at all. The easiest way to descr ibe it is that if youve ever worked out in a gym doing, say, repetitions of ten, and on that tenth repetition its just really hard for your muscles to go up and lift the bar. And so metimes I dont even key-in to this condition, because Ill just think that Im tired. And then Im like, Oh, yeah, maybe I need to take something, and life goes on. Its ve ry mild and hopefully it will always stay mild. Is there a medicine for this condition? I ask. Yes. So, the doctors think that the same antibodi es basically attacked my ovaries. And thats what caused me to be in menopa use. At that point in time, I started taking hormone replacement therapy. Im still on i t. The first thing they put me on was Prempro, she explains. Prempro was implicated in the Womens Health Initia tive study. I too was on Prempro for a short time. That was the first HRT f ormula that Marsha, the nurse practitioner at the Health Center, gave me. I stay ed on it for a few months but didnt
114 tolerate it well. My breasts became swollen and ac hy. I felt like I was lugging around two ripe watermelons. And I became very weepy and moody. Then I began to bleed, and I bled every day, so I called Marsha, crying, and t old her I had thrown away the Prempro. She switched me to a two-pill regimen of Premarin and Provera, and I bled every day. I took those pills for about ten days, before tossing them. And I called the Health Center again crying, still bleeding every da y, and experiencing terrible hot flashes. She then prescribed Activella, which didn t work either. Activella gave me neurological symptoms within a few days of taking m y first dose. I developed headaches daily and had trouble seeing, so I tossed those pil ls too. She finally gave me a referral to a gynecologist. It didnt work at all, Jane continues. They chan ged me around several times. I remember one day driving on Gandy Boulevard, and at one red light I just wanted to kill the driver in front of me. And at the next red lig ht I was almost in tears. Im just not that kind of person and had never experienced PMS to a l arge degree. And so I called the doctor and went, What have you people done to meI m psycho! So they changed me around several times. And thats when I read in th e paper about the seminar on menopause and the results of the Womens Health Ini tiative. Im still on hormone replacement therapy, but Im on compounded hormones now. That means a pharmacist has mixed the hormones for you, right? I ask. Correct. My gynecologist writes the prescription and then I take it to one of the compounding pharmacies here in town. So, he compounds an HRT formula for you, a combina tion of estrogen and progesterone, right? But then you told me you are taking something else too.
115 Right, Im on an HRT combination and Im also on C enestin, which is an estrogen, I think. I just picked up my prescripti on from the compounding pharmacy and I forgot to bring that today. Im so sorry. No problem, I respond. If you have a chance, get that information for me, but its not a big deal. I dont need to know the exac t formula you are taking. And Im still playing around with that a bit. I w as doing so much better when they put me on this, but Im not back to being 100 percent of who I am. But Im so much better from the disaster that I was when I was on t he Prempro. It gets to the point where its like, okay, if we start messing with this medi cine I could go back to being loony again. You know, lets just leave it alone. So I left it alone for a while and I was still having mood swings. And so now they have put me on a mild antidepressant to go along with my HRT, which seems to be helping. And I just started that. I have a doctors appointment in a couple of weeks and I want to talk with them about my options and what that can do long-term and all of that. Who gave you the antidepressant, your internist or your gynecologist? I ask. My OB-GYN. It took me a long time to find a good doctor. I was happy that someone finally understood how all of these puzzle pieces were put together, because before I met my current doctor, I would go and meet doctors and theyre like, Oh, how interesting. They didnt know what to do, I confirm. They would be like, Yes, we have read about you, or Weve read about MG before. If you go onto the Internet youre going to come up with horror stories, but its really not a horror story in my life at all.
116 Well, my thyroid closed down since I have been her e in Tampa working on my Ph.D., I confide. Ive always been healthy, so h aving a thyroid condition was a shock to me. I didnt realize I was sick for a long time I started feeling poorly, and my hair began to fall out. I gained weight and was having trouble thinking and, as I mentioned, I was having horrible hot flashes. I became so weak I had difficulty lifting a pan of water. I had to use both hands just to get a pan of water onto the burner. I was constantly winded. And my throat felt sore. One day, I was a t the library and reached up to take a book off a high shelf. When I tipped my head back, my throat felt sore, so I put my hand on my throat and I felt a lump in my throat. I tho ught, Oh, my God! I have a tumor in my throat. Bless your heart. I dont remember how I made it to the health cente r. But the doctor ran tests and we discovered that my thyroid numbers were abnormal He sent me to Tampa General Hospital for another test where I had to swallow a radioactive isotope and then return the next day for a scan of my thyroid. Yeah, I had that test too, she confides. Well, the next day when I returned for the scan, w hile I was lying on this small table having the scan, the technician ran into the room wanting to know what I had eaten the night before. He wanted to know specifically i f I had eaten any sushi. It turns out that I had no functioning thyroid. What a shock it was to realize that my thyroid had closed down. And I wasnt placed on medicine immed iately either. The health center doctor said I had to see an endocrinologist first, and I think I called every endocrinologist in the Tampa area, but couldnt find a doctor who c ould see me within a reasonable
117 length of time. I was panicked. My major professo rs wife is a retired physician, and she helped me get an appointment with an endocrinologis t that she knew. I was so exhausted during this time of my life. Every day I would dra g myself to school to teach or to attend my own classes. I used to get winded and feel dizz y just walking up a flight of stairs in the CIS building, where I taught and took classes. It took about 6 months from the time I was diagnosed to the time I began taking Synthroid. And it took even longer before I began to feel strong again. I now wonder if my thy roid problem might have been related to menopause or vice-versa, or to the fact that I p ut myself on and off several types of HRT formulas in a short period of time. Right, she confirms. And once I began feeling better, I wanted to try t o go off the medicine to see if my thyroid would function without the medicine. Bu t the doctor said we had to test for antibodies first. I had had an antibody test when I was first diagnosed. The Health Center doctor had ordered that test, so I didnt un derstand why I had to have another antibody test. But I guess there can be a lag betw een the time you develop thyroiditis, that is what I hadnon-specific thyrioditisand whe n the antibodies show up in your body. The endocrinologist told me that if the anti body test was negative I could slowly wean myself off the medicine; otherwise, I could ne ver go off this medicine for the rest of my life. And wouldnt you know, the test came b ack positive. So I wonder now about those antibodies. I think my body attacked my thyr oid and thats why I have certain antibodies in my body. I wonder if this means I ha ve an autoimmune problem, too similar to you.
118 I kick myself when people ask me medical questions about my condition, Jane explains, because I feel so uneducated too. Well, how can we know everything? I got all of my education at the time I was diagno sed, Jane states, throwing her hands into the air for emphasis. At the time I wa s going through everything I had tons of informationI knew it all. Just from talking wi th the doctors and reading about it online, you know, the whole nine yards. I could te ll you everything. I had a running fileeverything. It was the same when I went throu gh menopause. I could tell you all the dosages and everything I was on. But I dont d o sick well. I dont know who does, I concur. I dont have time to be sick. And so now people a sk me and Im like, I dont know. Its because mentally I cant go there anym ore. I learned what I needed to know at that point in time, and now Ive decided that th e problem is solved and life goes on. Me too. When I first heard I was in menopause I, too, read everything I could on the Internet, and I did the same when I discovered I had a thyroid problem. But I dont remember much anymore either, I confess. But, I continue, pointing my index finger for emphasis, what confuses me the most is that th e doctor said its not uncommon for pregnant women to get thyroiditis. So this is a ho rmonal thing. But I wasnt pregnant, and I began to wonder about the connection between going on and off the different formulations of HRT and my fluctuating hormones. I think someone ought to have told me or warned me about going on and off HRT so readi ly. Maybe that caused my thyroiditis or contributed to my condition. I let out a sigh.
119 I agree, says Jane. And if you look up antibodi es or autoimmune disease on the Internet, you will discover that a lot of your autoimmune diseases, the majority of people affected by them are women. I didnt know that, I state, startled. I cant remember all of them but I know that mostl y women get irritated bowel syndrome, Jane explains. I wonder why doctors dont warn us in advance of t his stuff, I ponder. I know, I know, Jane concurs. Well, Im happy you dont have to take any medicin e, I state. Oh, for my MG? No, Ive been on medicine since di agnosis. But we have gotten to a level that I can take it if I need it. I usually dont need it. But yesterday I substituted at my sons school and I probably shoul d have taken a pill, because I came home and lay in bed for two hours while my son had quiet time, because my body was just worn out, Jane explains. But once you sleep then you feel better? I inquir e. Exactly, Jane agrees. But sometimes I feel incr edibly old when I go to bed at night and Im taking all of these HRT formulas. Im like, Oh, my God, Im 39 years old. Why do I have all of these drugs Im taking? Jane takes a long drink of coffee and fiddles with the wooden coffee stirrer. I realize that I cant identify with what she has g one through. My journey through menopause and my thyroid condition happened so much later in my life. She is such a young woman to have to deal with menopause and an i llness too. Its too much for me to process at the moment.
120 You are so very young, Jane, I state sympathetica lly. But, you know, you do what you have to do, she in terjects, matter-of-factly. Yeah, you have been through a lot, I concur. It sounds like it, but theres nothing that I don t do, she explains, nodding her head. None of this has prohibited me from doing a nything. But you cant have any more children, I state. No, and that has been the major problem, she conf irms. That was my major I couldnt have any more kids. And that was probab ly the number one psychological thing that was the worst, not being able to have an other one. And its hard because my son is getting to the age where he is asking things like that. He will say, So and so has a sister and brother, and Why dont I have a sister or brother? I knew these questions would come one day, she states, crossing her arms in front of her. I just didnt know that they would come this soon. Your child is so smart! I state. Yes, he is, she agrees, leaning forward with her elbows on the table. She smiles broadly. How do you feel about not being able to have anoth er child? I ask. Well, you try to look at the positive and thank Go d that you have one. But your feelings do get hurt every once in a while, even as strong as you want to be, she explains. Did the doctor say you have no chance at all of ge tting pregnant? Cant you take a shot to help your ovaries work? Cant the doctor s harvest some of your eggs? I ask, not able to comprehend that she really cant have a ny more children.
121 My doctor did a very interesting exam. My doctor did an ultrasound and said, Well, look, there are your ovaries right theretha t one has no eggs in it and that one has maybe one or two, but thats it, Jane states. Thats it? I ask. Yeah, but it was very interesting from a patients standpoint to be able to see that, because you initially think, But what if thi s, but what if that, can we do this, can we do that? And you are like, You have to be wrong. You go through that kind of thing mentally, and the doctor says, No, no, see this? This is why you cant have any more children. Yeah, I wouldnt have believed the doctor at first either, I confess. We pause for a moment. You have told me a lot about yourself today, Jane. What else would you like to tell me or talk about today? I ask. Well, I guess I told you what I had in my mind tod ay. I dont want to harp on the MG side of the world by any means. I know that number one, thats not what you are looking for and it really doesnt affect my wor ld. But I wanted to bring you up to speed on that so you would understand why I went in to menopause at such a young age, Jane explains. And I know you are on HRT, and Im happy you are! I exclaim. Yeah, and all of my doctors want me on HRT, mostly because of my age, she explains. Does it bother you about all of the findings of th e WHI? How are you feeling about all of that? I ask.
122 Initially, it did, Jane explains, I have to be h onest. I did not call my doctor the day I read about the thing [WHI], because I knew th ey were getting thousands of phone calls. But I made an appointment to visit my OB-GY N at the time and my internist about a month later. I figured what are four weeks going to matter? I really wanted to be able to sit down and talk with both of the doctors inste ad of being passed through. And I knew they had to be getting a gazillion calls. But after sitting and talking with them and reading a little bit more about the research, it do esnt. I mean there were lots of women, and the demographics showed other things, other hea lth issues. Age factors and a lot of them were overweight. A lot of the women had healt h problemsheart problems, and blood pressure problems. So it wasnt necessarily a good generalization, I dont think. Did you have the same OB-GYN at that time or were you seeing a different doctor? I ask. I was seeing a different doctor at that time, she explains. And that doctor also agreed that you should stay o n the HRT? I ask. Yes, as a matter of fact, all of the doctors Ive gone to say that the risks are far less than the positives that I am getting from bein g on the HRT. And it sure does make me a little bit more sane, and my family probably a ppreciates it too! She laughs and runs her fingers through her long, blond hair. Well, she states, confidently, Im going to scoot so I can run a few fast errands before pickin g up my son at day care. Give me a call when you want to meet again. Jane flashes me a bi g smile, says a final goodbye, and rushes off.
123 Alexandrias Story Well, as I said on the phone the other night, I h ope I have enough of my own information to make it worthwhile for you to have m e in your project. Alexandria shoots a furtive glance my way before turning her g aze back to the informed consent form in front of her. The crease between her wideset eyes deepens. She stares at the form while she slowly smoothes invisible creases ou t of the paper with a neatly manicured right hand. Absolutely! I exclaim. You will, Alexandria. You will! And Im so happy to have you in my project. Mustering as much enthusi asm as I can, hoping that my words will reassure her, I offer her a wide grin. You know, I just, how should I say this, Ive rea d articles about HRT, but I certainly dont remember everything that Ive read. She continues to smooth imaginary creases from the paper while allowing her light bro wn eyes to meet my gaze briefly. She is dressed in a smart-looking navy blue pants suit and matching blue pumps. Both hands are adorned with rings; her wedding ring on one han d and a beautiful diamond ring on her other hand. I can see that she has gotten all dolled up to meet with me today. Thats okay, Alexandria. I enunciate my words sl owly. Im interested in your ideas on menopause. I want to know what you think about menopause. Its not necessary for you to know the latest information on HRT. I place e mphasis on the word you each time I say it, hoping this will serve to calm her anxiety. Were going to talk about
124 you and your experiences with menopause and hormone re placement therapy. I am interested in knowing about you Alexandria. I smile sweetly, looking directly i nto her eyes and wait for her response. Her shoulders slump a little and she settles into her chair. She smiles shyly at me, allowing her eyes to meet mine for a few seconds lo nger, before she looks away again. I used to talk with the gals I worked with and also t alked a bit with the doctors staff from years ago, when I hadnt even started my menopause. I talked with the receptionist and the nurses who were working in the front office. T hey would say, you mean you havent started going through the change yet? I guess bec ause I was older than they were, they were in their 40s, and I was already in my 50s, and I said, no, nothing is happening yet. And they went, my God! And they couldnt get ove r it. I dont know why it was that way, but I guess I started going through the change a little bit later than normal. We all start at different times, I explain. Th e average age of a woman going through menopause is around 50, but some women go t hrough it earlier and some later. I have a woman in my group who stopped menstruating i n her early 30s. So dont worry about that. I fan the air with my hand, as if my gesture will wave away her hesitation. Im really just asking for your opinion. And what ever it is, its okay with me! I emphasize the last word, adding a playful tone to t he conversation, smiling broadly at her. Well, the thing is, Im kinda through it now, sh e confesses. Me too! I exclaim heartily. And Im glad for it . Well, youre too young to be. I think youre jus t too young to be, she starts, surveying my face closely.
125 Thank you, thats very sweet of you to say that, but Im 55 years old now. No! Youre kidding. I would have never guessed. Yes! I state emphatically, proud of my age. P eople dont usually guess my age, but Im getting old. When they do ask my age, I like to play around by telling people that Im 92. I giggle. Age is not so imp ortant to me anymore. When I was younger, I moaned about turning 30 and I moaned whe n I turned 40. But the alternative to getting old is definitely not appealing to me! So, Im okay with my age now. I get some of that too, she confides in a conspi ratorial tone. She scoots her chair closer to me. When I fell and broke my ankl e this past August at the International Mall, I was laying in the gutter when two men helpe d me up. They called an ambulance service. And I guess the ambulance driver was aski ng them all sorts of questions. They said that a lady fell and that she needed an ambula nce. Well, how old of a woman is she? The driver asked. She looks like shes in h er 50s. Alexandria throws her head back and lets out a howl. Can you imagine that th ey thought I was so young? Im 69 years old. Well, I momentarily forgot all about my pain and I laughed and laughed and said, you know, thats the best thing Ive heard a ll day. We chuckle and I can feel the mood suddenly lift. We both settle back into our chairs. We are sitting in the main conference room in the Department of Communication at the University of South Florida. This is my fir st visit with Alexandria. So, Alexandria, what I want to do today is to sim ply ask you to tell me a little bit about yourself. Tell me whatever you would like to tell me, okay?
126 Oh, she starts. Well, when we talked over the phone, we talked about our families. Do you want to know about my school year s going back to my childhood or before school? Her light brown eyes search my fac e for a reaction to her question. Absolutely! I holler. Tell me whatever you wan t to tell me about yourself. Well, I learned to speak Greek before I learned t o speak English. And as I got older, my brother and I had the Greek lessons and t hat was an important part of our life. If you saw the film My Big Fat Greek Wedding where the kids had to go to Greek school, we really related to that, you know. But w e had a Greek teacher that came to our home. A lot of the other kids we knew went to Gree k School. She explains. My cousins went to Greek school too. I interject That was an important thing in our life, when I w as growing up, she continues. At the time we didnt appreciate it because it was a time when we couldnt go out to play. We had to stay in. She confides. I am startled to hear her talk about her Greek less ons. I, too, took Greek lessons at home from a private tutor when I was younger, an d felt the same way she did about the lessons. I wanted to go out and play, rather than stay in taking lessons from Theo, as I called the elderly man who came to the house once a week to give my siblings and me private lessons. My mind suddenly pulls up a memor y of the long black chalkboard my father had made for us to use during our weekly les sons. A memory of my first Greek primer, with its bright red cover and picture of a young, Greek male pulls into focus momentarily. Alexandria is a good 15 years older t han I am, and she was clearly raised more Greek than I was. Yet we share similar memo ries about growing up Greek in America.
127 We had a Greek teacher come to our house when I w as in third or fourth grade, and I felt the same way you did! I confide to her I too wanted to go out and play. But I also learned Italian when I was a little girl. I honored both sides of my ethnic heritage. We were so deprived, she chuckles. At least you remember your Greek. I dont rememb er any of mine, I interject, withholding my standard line that the language is Greek to me now. Since I had to speak Greek to my mother, you know I had no choice. She explains. And then I went through high school and I regret, I have a lot of regrets. I wish I could have done things differently. I would have worked harder, studied harder. When I was in high school, I just didnt set any go als, because of the whole Greek thing. I was raised to believe that I had to get married a nd that my husband would take care of me. Well I was lucky. I married a very good man, a very good husband, whom I love and you know, he did take good care of us. You had a good life. Thats nice. I interject, soothingly. I had a good life, she agrees. But when I was 15 my mother had her first heart attack and that was very traumatic for me. That must have been very difficult for you. I s tate, sympathetically. She was about 50 when she had her first heart att ack. She had high blood pressure, heart problems, and all of that. And the most difficult part about this experience was that I had no one to talk to about my fears. Her voice cracks. I dont know what to say to her, but I can clearly identify with her emotional reaction to talking about the events leading up to her moms death. I lost my dad when I was young too.
128 And, uh, finally, uh, she sputters. Are you okay? I ask, concerned at this turn of e vents. Yeah, she confirms. Yeah. I went to Waldon bo okstore one day and found a book on womens health written by a female doctor. I turned to a page and there wasI dont know if youve ever read her book, but she ha s quotations from different people, from well-known people and people that I did not kn ow of. And there was this little paragraph from this woman who was about 45 years ol d. And she said, When I was a teenager, I watched my mother struggle with her hea rt problems, and Im going like, Holy Cow! and Im reading this paragraph and it s ounded just like me! Alexandria shoots me a wide-eyed look. I had to find a chair to sit down. I had to go all the way to the back of the bookstore to find a seat to read mo re, because this book told about myself. I read this book about 5 or 6 years ago, and all of this time I had those feelings inside of me, but they were suppressed. I didnt want to bri ng them to the surface. But after reading that paragraph from that woman, and she sai d, As I approach my mothers age when she developed her problems, I have become very conscious of taking care of myself. And I thought, Boy, if this isnt me! My mother died when I was 22 years old. She died a week before my wedding. When she went into the hospital that last time, she told me she wasnt coming home. And she made m e promise to get married, no matter what happened. She said, Youre going to g et married. So, as it was, we got married, but my mom died a week before the wedding. The room goes silent. How brave I think Alexandria was to have moved on w ith her life and married while a shroud of death surrounded her. Look at ho w satisfied she is. She is so sweet,
129 and I am happy for her. Yet, I am also sad when I reflect upon the difficult times I endured during my fathers illness and for some tim e after his death. I had a lot to deal with: a nave, young woman barely out of her teens watching her whole world collapse around her while coping with a crushing burden of r esponsibility, managing an unfamiliar business in a dangerous area of town, al one, with no one to turn to for help not even my boyfriend. I had met him and dated him during my first year at college. He had been in a fraternity and had given me his pin. That made us a serious couple. A small announcement of this event had been printed i n the local school paper, and the women in my dorm threw me a small celebration. He and I were talking about marriage, but when my dad became sick I couldnt manage a rel ationship with him and my dads business at the same time. Something had to give. Within a few months of taking over the day-to-day responsibility of the business, I lo st my ability to communicate with him. I had become ensnarled within a web of isolation, det ermination, pain, and danger and couldnt cut myself loose from its grip. I cut him loose instead. I have one-two-three grandchildren and one great-g randson, Alexandria continues, pulling me into the present moment. An d weve just all gone through life. Life has been good. Yes, weve have our ups and do wns, and yes, I did have two heart attacks, but life has been good. She smiles warml y at me. Her gaze is steady. You had two heart attacks? Alexandria, maybe you shouldnt be driving today. I exclaim, worried that I may be asking too much of her. Maybe I should come to see you at your home for our final interview. I dont want you to have to drive all the way to the university again.
130 Oh, gosh, please dont say that. I mean, Im not ready to be put on the shelf, you know. Her eyes twinkle. Okay, okay, but promise me that youll talk with your husband and children and let them know about our interviews and see if its all right with them if you come to talk with me again. Im startled to hear that she has been so ill. Oh, theyre not going to mind. They know their m om is going to do what she wants to do. And Ive already told my husband I wa s coming here today. I told him I was meeting a nice lady at the University of South Florida today, but that I wasnt looking for a job! She laughs. All right, okay. Im sorry. But I did have a bypass. I let out a gasp. And they say I have congestive heart failure. So Im on about 10 pills a day, including my insulin. I try to stifle another gasp. But the connection between the Womens Health Initiative findings on HRT use and heart problems d oes not escape my attention. How long ago did you start taking HRT? I inquir e. Well, its hard to go back that many years. I wa s on one pill for a long time. My family doctor gave it to me. Perhaps it was the es trogen, and that kept my period going for a long time. It was really embarrassing before I started taking it. I was working and I was doing make-up and treatments on ladies faces an d I would break out into a sweat. One day this lady says to me, Are you having a fla sh? I said, YES! And I started
131 having night sweats and everything, and not being a ble to sleep. My mom did talk to me about menopause. She told me that her periods just stopped one day. That was it. She didnt go through any hot flashes or night sweats l ike her friends were going through. And I told the doctor about that when I saw him, an d he said, Well, lets hope youre as lucky as your mother was. Are you concerned that taking something might cau se a problem for you? Yeah, well, certainly taking hormone replacement therapy didnt help my heart because my first gynecologist says, this will be g ood for your heart, just in case, since your mother had problems. This will be good for yo u. But come to find out from that article [on the findings of the Womens Health Init iative] that it might be a worrisome thing. At first theyre telling you to take, take, take this, youve got to have this, and then the next thing you know, down the road a year later or so, they are saying dont do this or dont take that because ta-da, ta-da, ta-da, this i s going to happen to you or youre going to get this if you take it. And it makes you feel like theres something wrong with the pharmaceutical industry. They seem to be rushing t o judgment by saying Yes, HRT is okay, and people are waiting for the miracle and t he cure. I think its too much government. There is too much government in it. So, how do you feel about HRT now? Are you still taking it? Im not taking it and wont if its going to caus e any other problems or future problems of cancer or whatever was mentioned. When did you stop taking HRT? Shortly after the seminar at Crosstown Church. I t put a scare in me. I called my doctor after the forum and told him what was discus sed and what was happening, and he
132 said go ahead and gradually taper the medication of f. Do it in a few weeks time, and youll be okay. So I did, but I didnt taper off s lowly. I went off quicker than he said. He told me to get something from the drugstore, one of the natural things. I cant remember what it is now, because I took it for a sh ort time. I did get some hot flashes at first, but I didnt have terrible hot flashes and I wasnt pulling out my hair or anything like that. I was okay with it. I feel like Im ok ay. Im over it now. So now youre not taking anything? No. And while I was taking the hormones, I was s eeing the father of my current doctor. Ill refer to him as Senior. I was seei ng Senior, and I guess I can go ahead and say I was having a period at my age, and Senior kep t me on the medicine and I had told him about my problem. Well, there came a time when Senior retired, and I had an option of where I wanted to go. I could go to his son or any other gynecologist in town. As soon as I visited the son, who was very nice, very personable, and very gentle I told him his dad had kept me on this stuff, and Ive been ge tting periods. And I dont have to be having periods at my age. How old were you at the time? Oh, gosh, Ive been going to the son for about 4 years now, so I was about 65. Can you imagine getting your period at 65! Like clockwork, every month. But anyways, I told him I dont need to be having this, and he gave me the other pill, so that I would not have a period. So I was on estrogen and progesterone. At first you were on one pill, right? Yeah, I was on the one first with Senior, and the n his son put me on the other. What was the other? I ask, confused as to what she was taking.
133 I think it was estrogen at first, the first one. Estrogen. Is that what the father put you on, an d then the son put you on progesterone? I ask. Yeah. So then I was taking two, I think. Yeah, I would take one for so many days, and then Id take another pill. Did you still have a period then? Eventually, I didnt have one. And to this day I thank God, I dont have my period anymore. Still confused over what she was taking, I try aga in to clarify what she was on. Do you remember what you were taking? Prempro, I think. Prempro is the one that stoppe d my period, right? It stopped the periods. What color was the pill? I ask, hoping this migh t help me clarify which medication she had been taking. See, Im not good at this right now, because my m emory fails me as to which one I was taking. But I was taking one for so many days and Id stop. And then after a while I was okay. I think I was on estrogen with S enior and then the son added another pill that made me stop bleeding. The reason Im so curious as to what you were tak ing when you were seeing Senior is because I know you have your uterus. Yeah, she confirms. So I dont think Senior would have given you just estrogen, because research shows that you should not take estrogen alone if yo u have your uterus.
134 Im sorry, Im not so clear on this. My memory i snt good on this stuff, she apologizes. Thats okay. Its all right. If you can, ask you r doctor, but if not, thats okay, I explain. So, how do you feel? I feel like a normal person now, and Im glad to be off HRT forever. * * * * * Alexandria and I meet many months later for our fi nal interview at my new apartment in New Tampa. She is smartly dressed aga in but in a more casual, brightly colored summer pants outfit, and her short, brown h air is neatly combed into an oldfashioned bob. She looks cute. She has brought me several presentsshe baked me telopetia, a cheese filled filo-type pie, and she h as brought me a copy of the cookbook she and her church published. We spend a few moments discussing Greek recipes. She tells me that she has several recipes in the book. One of them is for Gr eek-style potatoes and another is for telopetia. I confess my love for skordialia, a gar lic spread that leaves every pore in your body reeking of garlic for several days. We laugh. She signs my cookbook. Speaking of cookbooksthis is something I wrote a nd entered into a contest. She pulls several documents from her purse. I ent ered the Betty Crocker contest when they wanted to change the image of her. Remember w hen she used to have blond hair and blue eyes for years? But now there are more It alian people, more Latinos, and Orientals and Greeks in America. We are a true mel ting pot with all the different ethnicities in America. So I entered a Betty Crock er contest. You had to write something
135 about yourself and send a picture, and they were go ing to select a new image for Betty Crocker. So I wrote them a story about my life. She sniffles for a moment, but regains her composu re quickly. I didnt win, but they sent me a certificate that I have saved all of these years. She shows me the certificate and then unfolds a le tter and begins to read me her entrance letter that is titled, The Best of Both W orlds. She explains that the title represents her ability to blend her Greek recipes t hat she learned from her mom with American cooking that she learned using her Betty C rocker cookbook. As I listen to her read her story about cooking for a growing family, it occurs to me that Alexandria has been a delight to talk with. She seems to represen t the best of both worlds for me, too, a little from my Greek past and, by participating in this project, also a little of my future. As our children grew, our menus became more diver sified. Hamburger Helper was a big hit, and Bisquick, with its easy recipes conveniently printed on the back of the box was always a staple in my pantry. She continu es to read from her letter. I sit back and listen, with a smile on my face.
136 Rubys Story Its the early part of August, a brutally hot time of the year in Tampa. Its so hot outside that the air conditioner in my new apartmen t cant seem to cool sufficiently to keep me comfortable. Being menopausal doesnt help matters. I moved into this apartment in the New Tampa area a few weeks ago and the cooling problem is causing me to wonder if I made a mistake selecting a third floor apartment with vaulted ceilings. But, nevertheless, I am excited to be able to hold my final interviews in my new place. I cant wait to talk with my participants. Its been about 5 months since we completed the focus group processes, so Im looking forward to ca tching up on their lives. Ruby has arranged to stop by after work tonight for her fina l interview. She is the first of the group to hold her final interview. In anticipation of he r arrival, I arrange a spread of food, mainly teas and pastries, on a small table that I h ave set up in the living room near the French door leading to my screened-in balcony. I d ecided we should talk in this room, because its filled with bright light and offers a panoramic view of the complex. While I rush back and forth from the kitchen to the small t able, I think back to my first interview with Ruby. We met at her office, and although the preliminary interview went as well as could be expected in such a formal, stiff environme nt, there were too many distractions. We sat with her large wooden desk between us, her p hone rang several times, and a man popped his head into the doorway on occasion to ask her a question or two. She told me that payroll week is always hectic, and that she ha d to be available to wipe butts around
137 here. I still cant shake that image. I am hopin g our talk today will reap the rewards of the private and comfortable environment of my apart ment. I arrange packets of Earl Gray tea, my favorite, in a semi-circle on the white linen tablecloth and below them I lay out foiled packets of other teas in smaller arcs; English Breakfast, Lemon Lift, Raspberry Royale, Orange Spi ce, Peppermint, and Green Tea. While I work, I feel familiar blasts of heat surge though my body at regular intervals, even though the thermostat is set at 65 degrees. I try my best to ignore the heat. I place the two large cinnamon and apple buns I purchased a t Paneras Restaurant earlier today on top of a white doily. The pastries look invitin g to me, slathered in a rich-looking dark sauce, and covered in sugarcoated pecans. I make a mental note to stay away from the pastries when Ruby arrives, as Im battling a weigh t problem. Next to the pastries, I arrange Pepperidge Farm butter cookies onto a servi ng plate, and, on my way back to the kitchen I notice that my bare feet are leaving inde nts in the freshly vacuumed carpet. Oh, my God! I think to myself. I can see the outline of my toes. The carpet looks as if the mythical Big-Foot monste r has paid me a visit. I make one last trip to the table carrying sliced cantalou pe, skim milk, cream, and packets of Splenda before running the vacuum over the size 9 impressions in the rug. The phone rings. Linda? I recognize her voice. I can hear the hum of traff ic in the background. Ive just come to the end of Highwoods Preserve, b ut I cant find your apartment complex. Ruby yells, to compensate for the backgr ound din.
138 You went too far, I explain. Turn around and co me back a few blocks. Ill come down to meet you at the gate. It will be easi er. I grab my sandals and rush over to the entrance gate. She pulls up in a shiny, red BM W, and I slide into the cool, tan leather seat on the passenger side. Ruby looks marvelous f or a woman of 60. She is thin and fit, and looks like she might be in her early 50s. Dres sed in a navy-blue pants outfit, with low pumps, gold earrings and a slim gold bracelet, she looks pulled-together and professional. She has a high-school education, and I like the fact that she worked her way up through the ranks of her company. She has d one well for herself, in my opinion. She used to be an avid roller-blader until a year a go, when she fell and damaged her knee. But even though she has sworn off roller-blades, sh e has managed to maintain her slim figure. I wonder if her husband of 6 months has co ntributed to her youthful outlook on life. He is 8 years her junior. Is she a prototyp e of a postmodern postmenopausal woman? I wonder. Is it cold in here, Ruby, I inquire, when we ente r the apartment. I cant seem to feel the air. Im getting major hot flashes and t he air doesnt seem to be helping. I let out a sigh. Its comfortable, she responds. Its probably n ot as cold as my place, and if I were working, you know, moving around, it might fee l warm for me too. I think that air isnt working properly, I grumbl e. Im going to call the maintenance manager tomorrow and have him take a lo ok at the unit. Im boiling. Without skipping a beat, I ask her, What do you th ink of my hair? I love it! Do you like the color? I ask, feeling uncomfortab le with the shade.
139 Do you happen to have any idea how beautiful your skin is? Ruby marvels. Taking a step closer, she peers intently at my skin Her eyes move slowly over the surface of my face. She is surveying my face with the same scrutiny I use when picking lint off my slacks with my aging eyes. No! I think I look bad, I howl, blushing. I tak e a step backward. Her directness has startled me. No, no, you have beautiful skin and it is just so clear and, and its gorgeous. And your hair looks great! she exclaims. Do you like my color? I ask again, looking for c onfirmation. He did it lighter? She squints, gazing at the to p of my freshly sheared blondishred head of hair. Yeah, lighter, but he didnt cover the gray. See! I let out a sigh. Running my fingers through my hair, I grab a large patch of ha ir on the right side of my head and pull it back, holding it tightly, in order to give her a chance to get a good look at the shock of unruly, pure white hair growing in on that side of my head. Okay, now I can see it, she confesses, but it lo oks great! He didnt leave it on long enough or something? she inquires. No, and I didnt want any red in it, I complain. I would rather have it darker or lighter than too red, because this red doesnt l ook good with my skin tone. He put in as much ash color as he could, because that color i s closer to my natural blond color, but it didnt cover the gray well at all. I sigh again He managed to cover some of it, but most of the gray didnt cover. Its resistant to c olor, I confide to her, repeating what my hair colorist told me earlier today.
140 I seem to have become more concerned about my looks since I have entered menopause, especially since my hair has grayed duri ng the last few years. And the hair colorists I have seen cant seem to replicate my na tural, ash-blonde hair. No one gets the color right. I think that its a farce to believe that synthetic color can match the beauty and shine of ones natural color. And lately Ive noticed that the texture of my hair has changed, along with the texture of my skin. Both h ave become dry and scaly. Ive developed skin-tags on my arms, a definite sign of old age. I like the cut, she interrupts. The cut is grea t! she declares, trying to smooth over my exasperation. Well, its all right, but I feel so uncomfortable. Im so fat! I have to lose weight and then maybe Ill feel better. I am too big, I confess. Pulling my arms wide apart to emphasize bigness, I roll my eyes and frown. I am carrying too much weight on my frame, and have had major problems with my weight s ince entering menopause. I have gained weight and cant seem to lose it. And I tir e out so easily these days. Sometimes Im just too tired to work out. No, no your hair looks great! she reassures me ag ain, deflecting my comments about my largeness. I like the way my hairdresser does mine, but when I fix it, everybody asks why I cant fix it the way he does! Ruby explains. He makes the ends spiky, but I can never do that. Your hair is low maintenance, isnt it? I ask.
141 I have it cut every four weeks, and every third c ut I have a perm. And when I first have the perm, when I wash it in the mornings I have to pull it out with the blow dryer. There is nothing low maintenance about this ! Ruby exclaims. Oh, it looks so nice. I say, complimenting her o n her nicely textured, shock of thick brown, short hair. But when I have a perm, I have to, ehsay, do you have a burner on? I smell something burning. Oh! No! I exclaim, running into the kitchen. I forgot! I left the burner on high, but luckily hadnt put a pan on. Thanks! I reply sheepishly. Ive noticed that I seem to be more careless and fo rgetful these days, especially since I have been going through menopause. But I h ave always been somewhat forgetful. Like the time I decided to sit down and write a let ter to a friend while waiting for the bathtub to fill, and the next thing I knew hot wate r was spilling all over the floor. Then there was the time I decided to boil water for tea, and walked away from the stove to work while the water came to a boil. The next thin g I heard was a loud popping sound, as the bottom of my stainless steel pan separated f rom the base, ruined by the heat. I think that one way that I experience menopause is w ith a shorter attention span. I seem to be more spaced-out than usual since Ive entered menopause. I wonder if this is just my way of entering into the realm of old age. I show her around the apartment and then I begin t o arrange the microphone near the table in the living room.
142 The chairs are kind of small, I say apologetical ly. You can tell Im a student. I am referring to the two miniature black folding chairs that I bought for $8 each, when I first moved to Tampa 5 years ago. Thats fine. I think they are darling. Your who le place is so homey, she says, graciously. I brought you a few snacks, so that you wont hur t your appetite, I explain looking at the huge spread of fruit and pastries I had laid out for her. We could cut the pastries in half, so you wont have to worry about your weight, I suggest. Place your teabag in your cup, and pour hot water from the gla ss pot onto it, I coach her. I wasnt sure what the glass thing on the stove w as for. She confides, referring to my glass teapot. Its really meant to steep loose tea, but Im usi ng it today to store our hot water. We start munching. How is Anna doing? Does she seem to be coping wi th things all right, or have you not had time to talk with her yet? Ruby asks. She is asking about one of the member of our Sunda y focus group who had recently gone through a divorce and was in the proc ess of selling her home. I havent really talked to anyone. I called all of you about the same time to make plans for our final interview. She is due to come out in a few weeks, so Ill find out then. And by the way, I have not made any changes since our focus group meetings, she explains. You were going to see a doctor, right? I ask.
143 Yes, and she didnt tell me to make any changes. I told her that there was some discussion [in the news reports] about taking nothi ng. You know, Ive been on Prempro since I was 50 and was just at the point where I wa s beginning to cut back when I saw an advertisement for the seminar on menopause and very shortly afterwards the articles came out about how bad HRT was for you. Prempro wa s probably the worst one and frankly all of my friends were taking something els e. By that time, I figured I had been on HRT for 7 years, so if they were going to kill m e, maybe I would have been dead, so I kept taking them. I wont say I didnt worry about it, but I didnt immediately make a change because I wasnt going to a doctor on a regu lar basis at that point. I told the doctor that I had cut my pills in half. In other w ords, Im taking one every other day. She was basically totally non-committal. And as fa r as the testing that went on [WHI] and everybody getting hyper about it, I dont think she was overenthusiastic about the testing results. She said it was very few people [ who showed symptoms] and they were bigger people that probably might have had more of that [heart problems] in their family. Yes, I heard that too, I say. Do you want some Splenda? I dont take sugar; I dont do sweets in my tea. But I eat plenty of sweets. I read that the women were heavy in that study to o, I explain. My bigger problem with this is what are they taki ng now? And are they going to come up with a study in 5 years to say that everyth ing women are taking now is not good for them because it is all new stuff? That is what happened to us after 5 or 10 years of taking the other (Prempro). I dont know how long i t has been out, she concludes. I dont know what women are taking now, I confes s.
144 I wish I had written it down, because I have one or two friends who have told me about it. In fact I have two of them who said thei r doctors gave them the same identical thing, but I cant remember what it was. I wish I had written it down. And that would be my other concern; the fact that I have been taking it now for about 10 years. That, I think, was the other thing that my doctor agreed wi th. If I were going to have a problem, it probably would have happened already. Ruby, since you brought up the focus groups, I wo nder, what did you think about me participating? You know, Im also going through menopause, and I talked a lot during our sessions. What did you think of that? I ask. Oh, I enjoyed it. I felt you were a part of the group. It was supposed to happen that way. I guess if you stop and thought about it if it was some 25-year old talking to us, that didnt have a clue as to what we were goin g through, I dont think it would have meant as much to us. I think the mere fact that yo u are going through it probably was more beneficial to the group. And if it helped you then good, or didnt help you, but just gave you a little more insight, but no, I cant ima gine doing that same thing with somebody who wouldnt have a clue as to what we wer e talking about. It seemed to work very well. Thats a good point. I interject, steering our conversation back to doctors. My other group talked about doctors. And one went to a young doctor who had no children, was probably 28-years old, and right out of med sch ool. She wasnt happy because she said how could anyone understand what it is like to go through menopause when she is so young?
145 Well, I have always felt that way about my gyneco logist, Ruby responds, and I felt that same way about my therapist, which I had a chance to use while I was going through my divorce. There was no way I would have gone to a male [therapist] to talk about my divorce after 38 years of marriage. I was devastated. But I couldnt imagine talking about this stuff to men either. They [male s] cant relate to each other, how could they possibly relate to me? So, I couldnt possibl y go to a male doctor. I dont think they could relate to my issues. I fiddle with the microphone and the backup tape r ecorder that I have placed on the window ledge near our table to ensure that both are working properly. So, you are still taking Prempro, every other day ? I continue. Yep, and Im on blood pressure medicine, which I had also cut back to every other day, she confides. I have two pills. Ther e is a water pill along with the Antenol, and I take one on one day, one the next day. And your doctor said it was okay to do this? I i nquire, worried that she might hurt herself. Yes, and maybe, I dont know, I guess Im one of those people who will get to a point in time when things kinda settle down and Il l try it for a week without taking either one of those to see if I can still maintain I interrupt her. Youre talking about your heart medicine? I dont think you should tinker with your medicine. Its really blood pressure medicine. She correc ts me.
146 I wouldnt play around with your medicine, I cau tion her. If you were to have a heart attack, that would be it. I read that wome n stand a lower chance of making it through their first heart attack. I always thought the blood pressure had been brou ght on by the accident and that when things settled down, it would go away. But it didnt. Once I stopped cold turkey, my pressure went up. Once I tried taking St. John s Wart and immediately got spots flying around and got dizzy within a day of taking that pill. I took it the next day with the same effect. It didnt last all day, but within an hour or two of taking the pill, I got dizzy. So I stopped taking it. I talked to somebody at a General Nutrition Center health store about a year ago about a diet pill. They had a thr ee-pill-a day routine that was supposed to be natural, and the clerk asked me if I had high blood pressure. And when I told him I did, he said I couldnt take that, and he gave me s omething else. Im not exactly sure what was in there, but there are some things in som e of that supposedly natural stuff that is not good for you. See, I dont buy the if its natural its good for you thing. Thats baloney. How do you feel? I inquire, referring to her eve ry-other-day Prempro routine. Ninety percent of the time I feel just fantastic. I do take a vitamin daily. But I am pretty active. I got a little bit concerned bec ause I was going home and sitting down at nights. But once in a while you need to do that I have a tendency to need to go, to run. And one of the things I have done is start a dance class. For years I took linedancing classes. But that was before my divorce. I would line dance two or three hours a week. When you hurt your knee, did you stop for a while ? I ask.
147 No, I stopped when I went through my divorce. It takes a ton of concentration for me to dance, and when I went through my divorce I couldnt concentrate. We turn our attention to her pictures. She has br ought me pictures of her mom, her husband, her two daughters, their husbands, her three grandchildren, her daughters dog, and pictures of her womens sorority group. Ruby, we have to talk about this picture, I say, pulling one out of the pile. Well, obviously, he is a good sport! This is your husband? I ask, looking at a pictur e of a man sitting on a couch wearing a womans housedress, smiling directly into the camera. I dont know why I made him do that. Yes I do! she corrects. I wanted to wash whatever he was wearing and I threw that dress at him and said, you will give me your clothes to wash. And he did. Of course it is big and full, otherwise it would never go around his rather supple body. Like I said, he is a good sport. Most men wouldnt let you remove their clothes so you could wash them rig ht there. I laugh. He is a good sport. Hey, Ruby, I start, Did you ever get that vagin al cream Stephanie talked about in our focus groups? No, not the cream, I got the suppository. And th e thing about it is my sex life isnt extremely active. It is not dead, but it is not two and three times a week. I remember that the suppository she brought to th e focus group looked pretty bigwas it? I ask. No, it was a tiny pill that goes onto the tip of an applicator. But the problem is to remember to use it.
148 Its estrogen, isnt it? I ask. And the purpo se of it is to plump up your vagina, right? I know that I mentioned this problem during our focus groups, but Im worried about the elasticity of my vagina. Since Ive gone through menopause, Im afraid that my vagina is shrinking, and I worry about vaginal d ryness too. I think you have to use it or lose it. My doctor gave me a prescription for a n estrogen ring, but I couldnt fill the prescription because the cost of it was over one hu ndred and thirty dollars. Too much for my meager budget. I think a months supply of this suppository woul d be worth $30, basically what the Prempro costs me on my health insurance program Ruby, Im surprised that you need a suppository f or vaginal dryness. You have been taking HRT and having sex on a regular basis. I would think that all of these things would serve to protect your vagina. I state, conf used. Well, to be real honest with you, my husband is h uge. Not long, but he is HUGE. Since I didnt have a problem having sex wit h my first husband, my ex, Im thinking my husbands size is part of the problem. Sometimes I wonder if big maybe isnt better. Isnt that what everybody says, bigg er is better, but sometimes it might not be. Ruby says, reflectively. I once dated a man who was huge, and I found havi ng sex with him was not comfortable, I confide. Well, this is what I maintain: Because Im not u sing it every day, I think my vagina is shrinking, he is huge, and then youve go t the dryness problem. So I have all three of those things working against me. Now, Il l be the first to admit that once everything is lubricated and moving along, then it s great, Ruby confides.
149 I wonder what would happen if you did take the su ppository. Its made to be used daily, right? I ask. Yeah, I probably would put it in during the night specifically, so that I was getting the full benefit of it while I was lying do wn. Although I never noticed anything drop out when I used it in the past. But what do the instructions say, I ask. Are y ou supposed to put it in every day or just as needed, before you have sex? Maybe it is to be used as needed. I think it is, she concludes. I still dont know why you need to use anything, because you have been on estrogen, even though you are through menopause. I m not on estrogen, and through menopause, so I understand why I need something, I explain. Im thinking my HRT wasnt a high dose. I dont know much about it, but Im not doing it every day, because it does hurt to hav e sex, Ruby says. I remember you told us that you made a big sacrif ice coming to our Sunday focus group sessions because that was your day to h ave whoopee, I explain. So, why dont you use a suppository Thursday, Friday, and S aturday, and see if it helps you with any discomfort you might feel? But even when I did use the suppository, when I w as doing that, I still used the K-Y Jelly on him as well as myself. You know, the thought just occurred to me that maybe someone will invent a suppository that you us e literally as you are having sex, something that can get inside of you as your partne r is thrusting inside and out. But, my husband and I are at a disadvantage too, because he is having a hard time getting an erection, and he has for years before I got with hi m. He uses a shot, Ruby explains.
150 You mean to get an erection? I ask. Yes, Ruby confirms. Does he take Viagra? I ask. Well, I dont know exactly what is in the shot. I think the shot is for people who are a little bit further gone than somebody that ta kes Viagra. Oh, really? I ask. Then, he has to plan sex? Yes, so between me having to worry about what I h ave to worry about and him having to worry about it, you talk about expensive and a pain in the you-know-what! she says, sounding exasperated. It takes a huge coordination, I conclude. Yes, says Ruby. Does he have to go to the doctor to get a shot? I ask. No, no, no. He gives it to himself, but the presc ription, the little bottle is worth $80. Im trying to think how much you get out of it. Th ats another thing that you have to figure out, whats not too much. Because too much and you are miserable, he is miserable for a good half a day, confides Ruby. Having an erection all of that time! I state, st artled. Yes, he will. And I remember one time when we fi rst got together and it happened and I thought, this is the nuttiest thing I have ever seen. We both laugh. Poor guy, was walking around with an erection, I laugh. Yeah, right, and it hurts. So you have to figure out what really works, says Ruby.
151 Does he give himself a shot in the penis? I ask. Yes, oh yes, she responds. That must hurt, I conclude. Im trying to think of what problem he was having but he finally went back to the doctor with it, and the doctor said that you do nt give yourself a shot in the same place all of the time. We both laugh. There is another thing I forgot to talk about. I f you give yourself a shot in the same spot all of the time, when he would do it, it was starting to turn, says Ruby. You mean his penis was turning? I ask, startled. Yes, the doctor then gave him some medicine that would be for something like bursitis. I think that was the kind of medicine. You mean your husband had bursitis of the penis? I chuckle. Yeah, we live and learn, she laughs. But we ha ve to make a concerted effort to have sex, it isnt all just spur-of-the-moment, I am totally in love with you, lets have sex for five minutes kind of thing. Its like you have to shower, get excited, and you know, like I said, we had to work on how it works. If he takes that shot and jumps right back in bed, sometimes it doesnt work. So its ea sier, we figured out if he takes the shot and then takes a shower, giving it time to work. A nd then its gonna last a while. He had been doing this for 10 years and the thing about it is you dont use it, you lose it, well, if you can believe what he said about being a bachelor since he was 25 years old, he said he was using it a bunch. A bunch! I think you would call him a ho if he were a girl. So, why this happened to him, I dont know. I suppose one good thing to come out of this is
152 that he makes very regular trips to see his urologi st. I think he is more regular going to see his urologist than he is going to the dentist, Ruby explains, reflectively. We talk on about other aches and pains and other t opics until finally I ask her if there is anything else she would like to tell me ab out her life in menopause. Life is good. Menopause just isnt a big part of it. It doesnt bother me. I got on track with whatever I did when I turned 50, and 10 years later Im not unhappy with it. So I continue to take it. But I modified it to sui t me. But life is good. Its been a long time coming.
153 Malikas Story There is this lady, a blond lady, driving a corvet te going real fast. She gets stopped by a blond policewoman, and the policewoman says, I need to see your drivers license, you were driving too fast. The driver lo oks in her purse and says, what does a license look like? And the policewoman says, it s that thing that has your face on it, your picture. You know, you look at it and there i s your face. So the driver says, okay, Ill look for it. She reaches into her purse and sees her compact. She opens it up and begins to fix her makeup when all of a sudden it da wns on her, Oh, there is my face. So she hands the compact to the policewoman and the po lice lady looks in the compact, rolls her eyes and says, Oh, for Gods sake! Why didnt you tell me you were a policewoman? The women in the room howl with laughter. Im blond, so I can tell this joke, Malika yells. We are meeting in the Interaction Lab in the Depart ment of Communication at the University of South Florida. We usually meet in th e departmental conference room, but the faculty are holding a meeting in that room toda y. Bunnie, one of my participants, is running late, and I am worried that she might accid entally barge into the faculty meeting, so I have left my other two participants in the lab with the tape recorder on while I run out to post a note on the conference door directing Bunnie to the proper room. I re-enter the lab, breathless.
154 Linda, Malika exclaims excitedly, I put a joke o n the recorder while you were gone! She giggles, her light blue eyes sparkling. Okay, I say between gulps of air, I look forward to hearing it when I transcribe the tape. But what were you saying about hormones and diabetes before I left the room? I was saying that they are all tied in together, a nd that women who have diabetes tend to get a big stomach. And doctors are tying d iabetes into starvation because when you have type 2 diabetes, as I have, youre hungry all of the time. And the reason why we gain weight is because were hungry. We dont g et enough insulin and our body tells our brain to eat, eat, and eat. And thats why we re always eating. And you know, the hormones are raging and all messed up because your e in menopause and theyre shutting down and so And that affects your insulin, too? I interrupt. Yeah, confirms Malika. Where did you get all of this information? I ask. That chat group. The people were talking about th is, says Malika. On-line? I inquire. Yeah, but its not really a chat group, its a lis t-serve, and they give you all of these sites on-line to go to. It just started abou t two weeks ago, and there are already too many people on it, because everybody is so excited. The thing is everybody is telling their stories right now, and Im finding out that s ome people can eat potatoes and some people cant. Some people will eat a baked potato and their sugar will go through the roof. And other people like me, I can eat a potato and it will make me go to sleep at night. But if I have it in the day, it doesnt bot her me. She diverts her attention to the
155 packet of Splenda she has just retrieved from the s pread of food that I arranged at the head of the conference table before our meeting. Oh, no! I meant to get cream but I grabbed a packet of sugar instead. Her brow creas es. She lets out a big sigh and gingerly lifts herself up out of her chair, using t he ornately decorated brown and silver walking cane she has brought with her today to stea dy her body. Slowly, she makes her way to the head of the table to retrieve cream for her coffee. When Malika returns to her seat with the cream, she and Alexandria arrange the ir chairs around the far corner of the large, square conference table. I situate myself a cross from them. Uh, this room is too large for us, I groan. I b ought a new back-up tape recorder. As you all know, Im a bit of a klutz wh en it comes to recording our conversations. We all laugh, knowingly, while I s how off the pop-up microphone feature of the miniature tape recorder that I recen tly purchased. Oh, is that cool, coos Malika, studying the micro phone closer. Yeah, it is neat, I agree. I scoot the back-up r ecorder closer to me so that Ill have an easier time reaching for it when its time to change the tape. Vina is probably not joining us todayright, Malika? I inquire. I dont think so, explains Malika. No problem, I state. Its rather standard to ha ve people drop out of research projects. That happens when you are working with l ive subjects. Yeah, she started a job today, Malika explains, m atter-of-factly. Malika and Vina are close friends and drove togethe r to our first focus group meeting. But I couldnt locate Vina when I called her home to confirm this one. I suspect that she didnt want to attend any more mee tings, because she wasnt invested in
156 the process. I recall that she didnt have too muc h to say during our first session. But I dont confide my thoughts to the women. Instead, I fiddle with the conference microphone that I have attached to my large, main t ape recorder, to ensure everything is properly secured. I press the rewind button on the recorder and play back a portion of our conversation to make sure the table microphone is p icking up our voices. When you first interviewed me, you said I had a so ft voice, announces Alexandria, watching me move through my microphone ritual. Yes, but your voice is picking up beautifully toda y, I conclude, after hearing a strong and steady stream of voices booming through the microphone on playback. I hope I can situate this table microphone closer to you two, I mumble, stretching my right arm as far as I can across the wide expanse t hat separates me from the two women. I struggle to give the microphone one final shove w ith the tips of my fingers, trying to push it further to the center of the table, but the microphone doesnt budge. Let me help you, laughs Malika. Using the handle of her walking cane, she quickly scoots the table microphone closer to her s ide of the table. Thanks! I exclaim. Now I can face all of you an d wont have to worry about our voices not recording or carrying well in this l arge room. I smile appreciatively. Malika nods her head in confirmation. Because she also attends my Sunday focus group sessions, she knows that Im technically challenged There have been times when I have forgotten to start the recorder after I have change d the tape. Im really happy both of you could join me today, I exclaim, smiling broadly. I originally scheduled six women into this session but three of them cancelled. Bunnie
157 should be here any minute, but I think we should ge t started without her. She can join our conversation when she arrives. Anyway, starts Malika, as I was saying, doctors are tying big stomachs to the fact that youre a diabetic. Uh huh, I state, wondering if what she is saying is true. Thats strange, states Alexandria. Yeah, I thought it was interesting too, confides Malika. When I was younger, I preferred eating fruits and vegetables, but latel y I want carbs. I want potatoes, potatoes, potatoes! She exclaims. I crave sugar these days, I interject. I never had much of a problem watching what I ate or watching my weight, and for most of m y adult life I have been a size 10 to 12. And when my 12s would become tight on me or if I started to spill into a size 14, then I would simply go on a diet and lose the few p ounds necessary in order to fit back into my 12s. But since Ive been going through men opause, I seem to crave sweets, and I have gained a huge amount of weight. Maybe I gaine d weight because of the stress of being in a Ph.D. program. I reflect on this idea for a moment. Its possible I gained so much weight because my thyroid closed down while I ve been in my Ph.D. program. But in either case, I seem to crave sugar. So you dont want salt, you want the sweetness of sugar? Malika asks. Yeah. When I was much younger my father went into renal failure. He was a kidney patient, on dialysis. Since he couldnt hav e salt, I also took table salt out of my diet. I did that in the late 1960s, so I guess I g et enough salt from the food I eat, even
158 though I dont eat processed foods. But my diet ha s gotten very poor since Ive been in the Ph.D. program. Where do you find iodine then? How does it fit in to your diet? asks Malika. Yeah, well, I know we need iodine, but I guess Im getting enough. I dont usually salt my food, but when I came down to Tampa I changed my diet. First of all I would come home late, around 9:30 or 10:00, from my evening classes. I would be hungry and very tired, so I started making quick me als late at night. I would boil up a batch of potatoes because they were so quick to mak e. I would slice the potatoes really thin so they would cook quickly, and then I would m ash them and slather on butter and salt. So I did start to eat table salt once I move d to Tampa. Im allergic to it, states Malika. If I have sa lt, my face will blow up like a balloon. She laughs. I use sea salt, interjects Alexandria. Since my husband and I have heart conditions, were both recovering heart patients, w e try to stay away from too much salt. I do use a little sea salt when Im cooking, but I never add salt at the table, she confides. The door to the lab swings open, and Bunnie bursts into the room carrying a large blue thermos and a beige wicker basket covered in a lace cloth napkin. Hi everybody! she smiles at the women seated at t he far end of the room, sets the basket and thermos down at the head of the tabl e, and quickly begins to arrange small, bite-sized Persian sweets onto a plate. I recogniz e the sweets as the same kind I had when I visited her home for our first interview. T hey are made from a finely ground paste of chick peas or pistachio nuts mixed with ho ney, and are very good. She bustles around the table, pouring each of us a steaming cup of Persian tea from the thermos. She
159 has brought along pictures of her dining room table arranged for their Persian New Year and proudly shows them to us. Malika has also brou ght pictures of herself when she was younger, and passes them around the table. Malika, you are gorgeous in that picture, I excla im. I know it, she admits, letting out a sigh and we just tell everyone that underneath our scarves we are all Miss America! S he smiles broadly. She is referring to the lacy hejab she has tightly wrapped around her head to cover her blond hair. And in the tradition of her Muslim faith, she has also covered her body in cloth from head to toe. Today she is wearing a per iwinkle blue long-sleeved blouse with matching pants, and suede-looking black flat shoes. Malika, when you hear that word menopause what c omes to mind? I ask. I see my mother. The house is freezing cold and s hes beet red. Beet red. Not sweating, but just very red, sitting in front of th e television knitting, watching a program, rocking, with a fan running on her. And do you see that happening to you? I ask, wond ering how she feels about being so close to menopause. Im waiting for that to happen, she giggles. An ything else, to me isnt menopause. Thats why I have been blowing off my r ecent symptoms. I thought if you didnt have the house set at 60 with an oscillating fan going, then youre not in menopause. What symptoms are you getting? I ask.
160 Im hot flashing, and I guess I have been right al ong, but I just thought it was from my high blood pressure. And I get the weepies and this has been going on for about two years periodically. I thought I had PMS, or I thought I was just depressed. What are you doing about it? I ask. Absolutely nothing. But people tell me that Im a hypochondriac or something like that, Malika confides. Who tells you that? I ask, surprised at her comme nt, even though I know that its not unusual to hear that women are not taken s eriously. All the males in my family. And the females in my family are much older than me, and they seem to have forgotten that they went through this. And I remember my mother getting hot flashes so badly that for almost a two-year period she didnt go out of the house. She wouldnt leave the house. She had t hat air conditioner cranked down low and she would sit in front of it. She sounds like me! I laugh. I keep the air in m y apartment at 65, sometimes lower when I have a really intense hot flash. It used to be freezing in our house, Malika conti nues. My mom would have that air conditioner turned down and it was freezin g, just freezing, in our house. It was awful. And she would sit in front of the televisio n crocheting. I think Watergate was going on at the time. My mom used to say she was c rocheting Watergate afghans! Malika chuckles at the memory. Do you do that now? I ask. No. What do you do? Do you need to have the air on to o? I ask.
161 I wear very few clothes in the house. Maybe Ill wear a tank top dress. Oh, I do something similar, I confess. Ill wea r shorts. And flip-flops, she continues. And Ill wear my hair up in a ponytail so its off my neck. Thats why I dont have short hair. Its cooler to have long hair because then I can put it up on top of my head. And I have either the air or the heat on, because I like the house at a certain temperature. So, youre not taking anything? I ask. No, but Im telling you Im going to go and ask fo r some of these, what were they called? Somebody talked about a vial that you insert into your vagina. I wrote it down. Malika rummages through her purse looking f or the small, spiral notebook that she has been carrying to our meetings. Its a suppository, I interject. Yeah, a suppository, she confirms. Im going to ask my doctor about it because I do have dryness, and You mean vaginal dryness, right? I interrupt. Yeah, vaginal dryness, she agrees. Stephanie, from our Sunday focus groups, was talki ng about that suppository, I state, remembering the conversation we had in our l ast Sunday group about vaginal dryness. Yes, and normally I wouldnt talk about this in fr ont of people because Im really shy. But the other ladies [in the other foc us group] did talk about this, so I decided it was okay to talk about this.
162 Thats okay, Malika, I state, if it bothers you, its okay if you dont want to talk about this. It helps you open up, interjects Alexandria. It does, it does, confirms Malika. Malika, how do you feel about going through menopa use? I ask. Well, a lot of the ladies in the other group said that they were going off or whatever, she explains. But what do you think, Malika? I inquire again. I am going to check into it. I am getting ready t o call my doctor and ask. Because I was on the patch, and I would fly to the states to see my doctor every three months, you see. Oh, you are talking about when you lived overseas, right? I ask. Yes. And one day I came in to renew my prescripti on and one of the things I was going to renew was my estradiol patch, but the doctor refused. She said, Were not doing that anymore. Im taking all of my patients off of it. And that was just it. But Im telling you as soon as she took me off of it my ski n started drying up terribly. Within two weeks I noticed a lot of wrinkles around my eyes. My skin started to look like lizard skin, you know, very dry. And I had to start using K-Y Jelly, she explains. Is your vagina dry? I ask. And is that why you need a vaginal lubricant? Yes, and I havent had any [sex] for awhile, but I want to get ready because Im healthy and you know my husband will be coming back this summer, and I want to have some fun. I also want to soften my skin. I find t hat now that Im healthy, after all of my surgeries and my liver is growing back, that I seem to be improving. One of the things I
163 want to improve are my hormone levels. I also, you know, the pheromones, I also felt like when I was on HRT that I seemed to be exuding pheromones, I guess, for being a vibrant woman or something. Youre going to laugh, but one of the changes Ive noticed about menopause right now, now that Im an overweig ht, elderly woman. Oh, youre still young, I interrupt her. Youre only 46 years old. Yeah, but, I look older and because Ive been sick people dont tend to look at me, I mean younger men dont look at me. But befor e, when I was younger, I could tell the difference. I could walk down the street and w alk by men and they would look at me, and I could feel a vibe and they could feel a vibe coming from me. It was a pheromone. I know it was, she confides. And how has that changed? I ask. Theres nothing. I am not interested in my husban d. So, you mean your sex drive has changed? I ask. Its gone. Not there. Not interested. Alexandria, you were talking about the same issue earlier. I wonder if maybe this issue isnt related to medicine alone. Maybe its partly from menopause, I dont know. I reflect on the conversations I had with o ther participants about their lack of sex drive. I couldnt care less either, interjects Bunnie. And if I recall our conversation, Bunnie, you said your sex drive changed before you went on the Progesterone cream, right? I ask. Even now! she exclaims. I think it has to do wi th my mental state. I mean Im not interested. Its nice, sometimes. Great! It s wonderful to share affection and
164 tenderness and all of that with my husband. But mo st of the time Im so tired because I have so many different things I need to do. So, th ats the last thing I want to bother about, you know. At the end of the day I just want to rest. I noticed that my sex drive has changed too, I re mark. It did decrease, but it seemed to come back once I started HRT, I explain, uncertain if there might be a connection between the two events. Exactly, agrees Bunnie. One day I realized that I just didnt feel as horn y as I used to, I explain. Thats how I experienced it. You know how you always feel your body. Yeah, agrees Bunnie. The women laugh. Yeah, me too! exclaims Malika. And it dawned on me that when I went on HRT I bega n to feel revved up again, I confide, feeling confirmed as a result of the wom ens level of agreement on this issue. Yeah, I agree, says Bunnie. But Bunnie, you have young children. Youre runni ng all of the time, I conclude, placing her lack of libido into a differe nt category than mine. Yes, my husband calls me an old lady! she confess es. Your husband calls you that! I exclaim. And you re so young, youre in your thirties. I remember being in my thirties, interjects Alexa ndria. Yeah, me too. A long time ago! I chuckle, think ing back to the pretty, young woman I used to be at that age.
165 The ladies laugh in agreement. So tell me again, Malika, how you feel about HRT? I ask. Well, Im confused right now. Now, lets see. Is the vaginal pill, the suppository, is that also an HRT? She asks. Thats estrogen, I explain. Thats estrogen, she repeats. Thats the safe t hing to take, right? The thing thats not safe is the Premarin, the pills you can take, right? She looks in my direction, waiting for confirmation. Well, I dont know what is safe, I state. Im n ot a doctor. I agree with you, concurs Bunnie, nodding her hea d in my direction. Doctors dont know, says Malika. But Im confus ed because my doctor pulled me off the patch. I dont know what the doctors do now, but we used to put the patch on one ovary in the front, and then the next month put it on the other ovary. Are you talking about the pellets you mentioned to me in an earlier conversation? I ask. No. No. The pellets were put on the side. As a m atter of fact this whole section here is filled with scar tissue on both sides of my hips. She points to her side. Wow! I exclaim. And the doctor really sliced in to your skin to put those pellets inside of you? I ask. Yes, about a fourth of an inch wide and deep and h e would put in a tiny pellet, confirms Malika. Thats crazy! howls Bunnie, surprised to hear thi s information. The pellets were the size of a Saccharin tablet, Malika continues.
166 And then you went onto the patch? I ask. What w as the name of the patch? Estradiol. I would put one on my hip. It was like a sticker? asks Bunnie. Yeah, it was clear, and you peeled off a clear thi ng that was sticky and you put it on. I had a little problem because the adhesive wo uld cause my skin to turn pink. Malika explains. And that is what I used for year s and years. I dont trust anything that is attached to my body , explains Bunnie. Because if it doesnt work, Im stuck with it. I feel very un comfortable about that. But the cream is working for me now. I do not trust artificial thin gs. But at the same time, how do I know that the cream is really safe. There isnt any lon g-term research done. But you feel good? I ask. I feel great. If it wasnt for the cream I couldn t do the things I do, Bunnie explains. I felt better on the pellets, Malika interjects. And when they first switched me over to the patch the decrease in estrogen was so m uch, I started crying and crying and asking him to please put me back on the pellets. B ut he said, I am not going to put you back on the pellets. I even called up the company in California to find out where I could go to another doctor to get them. They told me to write a letter to Washington, because theyre pulling our grant money and not letting us continue our research on the pellets. And I have all of that information. I can pull tha t out, if you need it for your records, explains Malika. No, thats not necessary, Malika, I said. Alexa ndria, what do you think about all of this? I ask, thinking that Alexandria has b een quite silent for a while.
167 Well, Im learning, Im learning. I feel like I d ont have much to contribute to our conversation, she confides. Not true, Alexandria! I state, hoping to encourag e her. You do contribute to our conversation. Yeah, confirms Malika. Absolutely, I state. But when Malika talked about those pellets, well, I have never heard about them before, Alexandria confides. Thats a new one to me. Neither have I, I explain. Its all so foreign to me, she continues. Be glad you missed it, says Malika. Im glad I did. She states. Alexandria, tell me how your life changed now that youre through menopause, I ask. Well, it seems like everything is going along pret ty well. Im 69 years old, and now that Im through menopause, I personally feel b etter. Im not worried about those things, she explains. What do you mean by those things, I ask. I mean the change of life and menopause. Thats a ll behind me now. I went through that stage, and now its all behind me. Bu t unfortunately, other health problems have developed that may have nothing to do with men opause. Im always aware of how important it is to take care of yourself, but I che at. Did you ever smoke cigarettes? asks Malika.
168 Yes, but I quit going on 18 years, Alexandria exp lains. What were you going to say about the changes you s ee in yourself now that youre post-menopausal? I ask. In fact, if you w anted to advise these two younger women on some of the changes they might expect to e xperience, what would you tell them? I ask. Knowing what I have learned in the recent past and in the present time, I would say certainly be very careful of what youre going to take and what the doctors going to prescribe. And research it! This is making me thi nk, believe it or not, of all of the heart medications, the beta-blockers, and the low blood p ressure and the Coumidin, a blood thinner, that Ive taken. Im just now thinking th at maybe I should see a holistic doctor. Im taking a lot of stuff, a lot of medication. An d that worries me. It gives me more concern. I read something recently, it had somethi ng to do with medication. Lets see, Im not too clear on this, but it had something to do with heart medication and something to do with womens health issues and menopause. I saw something that clashed, but I cant seem to remember what it was. Ill have to g o back and read about it. So, was it something you saw in an article on the Womens Health Initiative that made you think about some of the medicines youre t aking, I ask, wondering if this was the connection she was trying to make. Yeah, but I read so many different things and my e yes have been bothering me lately, she confides. Thats all right, Alexandria, I state. If you w ere to advise these young women, what would you say to them?
169 I would say to think twice about whatever the doct or says. They say, Oh, we have something new and its this and its that. L ook what they said about Premarin and estrogen and look whats happened. Now we know tha t its not the best thing for us. And that horse urine business that was mentioned ea rlier brought to mind a woman that I knew who was large-framed. She was a lovely woman inside and out. She was always concerned about her weight. And she went to some d octor and he gave her something that had horses urine in it. I think her husband was after her about her weight. And so she was on this pill or medication that had horses urine in it, and one day she was on the phone and she dropped dead. We gasp. And everybody was saying that it was that horse ur ine medication, that pill that she was on, that caused this to happen. So, there again was something the doctor prescribed and they probably didnt know what the o utcome was going to be. But what were the statistics? How long had they studied it before they came up with this pill? Its crazy, interjects Bunnie. I say to forget it, continues Alexandria. Since I started showing symptoms, being perimenopa usal, I started going in another direction, an alternative direction. Ive discovered many things, confides Bunnie. The major picture that I see is with our bodies is that its not just about menopause, its not a one-time thing, and then anot her thing. Its all related. The menopause thing is related to, for example, the hor mones affect the adrenals and the adrenals affect the thyroid. The thyroid affects e verything else. So, its all related. And its not just our physical body, its our mental bo dy, its our spiritual body too. Our
170 spiritual body gives strength to our mental and our physical body. Our body is like a pharmacy. If we try to find a way to balance our b ody in all aspects of our lives, then we have a better chance of having better health. If w e educate ourselves in nutrition, in exercise, in different alternatives for taking care of our health, like acupuncture or energy work, or different and new medications that might s ave our lives, because all medications are not bad, then we can create a balance in our li ves. Im just beginning to go through pre-menopause. Im looking at everybody else down the road and I can see what everybody else is going through. And I think that the advice that Alexandria gave is very true and significant. I think that is something to live by. And I think that if we dont look just one way but look at all the other ways, then w e have a better chance of making better decisions. In my case, I have many years to look f orward to. Not only that, Im thinking way down the road, because my husband is quite a bi t older than I am. And hes twice my size. He has big, thick bones. I will have to take care of him when he gets older. Ill be in the prime of my life. And Im going to have two kids, maybe three to take care of along with a business to look after. So, what am I going to do? Im going to try to take good care of myself. What do these changes in my b ody mean? Well, they trigger thoughts, questions about my life. What are we goi ng to do? I was very sad when I started noticing that I was having symptoms of meno pause. But I expected it. It was simple logic because I got my period when I was you ng, so it makes sense that I would go through menopause while I was young. Malika, has your life view changed as a result of being menopausal? I ask. Yes, its starting. But its a shock. I remember when I was a teenager the ladies in my neighborhood would complain about bloating an d hot flashes.
171 These were older women? I ask. Yes, and they always complained about salt. And t hey would take some kind of pill, explains Malika. Probably a diuretic, interjects Bunnie. You mig ht as well drink pineapple juice, its the perfect diuretic. A lot of my friends are still having children, ex plains Malika. Theyre in their 40s, but I cant have any children. So when I go t o parties and there are all of these people with children, the kids start to get on my n erves. But my own grandchildren live out-of-state, and I dont see them. So, Im starti ng to gravitate to even older women, women without children. And thats a big change fo r me. Its only been in the last six months that I have realized that I can no longer ha ve children. Thats it. Weve been trying for 10 years, and its not going to happen. I am not going to have the little girl that I have always wanted. I lost a little girl, confides Alexandria in a so ft voice, in the eighth month. So I can relate to you, Malika. My heart, my heart. Malika begins to sob softly. Tears spill down her cheeks. But you will find some kind of peace with yourself on this, Alexandria coos softly, stroking Malikas back to comfort her. I know, Malika says between sobs. I know. Its okay, its okay, says Alexandria gently, we have to let some of these emotions out sometimes. And we all go through them . She continues to stroke Malikas back. Its okay to cry, Malika, I say softly.
172 Yeah, we all feel pain sometimes. And we hurt, e xplains Alexandria. Malika, I say gently, can you tell us what you a re thinking about? For the daughter I lost, and for the ones Ill nev er have. For the ones I could have had had I stopped to smell the roses. Her sh oulders heave up and down, and she lets out a big sigh, wiping her eyes with a napkin. You are so busy with your career right now, Linda. Dont push too hard. Dont forg et to worry as much about your personal life. Because otherwise, Linda, youre go ing to end up sitting there saying, whoa, here I am by myself. The room is silent except for Malikas gentle, spor adic sobs.
173 CHAPTER FOUR ANALYSIS OF THE WOMENS STORIES When I was a young woman, I heard the term menopau se bantered around in family conversations. It was used to refer loosely to a womans change-of-life. But I never knew exactly what change-of-life meant, exc ept that it was when women stopped menstruating. The women in my study also talked ab out change in terms of bodies that no longer menstruated. In addition to this, though they used the term change when discussing a myriad of personal issues related to c hildren, their bodies, aging, sex, and men. They also talked about changing when they dis cussed symptoms of menopause, finding a doctor, and making decisions related to t heir future health as a result of the findings of the Womens Health Initiative (WHI). A nd so this chapter is about change from an applied perspective in terms of how the wom en coped with and made sense of menopause, but also from a theoretical perspective on the underpinnings of the womens sensemaking on menopause. I begin my analysis by t racing the womens journeys through menopause, using information taken from the transcripts of our interviews and focus group discussions, from the time they first r ealized they were approaching menopause through to their current sensemaking on m enopause and the WHI. Blended within the womens journeys through menopause is my commentary on their sensemaking in terms of Emily Martins medical meta phors and Michel Foucaults ideas on discursive formations. Then I discuss the Women s Health Initiative and change, and
174 finally, I draw some conclusions and suggestions fo r the future regarding womens framing and sensemaking of their bodies-in-menopaus e. The Journey Some of the women didnt realize they were approac hing menopause. They felt they had no apparent outward symptoms of menopause, but were told to begin treatment with hormone replacement therapy (HRT) by their phy sicians. Annas experience is a good example of this: I dont think that I had eve n recognized it until I was at one of my yearly check-ups. My doctor said to me, you ought to be on estrogen. I suppose I was in my late forties and my periods had already start ed to change a bit. They had not stopped, but were just changing. Ruby had a simil ar discussion with her doctor: I had been taking [birth control] pills for 30 years and at that point in time the doctor said, okay, well stop them. I wasnt a smoker so that wasnt an issue, but she says, lets stop them. Im trying to think exactly what made me, other than my age, and thats probably what it was for her, and she said, well l ets just stop it and go on hormones. Rubys doctor told her she ought to stay on HRT for the rest of her life, which, she explains, was kind of a shock to me. I said, you have to do that? Her theory was that it just keeps you more female, more soft, and helps you stay lubricated. Bunnie, in contrast to Anna and Ruby, went to see h er doctor complaining of a variety of symptoms. She was tired all of the time felt sad and would cry for no reason. She used to awaken in the middle of the night soake d, and wasnt sleeping well. She also had hot flashes and vaginal dryness. When she visi ted her doctor, she said, he looked at my body and said, youre keeping weight in the mid dle section of your body, because your estrogen is too big. I was high on estrogen dominant. I was estrogen dominant.
175 Her doctor gave her a saliva test to confirm his di agnosis, and then suggested she use a natural progesterone cream to help alleviate her sy mptoms. Listening to the womens stories about how they cam e to realize their bodies were approaching menopause reminds me of Emily Martins (2001) discussion of medical metaphors that circulate in our society about women s bodies. Martin suggests that womens bodies have been constructed within prevail ing, dominant cultural ideologies that serve to inform the way physicians and women t hink and talk about a womans body. Martin says that even though traditionally we think of science and medicine as operating outside cultural assumptions, because their focus i s an objective search for the truth about nature, she postulates that science and medic ine are a hegemonic system operating within our society, supportive of the interests of the dominant class. When women internalize these assumptions, the assumptions beco me their common-sense ways of making sense of their bodies. The metaphor that ap pears to ground the womens stories is the body-as-a-signal-response system According to Martin, this metaphor is the most prevalent model found in current medical texts, so it is the metaphor that most physicians use to frame their understanding of womens bodies. Martin provides examples of this metaphor, such as, the hypothalamus receives signa ls from almost all possible sources in the nervous system and as a result of strong stim ulation of FSH, a number of follicles respond with growth (Martin, 2001, p. 40). But, M artin explains, the brain-hormoneovary signal-response system is usually described a s a hierarchical informationtransmitting communication system with directions c oming from one dominant element, the hypothalamus. This hierarchical communication system is similar to the dominant form of organization in our society. She says that once we have this hierarchical,
176 information-transmitting imagery in place, then any failure of the signal-response hierarchical structure for reproduction, such as me nopause, forces us to associate negative imagery with the cause of the breakdown of the system of authority. Therefore, even though we have negative stereotypes of aging w omen in our society, this hierarchical model helps to account for some of the negative imagery associated with menopause in our society. She explains that within this model, the cause of ovarian decline is the decreasing ability of the aging o varies to respond to pituitary gonadotropins. At every point in the system, func tions fail and falter. Follicles fail to muster the strength to reach ovulation (Martin, 2 001, p. 42). And so, with menopause, we have a language and a fr ame of reference used by physicians that describes a womens body as a syste m in decline. Anna and Ruby, without experiencing any apparent symptoms, were to ld by their physicians to start taking HRT because they were anticipating that the womens bodies were starting to fail. Bunnies physician, who also framed her body in ter ms of the signal-response system metaphor, described her body as beginning to fail b ecause it had begun to lose its balance of estrogen and progesterone production. When the women I interviewed spoke about HRT, I als o heard implicit within their talk the body-as-a-signal-response metaphor, in that the women envisioned their bodies starting to fail and in a state of decline. For example, Anna wondered aloud, are we silly for not taking [HRT]? Are we going to end up all wrinkly if we do live to be 90? But dont we have medication for our bones and bett er studies to assess whether we have osteoporosis. If we are smart, we are keeping trac k of our heart and we wont get heart disease. Malika spoke of bodily improvements she hoped to make with HRT. One of
177 the things I want to improve are my hormone levels. I also, you know, the pheromones, I also felt like when I was on HRT that I seemed to b e exuding pheromones, I guess for being a vibrant woman or something. And Bunnie sp oke about the benefits of taking the progesterone cream that she purchases at her local health food store. She explained, based on the imbalance that you have with your hor mones [the doctor] will determine how much you need of the cream. In my case, I used one full pump in the morning and one full pump at night. But since I now feel balan ced, I am using only one full pump of progesterone cream at night. . . Underlying Ann as comments is the notion of her body in decline, with her concern over developing wrinkl es, a traditional symptom of an aging body, or developing osteoporosis or heart disease a s a result of the absence of HRT. Malika wanted to balance her hormone levels so that she could retain the pheromones she felt she exuded when her estrogen production was in balance. Bunnie also spoke in terms of her body out of balance. She reasoned that by a dding progesterone cream daily, she would be able to restore her hormonal balance. Some of the women were concerned about the health o f their vaginas and spoke in terms of their bodies failing to produce enough est rogen to ensure a healthy vagina. For example, the women had the following conversation: Linda: Im not taking HRT anymore, but I know that estrogen keeps your vagina supple, and thats another thing that worries me. Im scared that my vagina might shrivel up, because Im not sexually active now and I think that you have to use it or lose it! Stephanie: You would feel very uncomfortable if it dried up. I had a friend who was about 71 or 72. Her vagina was like wood. She went in for an exam and the
178 doctor couldnt get the speculum in, they couldnt get anything in there, so she had to soften up, because they couldnt get in ther e to do what they had to do. Ruby: I take Prempro, and I am dry, very, very, dr y. So I cant imagine what I would be without my HRT. . My doctor says it ke eps me lubricated. Stephanie: It does, that is what I have heard. Ruby: But I use it and it doesnt do any good. I say it doesnt. I mean it is still very painful . I went for a long time not doing it. And the first time I thought I was just gonna die. It was no fun. Linda: Even though you were on estrogen? Stephanie: But the thing is, you may still need th e Astroglide or whatever. I think its a both thing. Because, we dont have al l of these eggs that are wanting sperm, and were not like trying to pull them in th ere. Its a different thing. But the doctor told me about Astroglide and thats why I got it. Otherwise, I would be using K-Y. Its superior. Linda: Im confused, and I certainly dont know pe rsonally what to do, so Im doing nothing now. And in the long term I dont kn ow what that will do to my body or my bones, and I am very concerned about my vagina for the future. Im telling you, one day Im going to have sex again! Stephanie: You have hope! You can have sex by you rself, you know. Malika: We should all pitch in and buy her a good old fashioned you-know-what. You know, an electric little thing! Stephanie framed her ideas within the body-as-signa l-response system metaphor, suggesting that her ovaries were no longer getting a signal to attract sperm. Her ovaries
179 were, therefore, failing to do their job of attract ing sperm. Ruby and Linda also spoke in terms of failure, but they spoke of bodies-as-failed-production in that their bodies were not producing enough estrogen to protect their vagi nas from drying up without outside assistance, either from a penis, a vaginal lubrican t, or a vibrator. When I first learned from the health center doctor that I was in menopause, he told me that my body was estrogen-deficient, and that I needed to take HRT in order to control my symptoms. I remember feeling betrayed b y my body, mystified as to how it could be that I now had to ingest a pill for the re st of my life in order to replenish something that my body had stopped producing as a r esult of a natural process. I had tried my best to take good care of my body over the years, but felt as if my efforts had been in vain. Martin (2001) argues that because the central purpo se of a womans body has been constructed in medical terms as a baby-produci ng vessel, then the monthly menstruation is seen as a failed attempt for our bo dy to produce a baby. Menstruation is a failed production. Along this same reasoning the n, menopause is the ultimate failure of a womans body. The women framed their bodies in terms of this fail ed production metaphor when they talked about menopause and children. For exam ple, Malika lamented her sense of loss over not being able to have more children as a result of menopause. She broke down and sobbed while explaining her situation: A lot of my friends are still having children. The yre in their 40s, but I cant have any children. So when I go to parties and there ar e all of these people with children, the kids start to get on my nerves. But my own grandchildren live out-
180 of-state, and I dont see them. So, Im starting t o gravitate to even older women, women without children. Its only been in the last six months that I have realized that I can no longer have children. Thats it. We ve been trying for 10 years, and its not going to happen. I am not going to have t he little girl that I have always wanted. Jane, who at the age of 39 found herself suddenly t hrown into menopause due to the onset of an autoimmune disease, gave a positive spi n to her sense of loss: I couldnt have any more kids. And that was probab ly the number one psychological thing that was the worst, not being a ble to have another one. And its hard because my son is getting to the age wher e he is asking things like that. He will say, so and so has a sister and brother, and Why dont I have a sister or brother? I knew these questions would come one da y. I just didnt know that they would come this soon . Well, you try to lo ok at the positive and thank God that you have one. But your feelings do get hurt e very once in a while, even as strong as you want to be. Anna, on the other hand, who identified herself as first and foremost a mom, explained her loss in terms of the empty nest syndrome, as he r children prepared to leave home: I think of myself as a mother. I guess that is bec ause being a mom has taken up so much of my life. Im at the end of that now, be cause my kids are able to take care of themselves now. One of my kids is 25 and t he other is 19. My youngest is ready to go off to college next year. So she wi ll still be a part of my life for a while. My son is off in Orlando, and I miss him, b ut we see him quite a bit, so that is working out. . Of course my husband and I were going through
181 difficulties then too, so, ah, I was justprobably menopause was also a part of it. I was very weepy when my son left. I was busy work ing, but the menopause, the emotions and all of that may have been a part of it too. Stephanie was typical of the older, single woman w ho decided not to have children earlier in her life, either for financial, work, or relationship reasons, and now finds that its too late. She explained, I always felt that I would have to be able to afford a nanny and that my kids would have to go to privat e school. And if I couldnt do that then I just didnt want to have children. When I asked Stephanie if she felt like she couldnt afford to have children, she responded wit h a resounding, Oh, yeah. Absolutely! As she and I were childless, older, s ingle women, I shared my personal observations with her: Isnt that interesting! I too have always felt tha t I couldnt afford to bring a child into the world because I was too poor. But then yo u look around and see other people having children and living paycheck to paych eck, and they seem to have managed. So, did you ever wonder about that contra diction? That you thought, that I thought how could I bring a child into this world when Im not financially set? Stephanie discussed her vision of the right way to bring up a child: Well, for me it would definitely be having a partne r to share the responsibilities, and Ive never thought of any other kind of relatio nship besides being in a married relationship. I dont necessarily have to be marri ed to have children, but I never thought I would be in an unmarried relationship wit h children. Thats not me.
182 All of the women in the study took some form of HRT either in synthetic form or in a form considered natural, in an attempt to mana ge or eliminate their symptoms of menopause. Most of the women tried more than one t ype of HRT formula. For example, Stephanies gynecologist prescribed Ortho-Prefest, a low dose hormone, for her intractable vulva itching. Anna took Prempro for a few years, switched to a two-pill regime of estrogen and Prometrium and then to the V ivelle-dot. When she began to feel weepy, her physician suggested that she begin takin g an antidepressant. Jane and Ruby used Prempro. But when Janes uncomfortable sympto ms continued, she was given Cenestin, in addition to a compounded HRT formula p lus an antidepressant. Alexandria was also on a two-pill HRT regime. And I tried one HRT formula after the other, looking for something to ease my severe hot flashes and wee piness. I tried Prempro, Premarin with Provera, Activella, and Mircette. With each o f these medications, I developed neurological symptoms, and each was unsuccessful in easing my symptoms. I was eventually placed on the Climara patch plus Prometr ium. This combination HRT helped to ease my symptoms, but did not eliminate them. T he gynecologist I was seeing prescribed different dosages of Climara, so that I could regulate my dosage according to my symptoms. For a while my bathroom cabinet resem bled a pharmacy, as the shelves were stacked high with dosages of Climara ranging f rom .025 mg. to 1.00 mg. in addition to boxed samples of an antidepressant prescribed fo r my weepiness and samples of Ambien, a sleep aid. I never took the antidepressa nt or the sleep aid, but used the various dosages of Climara, depending on the severity of my symptoms. When thinking about the vast number of hormone repl acement and other menopausal medications that were prescribed to the women, I am surprised at how easy it
183 has become to think of a womans body as something to manipulate and control. Martin (2001) suggests a reason for the propensity for us to try to control our bodies. She explains that in our modern society, it is possible for a woman to remain on some form of hormone therapy from the time she beings menstruati ng until she completes menopause. For example, menstruating women as young as 14 begi n taking birth control pills, and potentially may stay on them until they are ready f or menopause, except for respites for baby-producing. As a result, some women may never experience their adult bodies in their natural form, without exogenous hormones. An d they may never experience their bodies other than as something to manipulate and co ntrol. This idea of the manipulation and control of a womans body may inform the way a woman frames her own thinking on her body in general, and more specifically on HRT a nd menopause. For example, if a woman becomes accustomed to treating her body as so mething to manipulate and control, similar to the way we control a machine, t his might set the stage for her to think and talk about her body as an object, or a vessel t o top-off or fill-up with fluids such as estrogen and progesterone. Our propensity to manipulate and control our bodies also brings to mind Martins discussion of the body-as-machine metaphor. This metaphor was used first in the seventeenth and eighteenth centuries in France to d iscuss the birthing process, and continues to frame medical practices today. A woma ns uterus is described as a mechanical pump able to expel a fetus. Male doctor s, playing the roles of mechanics or technicians, acted upon womens bodies, as machines in order to fix them. Over time, mens hands, and man-made mechanical tools, such as forceps and slings, came to replace the hands of midwives in removing babies fr om womens uteruses. With this
184 body-as-machine metaphor, the uterus was considered to act and contract independently of a womans will. Jane, talking in terms of the body-as-a-machine met aphor, tried to determine how much estrogen she needed to use in order top off her levels to keep her body functioning at its peak shape. She asked her docto rs to take a baseline test of her hormone levels, but had a difficult time finding a doctor to help her. She explains: You dont have a baseline on what to go off of. . All of the doctors Ive been seeing, theyll put you on something, but they don t know what your level is. No one ever wants to test me. And they all tell me, well we dont know what your levels were before. And Im like, well isnt the re some baseline? I mean, when I first got diagnosed, and basically now, when you look at me on an ultrasound, I have no eggs in my ovaries. Theyre totally gone. The body-as-machine metaphor also has broader impli cations for womens identities. Martin (2001, pp. 19-20) suggests that when we assume that our bodies can be fixed by mechanical manipulation, it encourages us to ignore other aspects of our selves, such as our relationships with others and our emoti ons. It also encourages women to see themselves as fragmented body parts rather than as whole people. Our cultural acceptance of the body-as-machine metaphor encourag es us to continue to impose emerging technologies upon womens bodies, blending our desire to dominate and control the environment and women through their bod ies. Even though Martin believes that this metaphor alone no longer dominates medica l practices, it certainly was evident
185 in the stories my participants told of the dizzyin g array of HRT treatments they used in an attempt to control their symptoms of menopause.5 The women also talked about their menopausal sympto ms as though their symptoms were acting upon their bodies, independent of any other factor, such as their stress levels or feelings, and without accounting f or personal situations. They appeared to view their bodies as fragmented and separate fro m their selves, as if they had no agency over their situations. The body-as-machine metaphor encourages this type of thinking in terms of womens bodies. For example, when discussing her menopausal symptoms, Alexandria stated: It was really embarrassing before I started taking it. I was working and I was doing make-up and treatments on ladies faces and I would break out into a sweat. One day this lady says to me, Are you having a fla sh? I said, YES! And I started having night sweats and everything, and not being able to sleep. When discussing her weight problem, Stephanie state d, I have learned that hormones keep you kind of fat and I have totally lost my, eh not ambition, but my desire to exercise. I got into this thing with a personal tr ainer, but then all of a sudden I did not want to do it anymore. It kind of coincided with m enopause. And Jane described her mood swings while she was on Prempro as follows: I remember one day driving on 5 I attended several seminars on menopause in the Ta mpa Bay in the summer of 2002, and heard doctors refer to the bodies of menopausal women in ways tha t reminded me of the body-as-machine metaphor. For example, while listening to physicians lecture on n atural HRT, I heard physicians talk a dizzying lang uage of hormonal deficiencies and replenishment strategi es. They explained the symptoms of estrogen deficiencies, such as hot flashes, night sweats, va ginal dryness, foggy thinking; symptoms of estrogen dominance, such as mood swings, weight gain, fibroc ystic breasts, water retention, low thyroid symptom s; symptoms of androgen deficiency, such as low libido depression, heart palpitations, bone loss, and on and on, discussing progesterone dominance and deficienc ies, and low and high adrenal cortisol levels. The womens bodies were discussed as though they were c ar engines in need of lubrication, to be topped-off with fluids, such as estrogen, progesterone, and te stosterone, in order to stay in tip-top, working co ndition.
186 Gandy Boulevard and at one red light I just wanted to kill the driver in front of me. And at the next red light, I was almost in tears. Im just not that kind of person and had never experienced PMS to a large degree. And so I called the doctor and went, What have you people done to meIm psycho! Each of the women took either a synthetic or natura l form of HRT on the recommendation of their physicians. All but one of the women agreed to take HRT without complaint. Anna was unique in that she res isted her doctors suggestion that she start taking HRT. She explained: Im breezing along, and its about 1999, I guess I was around 50 and my doctor said, How are your periods? Well, they are a li ttle sporadic, I said. I was always kind of irregular. She said, Well, you rea lly should start taking estrogen now. And I went, Nah, nah, nah, nahI dont need that. Im not ready for that. But she said, Oh, you should because you r eally need it because you are a thin, Caucasian woman. You need to protect your bo nes, and you have heart disease in your family, you have colon cancer in yo ur family. You need to take it for those reasons. So, I went home and read every thing I could, and finally [after numerous conversations with my doctor] I agreed to take it. Never was happy about it. Even though some of the women changed HRT formulas as time went on, they worked with their physicians when making the change from one formula to another. Two of Martins (2001) medical metaphors mentioned earl ier, the body-as-machine and the body-as-a-signal-response-system, could explain the womens compliance with their doctors suggestions that they take HRT, in light o f the fact that the women framed their
187 menopausal bodies in terms of an estrogen-deficien cy model. But something else may be at work here, in addition to Martins metaphors. The women may have acquiesced to their doctors suggestions, because the biomedical model of menopausethat is, thinking of menopause as a medical condition in need of a tr eatmentis the dominant framework we use in our society when thinking about womens b odies in menopause. And this framework exists because in our society, we regulat e who has the right to speak on a particular topic, what they can talk about, and whe re they can talk (Foucault, 1972, p. 216). In the case of womens health and menopause, we listen to medical doctors, because we have deemed them to be competent voices of authority. And as medical textbooks frame womens bodies in terms of the meta phors I discussed earlier, and physicians learn from those texts, it makes sense t hat lay people would acquire the medical jargon used by physicians and use a similar framework, the biomedical model, when thinking about bodies in menopause. The biome dical model of menopause therefore serves to contextualize a womans knowled ge base and problem solving of this event. Age-Grading Bodies-in-Menopause Narratives that circulate in our society about mi ddle-aged women generally portray a womans story as one of change in terms o f decay, decline, and desperation (Gergen, 1990, p. 487). One marker for the beginni ng of this story is the onset of a womans menopausal symptoms. Women are labeled hea lthy, vibrant, and viable during their reproductive years, but once their ability to produce babies has diminished, they are suddenly labeled old. Menopausal discourse seems t o age-grade women and is associated with womens physical aging (Gullette, 1 994, p. 97). When the women spoke
188 about menopause, I heard them speak in terms of the narratives of decay and decline. For example, when discussing what menopause meant to he r, Alexandria explained: Starting menopause made me realize that Im getting older, that word o-l-d. Oh, I dont think it bothered me about getting older. I know I just wanted toIve always said I wanted to look good. I never wanted to be overweight. I didnt want to be a fat sloppy mother, like not take care of myself. So my weight was always kind of important. And even though I had ga ined weight, I seemed to carry it pretty good. . And I think I just went with the flow, you know. I mean I just had to do what I had to do. So I went to the d octor and got the pills and tried to do what I could so I could function every day. . But you have to face reality, because nobody knows how long were going to be her e. You want to live each day well and good, and to the fullest, to enjoy eve rything around you, especially your children and grandchildren. Grandchildren com plete the circle of life. Thats what weve waited for. Alexandrias story is one of loss and decay, certai nly. But as she entered the menopausal stage of her life, she continued to self-regulate h er body as an object of desire for the male gaze by trying to remain slim. And implicit w ithin her story was the idea that HRT would help preserve her body for a while longer, bu ying her some extra time as a desirable woman. During a focus group session, Anna spoke of her bod y in decline as a loss of attractiveness: I feel as though at my age, anybody my age, a man m y age, even 20 years older is looking for a younger woman. They are not looking for somebody who is in her
189 50s. There is such a, we are so into youth, no mat ter what they look like. If you are 30, you compare a 30-year old to a very attract ive 50-year old, they are going for the 30-year old. Stephanie countered Annas concerns with a complime nt, stating you are very attractive, almost movie star attractive. Nice bone structure and you are little. And I added how beautiful her skin looked. It appears that Anna, l ike so many other women, has bought into the traditional framework of thinking about me nopausal women as being over-thehill once they reach a certain age or stage of thei r lives. Ruby, who just turned sixty but looks like she is i n her late forties or early fifties, explained menopause in terms of limitations: Yes, I just turned sixty. I dont look at myself. . I guess even when I think it and say it, because I have people say, you are kid ding. And my older daughter, who will be forty in April, if we walk down the str eet, nobody would ever suspect. Although, because she is bigger, I think that she looks a little bit older, probably. I guess I am blessed with some fairly go od health, so I dont feel like Im sixty. I didnt admit I was old until I wrecke d my knee falling off roller blades and I just did that last year. I could hang in there with my kids and my grandkids, and I think that hit me. . I still h avent gotten back on them and I havent given them away. I dont roller blade anym ore, and I wish I did. Ruby recognizes some limitations in that she can no longer keep up with her childrens and grandchildrens activities, but she also believ es that she has outmaneuvered societal expectations that she look or act a certain way at the age of sixty. She tells us that she looks younger than her age and that most people can t guess her real age. And she
190 reports that she had been performing activities, su ch as roller blading, that we normally associate with younger people. Ruby, too, has boug ht into the traditional, medical model of understanding womens bodies that tells us that older women should look a certain way or act a certain way, but she has figured out a way to cheat the system. I noticed that many of the women complimented one a nother on how young they looked for their age, or how beautiful their skin w as. For example, during a focus group session, I complimented Stephanie on her wrinkle-fr ee complexion. And when I mentioned to Alexandria that I was in menopause, sh e responded, Well, youre too young to be. I think youre just too young to be. In another focus group session, several of the women asked me my age. When I responded tha t I was fifty-five, Jane marveled that I had the best skin. Another woman asked me i f my skin was so clear because I was using estrogen. I find the womens comments on age and attractivene ss intriguing, because a womans ability to make sense of and frame her expe rience in menopause and her body is affected by discursive formations that circulate in our society. Age-grading menopausal women, regarding them as over-the-hill and unappeal ing to men, are examples of the discourse that frames womens bodies. Michel Fouca ult (1972) explains that discourse is an event managed by society. For Foucault, knowle dge is all that is possible to speak about within any given discursive formation. This is so because we regulate and control who has the right to speak, and what each person is allowed to speak about. For example, as I mentioned earlier, we give doctors the power t o speak with authority on medical issues. We also define women according to the know ledge, which we also call truths, that we have circulating about them. In our societ y, we attempt to exclude topics that do
191 not conform to what we consider to be the truth (19 80, p. 131). We do this through what Foucault (1980) calls regimes of truth (p. 131), which are systems of power that produce and sustain the dominant truths or knowle dge in our society. For example, the medical community has two competing models of treat ment for womens bodies in menopause. We have the traditional medical view th at favors use of synthetic forms of HRT and the non-traditional or alternative medical view that favors the use of natural methods of HRT. Our society generally favors the t raditional medical view, as this is the view that has met the conditions for truth in our s ociety. This same idea applies to the knowledge and truths we have circulating in society about a womans body in menopause. And this process is recursive, in that when we use the terms circulating about older women, for example, we strengthen this truth, thereby reproducing and sustaining these discursive formations. Essentiall y, we try to box in knowledge and selfregulate ourselves through discursive formations in our society. This would account for Annas comments that a woman in her 50s is no longer attractive to men 20 years older than she is. This would also account for our belief in menopause as an estrogen-deficiency disease in need of treatment. All of these ideas are a part of the discourse that we believe to be true about a womens body. As I mentioned, when we buy into this understanding of our bodies, we strengthen that framework. When we acquire the terms and language that society uses to define menopausal women as old or over-the-hill, we also strengthen the me dical framework surrounding womens bodies. So I wonder whether the propensity for the women in my focus groups to compliment one another on how good they looked or h ow vibrant they were for their ages, was an attempt for the women to disperse or b reak through the traditional truths and
192 framework that define menopausal women in our socie ty. I think the women were attempting to resist the age-grading discourse on w omens bodies in menopause. But grounding their attempts to resist or break out of this discourse is the idea that they have bought into this age-grading discourse on menopausa l bodies. They appear to believe that other women who are 60 or in menopause should look or ac t in a certain way, but that they have been able to cheat or break through that agegrading framework by keeping their bodies younger-looking. This is a complex is sue that is difficult to sort out, because our attempts to keep our bodies younger looking, fo r example, by dying our hair or going to the gym to exercise, indicate that we, too, have bought into the age-grading framework for older women. And with these actions, we are at tempting to cheat the system. Believe me, when my gray roots begin to show at the end of each month, I run to the hairstylist for a fresh coat of hope-to-look-younger hair col or. And when Stephanie and I bemoan the extra weight we are holding, or talk about our bodies not looking like they did when we were younger women, we are also buying into the age-grading framework for older women. I also heard this age-grading framework whe n I told the younger participants, Bunnie and Jane, that they were way too young to be having problems associated with menopause, as they were both in their thirties. So its very difficult to move away from or outside this age-grading framework for womens b odies. The women talked about sex in terms of reduced desi re. Jane had a difficult time with sex because she was taking too much estrogen a nd getting headaches from it. Stephanie explained, Im still having sex. Sex is just fine. I dont want to have sex, but its still kinda okay and fun and I feel like it is a healthy thing to do. That hasnt changed . but I feel like its like being regular, goin g to the bathroom almost. Bunnie also lost
193 interest in sex. Im not interested. I mean, it s nice. Great, sometimes. But most of the time Im so tired. There are so many different thi ngs I need to do. So thats the last thing I want to bother about. You know? Come on, at the end of the day I just want to rest. Malika also lost her desire for sex. Theres noth ing. I am not interested in my husband. I am not interested in anybody or anything. I, to o, noticed that my sex drive had decreased, but it seemed to come back once I starte d taking HRT. Alexandria stopped having sex when her husbands heart medication caus ed him to have erectile dysfunction. For Ruby, vaginal dryness and her partners erectil e dysfunction were major challenges, but they have been able to overcome the problems wi th a lot of coordination. Loss of or lower libido can be a symptom of menopa use (Nappi et al., 2001). And all of the women spoke about some type of chang e in their desire for sex since they became menopausal: the result of a medical conditio n, a problem with their HRT formula, excess weight, or simply a dwindling desir e. They also spoke of vaginal problems related to intercourse such as vaginal dry ness, decreased vaginal lubrication, and loss of vaginal elasticity. But during the fin al interview process, I discovered that some of the women had other reasons for their lower libido. For example, during our final one-on-one interview, Bunnie confessed that s he had decided to leave her husband, and Anna, who had recently divorced her husband, wa s relishing her independence from men. Malika never specifically mentioned that she and her husband had become estranged, but I had made a note to myself after ou r final interview that her conversation about her husband seemed to indicate that he might not be visiting her in the States for a very long time.
194 Before the findings of the WHI were published, most of the women primarily relied upon their physicians for information about menopause. Many of them also read newspapers, searched the Internet, and garnered inf ormation from friends or other health care professionals such as nurses. And before they decided upon an initial menopausal treatment option, they had conferred with their phy sicians or were told by their physicians to take HRT. After the WHI results were published, the women appeared to take control of the decision-making processes relat ed to their bodies and menopause. Stephanie relied on her doctor for advice, but made her own decision on what changes to make in her medication after she read ab out the WHI findings. My doctor asked if I would like to switch over to something e lse because of all of the dangers associated with estrogen [after the findings of the WHI were published]. He said that I could try progesterone, plain old progesterone, for a while. She tried progesterone but her vulva itching returned. She took herself off h er prescription progesterone, as it wasnt working for her and consulted her doctor aga in before deciding to return to HRT. So I caught my doctor in the hallway and I said, I think I want to go back on the Prefest. He said thats fine. You have to do wh at makes you feel good. If I were a woman and I had symptoms, I would probably t ake estrogen too. I envision taking HRT as long as they keep my symptom s at bay, and I dont know how long that is going to be. Its made a big diff erence taking HRT. I plan to stay on it as long as I can. Alexandria, like Stephanie, assumed greater agency once the WHI was published, deciding to go off HRT. The WHI results put a scar e in her.
195 I called my doctor after the Crosstown forum and to ld him what was discussed and what was happening, and he said go ahead and gr adually taper the medication off. Do it in a few weeks time, and youll be okay So I did, but I didnt taper off slowly. I went off quicker than he said. He told me to get something from the drugstore, one of the natural things. I cant reme mber what it is now, because I took it for a short time. I did get some hot flash es at first, but I didnt have terrible hot flashes and I wasnt pulling out my ha ir or anything like that. I was okay with it. I feel like Im okay. Im over it n ow. Alexandria is no longer taking HRT. Anna, who didnt want to take HRT, began taking HRT on the advice of her doctor, but quit when she heard the WHI findings be fore consulting her doctor: And then the study came out . And as soon as that s tudy came out, that was my ammunition to quit. I called them [the doctors office] and t old them I was going to quit. But I had, of course, already quit . . She is no longer ta king HRT, but continues to take an antidepressant. Jane wasnt too concerned when she read the results of the WHI in the news. She explains: I have to be honest. I did not call my doctor the day I read about the thing [WHI], because I knew they were getting thousands of phone calls. But I made an appointment to visit my OB-GYN at the time and my i nternist about a month later. I figured what are four weeks going to matt er? I really wanted to be able to sit down and talk with both of the doctors instead of being passed through. And I knew they had to be getting a gazillion calls. But after sitting and talking with
196 them and reading a little bit more about the resear ch, it doesnt [bother me]. I mean there were lots of women, and the demographics showed other things, other health issues. Age factorsand a lot of them were overweight. A lot of the women had health problems, heart problems, and bloo d pressure problems. So, it wasnt necessarily a good generalization, I dont t hink. . All of the doctors Ive gone to say that the risks are far less than the po sitives that I am getting from being on the HRT. And it sure does make me a littl e bit more sane and my family probably appreciates it too! Ruby cut her dosage in half as a result of the WHI findings. She had been taking Prempro, which was the HRT formula that was implica ted in the WHI results. She explains: I told [my doctor] that there was some discussion a bout taking nothing. You know, Ive been on Prempro since I was 50 and was j ust at the point where I was beginning to cut back when I saw an advertisement f or the seminar on menopause and very shortly afterwards the articles came out a bout how bad HRT was for you. Prempro was probably the worst one and frankl y all of my friends were taking something else. By that time, I figured I h ad been on HRT for 7 years, so if they were going to kill me, maybe I would have b een dead, so I kept taking them. I wont say I didnt worry about it, but I d idnt immediately make a change because I wasnt going to a doctor on a regular bas is at that point. I told the doctor that I had cut my pills in half. In other w ords, Im taking one every other day. She was basically totally non-committal. And as far as the testing that went on [WHI] and everybody getting hyper about it, I do nt think she was
197 overenthusiastic about the testing results. She sa id it was very few people [who showed symptoms] and they were bigger people that p robably might have had more of that [heart problems] in their family. Ruby is currently taking Prempro. I did not make immediate changes when I read the re sults of the WHI in the news. I stayed on my Climara patch and Prometrium for a w hile longer, but eventually took myself off HRT. I am currently not taking anything to alleviate my uncomfortable symptoms of menopause, and I continue to suffer fro m severe hot flashes and night sweats. In the previous sections of this chapter, I examin ed womens sensemaking regarding menopause, and discussed how their sensem aking has been couched within a dominant paradigmthe biomedical model of health ca re. The primary theme of change emerged in their stories, which they experienced la rgely as decay, decline, and loss. I analyzed the womens talk using Martins medical me taphors and Foucaults ideas on discourse in order to explain the foundation for th e womens sensemaking on menopause. In the next section, I examine womens sensemaking in terms of their thinking about their bodies in menopause as a result of the findings of the Womens Health Initiative. To achieve this end, I examine the womens description s of the changes they undertook to determine whether they changed from the biomedical model of health care or changed their perspectives in relation to the medical metap hors that I discussed earlier.
198 Change and Reframing Watzlawick, Weakland, and Fisch (1974) describe ch ange in terms of a dialectic of persistence and change, and they focus on change as reframing (p. xiii). The authors postulate that persistence and change are c omplementary processes that ought to be considered together, as both contribute to probl em solution and problem formation in human relations. We have a tendency to view either persistence as the norm, the stable, taken-for-granted position and change as problemati c, or vice versa, when, in fact, either persistence or change can be viewed as the problem or the norm, depending upon the individual case and our perspective. Watzlawick et al. developed their ideas on persistence and change as a result of their work in family therapy. Invariably, two questions came to mind when they observed couples i mmersed in repetitive problems: How does this undesirable situation persist? and W hat is required to change it (1974, p. 2)? The authors were not concerned with the why or the historical, background information related to the problems, but rather, th ey sought interventions that could help the parties change. The authors discussed two dist inct types of change: first-order change and second-order change Both types of change, and the distinction betwee n them, will provide me with a framework for analyzin g the womens sensemaking on menopause and the WHI. First-order change is change that is concerned wit h members of a group or system and their relationships to one another within that group or system, so that any change within that group or system, or with any of the mem bers of the group or system, does not result in a change of the groups situation or prob lem. The authors refer to this as firstorder change: a change within a group or system tha t otherwise remains the same.
199 Second-order change is concerned with the totality of a class rather than with a group or system, or with the individual members of that grou p or system. The authors refer to a change that transcends the boundaries of a system o r group at a meta level as a secondorder change. One of the interesting aspects of a second-order change is that going from one level to the next higher (i.e., from member of a group to a class) entails a shift, a jump, a discontinuity or transformationin a word, a change [that] provides a way out of a system (Watzlawick et al., 1974, p. 9). This is reframing. The authors use the example of a dream, a nightmare to explain the difference between first and second order change. If I am hav ing a nightmare, I might try to change my dream by running, jumping, or hiding, but no mat ter what change I make, I am still in the nightmare. Any of these changes I mentioned ar e considered first-order changes, as they dont affect a systemic change or a change in my behavior called dreaming. But if I terminate the nightmare by waking up, then I have a ffected a change that is not a member of the group. I have affected a second-order chang e, as I have provided a way out of the system. Second-order change is an everyday phenomenon, mor e common than we might imagine (Watzlawick et al., 1974). But, to accompl ish it, we must step out of the boundaries of our framework and into a new one. An d because we must reframe, secondorder change may appear illogical, but only in rela tion to the boundaries of the group or system we are part of and the first-order changes w e make within that group or system. Second-order change means that we step outside that systems rules and borders in order to solve a problem. Second-order change is more si gnificant change, as it is the only way that one can solve a problem, whereas first-order c hange rarely solves a problem and
200 often makes things worse because the problem remain s contextualized within the same framework. I heard the women talk in terms of change, certain ly. They spoke of changing from one HRT formula to another once the findings o f the WHI were published. For example, Stephanie changed from using Ortho-Prefest to using progestin alone once the WHI results were reported. But, even though she ch anged the type of hormone, she framed her thinking in terms of the biomedical mode l of health care. Her change was a first-order change, that is, a change that stayed w ithin the boundaries of the system. Another change some of the women made was to move f rom prescription-based, synthetic hormone therapy to natural, bio-identical hormone therapies. For example, Jane began using bio-identical hormone therapies, and ex pressed a desire to explore natural therapies in more detail in the future. She too wa s definitely making a change, but because she was still adding estrogen and progester one to her body, the potential health problems associated with HRT and reported in the WH I findings remained the same. And she was still operating within the biomedical m odel of health care, in terms of thinking of her body as estrogen deficient and as a vessel to top off with fluids. In this case, the system has not changed and the frame rema ins the same. This too is a firstorder change, an example of what Watzlawick et al. (1974) term more of the same, as the underlying framework remains the same. Some of the women made their own decision regarding whether to continue taking HRT medication after the WHI findings were p ublished. For example, Stephanie decided what HRT formula to take, when to take it, and when to return to her old formula. She made a change, assuming greater agenc y over her health care rather than
201 relying on her physician to make decisions about he r body. In an earlier section, I mentioned that we give doctors the authority to con trol the health care conversation in our society, and it appeared that Stephanie was bre aking through this authority. Thus, this might lead one to conclude that she was refram ing by making a second-order change, a change that transcended the boundaries of the bio medical model. Her thinking, however, continued to be framed within the traditio nal, biomedical model of health care even though she made the decisions. In this instan ce, although she didnt use the words of her physician to direct her thinking, she had in corporated the knowledge or truths we have circulating about womens bodies into her t hinking process. She essentially selfregulated her decision-making concerning her body i n terms of the dominant medical paradigm. This process of self-regulating our deci sions in terms of the discursive formations in society is a form of surveillance of our selves and our bodies. Anna and Alexandria, also took greater agency in ma king decisions about their bodies after the WHI findings were published. They took greater agency and they also took themselves off of their HRT formula. Anna too k herself off HRT before calling her physician to talk about the WHI findings. She had changed her thinking about her body in menopause and HRT. And did so without consultin g her physician. She had found a way out of the biomedical model of medicine framewo rk and reframed her thinking, thereby making a second-order change, a change outs ide the system. Alexandria also took herself off HRT, thereby making a second-order change, even though she did talk with her physician about it. She too had found a w ay outside the boundaries of the biomedical model of health care and made a change t hat transcended the boundaries of the biomedical model of health care.
202 Emily Martins (2001) metaphors are useful in cons idering the womens reframing. In an earlier section, I mentioned that some of the women changed from one type of HRT to another, such as Anna, who changed f rom using Prempro to the Vivelledot before the WHI findings came out. At that time she was operating within the bodyas-a-machine metaphor. When the women used terms associated with the biomedical model of menopause, such as estrogen-deficiency o r ovarian decline, they, too, were operating within the biomedical model and were stre ngthening the boundaries of that biomedical frame. Before the WHI findings were pub lished, the womens physicians suggested alternate kinds of medicines to help with menopausal symptoms, either in addition to HRT or in lieu of it, such as sleeping aids, mood-controlling drugs, and drugs to help with bone density. In all of these situati ons, the frame was the biomedical model. The physicians also suggested alternate kinds of me dicines to the women after the WHI findings. For example, Anna stopped taking HRT but eventually began taking an antidepressant, and Jane added an anti-depressant medic ine to her HRT medicine regime. Both of these women made changes, but they were mo re of the samefirst-order changes, as the women were still thinking in terms of the body-as-a-machine metaphor. In terms of the womens sensemaking, once they had time to digest the findings of the WHI, I discovered that some of them expresse d a concern that their bodies will suffer adversely as a result of taking HRT in the f uture. For example, Stephanie explained: I have learned that HRT could be dangerous, if you have a propensity towards breast cancer, but that hasnt stopped me [from usi ng HRT]. . There is always the nagging concern that maybe its going to cause problems that you wouldnt
203 have had otherwise. . I think I feel somewhat i mmune because I dont have a history of a lot of bad things. Anna, on the other hand, was concerned that her bod y will suffer adversely in the future, because she isnt taking HRT: I wonder, are we silly for not taking it [HRT]. Ar e we going to end up all wrinkly if we do live to be 90? But dont we have medicati on for our bones and better studies to assess whether we have osteoporosis. If we are smart, we are keeping track of our hearts and we wont get heart disease. Jane was confused, because she was given conflictin g information: Im probably more confused than anybody on what to do with that, you know. Some people say, Okay, you are 39. Its been two years on it, you should definitely be off. But others say, You are only 39, and you should really be on it a little bit longer. And you know these are pe ople who are reading all of the medical research. Im not qualified to go and read all of this medical research. So you are really up in arms. You need to be your own advocate when it comes to the medical community. But its hard when you a reI feel challenged, because that is not my educational background and I dont have all of the tools at my fingertips. So the best I can offer is to go to the doctor twice a year, and see what the latest and greatest of what they are findi ng out is. I do want to track down, and you may have this in your notes, . th e doctor that Bunnie went to in Brandon. I would like to track that down and go an d talk to him. Just because Bunnie was so impressed with him, and he seems to b e focused on that
204 [menopause] and I think some of it is you need to f ind someone . who focuses in on that. Alexandria feels let down by the medical industry: Yeah, well, certainly taking hormone replacement th erapy didnt help my heart because my first gynecologist says, this will be g ood for your heart, just in case, since your mother had problems. This will be good for you. But come to find out from that article [on the findings of the WHI] that it might be a worrisome thing. At first theyre telling you to take, take, take this, youve got to have this, and then the next thing you know, down the road a y ear later or so, they are saying dont do this or dont take that because tada, ta-da, ta-da, this is going to happen to you or youre going to get this if you ta ke it. And it makes you feel like theres something wrong with the pharmaceutical ind ustry. They seem to be rushing to judgment by saying yes, HRT is okay, a nd people are waiting for the miracle and the cure. . Im not taking it and w ont if its going to cause any other problems or future problems of cancer or what ever was mentioned. Ruby was mainly confused over future prospects for medical information on HRT: My bigger problem with this is what are they taking now? And are they going to come up with a study in 5 years to say that everyth ing women are taking now is not good for them because it is all new stuff? My other concern would be the fact that I have been taking it now for about 10 years. That, I think, was the other thing that my doctor agreed with. If I were going to have a problem, it probably would have happened already.
205 And I am concerned about my body. I continue to be concerned about the effects of not having enough estrogen to nourish my vagina. Will I endanger my body down the road without estrogen? Will my bones become brittle wit hout estrogen? Will I develop osteoporosis without estrogen? But I firmly believ e the risks of taking HRT outweigh the benefits, in my situation. I am afraid I might dev elop a heart condition down the road if I were to have continued taking HRT. And, if I devel op a heart condition later, I would never know if I caused the problem by taking HRT. Alexandria appears to be the only woman in the gro up who was able to free herself of the biomedical model of medicine, in ter ms of thinking about HRT and menopause, as she was the only one who was not conc erned with stopping her medicine and not replacing it with another form of hormone m edication. She broke out of the body-as-failed-production metaphor. And she didnt appear to regret her decision. Anna and I, on the other hand, stopped our HRT, but we c ontinue to think in terms of our bodies as estrogen deficient and to worry about the future health of our bodies as they age without the benefits of HRT. This conversation about womens bodies-in-menopaus e will continue, I imagine, until we are able as a society to reframe the way w e think about womens bodies. But there may be hope for change, according to Foucault (1980): The problem is not changing peoples consciousness or whats in their heads but the political, economic, institutional regime o f the production of truth. Its not a matter of emancipating truth from every system of power (which would be a chimera, for truth is already power) but of detachi ng the power of truth from the
206 forms of hegemony, social, economic and cultural, w ithin which it operates at the present time. (p. 133) Foucaults analysis suggests that it is possible fo r our society to reframe the way we think about womens bodies in menopauseto break through the biomedical model of medicine and change the age-grading discourse that circulates about womens bodies in menopause. We can do this though discourse. But i n order to achieve this end, we need to make a second-order change, or a change that tra nscends the boundaries of our current way of thinking about womens bodies in menopause. I dont know exactly how this might be accomplished, except by one woman at a tim e talking and thinking about her body in ways that resist the dominant paradigm, so that we can hear new voices about womens bodies in menopause. In this chapter, I discussed the womens framing a nd sensemaking regarding their bodies in menopause. In the next chapter, I discus s the final words the women had about their bodies in menopause and provide a few closing remarks about my study.
207 CHAPTER FIVE FINAL PERSPECTIVES In the previous chapters, I examined how the women in my study have been making sense of menopause in light of the recent fi ndings of the Womens Health Initiative (WHI). In this chapter, I discuss the w omens overall ambivalence regarding menopause, describe their hopes for the future, lis t avenues for future areas of research, and discuss a few final reflections and impressions of my research project. Ambivalence During the interviews and focus groups, the women s hared a variety of concerns with me and discussed many issues related to their bodies in menopause. Frequently, they spoke about menopause as bringing changes, esp ecially decay decline, and loss: over aging bodies, failing health, and lower libido Throughout our discussions, the women spoke about the contradictions and dilemmas t hey faced as they tried to sort through the conflicting information they have been receiving about the effects of menopause and HRT on their bodies. Some expressed a concern for their health because they had been using HRT before the findings of the WHI were published. Others expressed a concern for their health for taking HRT after the findings of the WHI were published. But regardless of whether the women cho se to continue HRT or decided to quit taking it, they were perplexed over their futu res. The women felt as if they were flying solo, with no clear flight plan as to how to take good care of their bodies as they
208 aged. I, too, felt the same frustration and shared many of the same concerns as the participants. It is difficult to make sense of iss ues surrounding menopause and our health, especially because both appear to be bundle d tightly together. And our menopausal bodies are also contextualized within th e discursive formations I discussed in an earlier chapter. It is as if we are trying to s teer through dense fog late at night with the high beams turned on: as hard as we try to illumina te the path ahead, we are left instead with a murky view of what is in front of us. Sever al of the women summed up this ambivalence: Anna: But that is how it is now, I mean, nobody kn ows for sure if we should be on it or not. That is where Im uncomfortable now, if we are doing the right thing or not. Should we be on HRT or not, you know? Im not, and that worries me, but yet I dont want to be on it either, so it makes you wonder. Stephanie: I thought well, maybe I ought to go off and see how I feel. I was afraid to because I think in my mind I feel like HR T is some kind of elixir of youth that would prolong any positive effects of premenopause. And I didnt want to do it, but you cant help but want to experiment a little and see if there would be any repercussions. Alexandria: It seems like I got through it, I gues s, okay. Like I said, if it hadnt been for those horrible pills, that we now know wer e horrible. At least it helped me get through it. I was able to work at my job and able to function at home. In the end, the women were left with little to comf ort them as they tried to sort through the conflicting and often contradicting information over HRT, the WHI, and how to take care of themselves as they entered this menopausal stage of their lives.
209 Wishes I asked the women to tell me what they would wish f or if they could wave a magic wand and have anything about menopause addres sed. Here are their voices: Malika: Make it be easy. Few hot flashes. No nig ht sweats. Bunnie: Let it be fast. Why does it have to start so early? That it doesnt happen at all. The transition sounds so difficult, why do es it have to happen that way? Let it all be clear. Anna: If Im gonna live to be old, I would like to be healthy. If all of these changes mean that something is going to happen to m e down the road because I did or did not take HRT, I just want to be healthy. Stephanie: If I could just be like I wasand I don t mean looking and all that stuffbut if I didnt have to worry about taking a pill. Its always nice if you can eliminate a pill in your life and if I could have t he symptoms alleviated without taking medication. Ruby: I wish I didnt have the dryness. Jane: I guess the mood swings that Im starting to get. That would be nice. To breeze right through it. Not have it! I heard in the womens wishes confusion not only ab out how to manage this stage of their lives and how to cope with the uncomfortab le symptoms associated with menopause, but also ambivalence over a bodily proce ss that is a part of being female. I hesitate to label this female bodily process as na tural, because its impossible to separate fully the body from the discursive formati ons in society that frames the way we think and talk about a womans body. I do continue to wonder how much of the way the
210 women made sense of their bodies in menopause is th e result of the way we construct and control womens bodies in our culture. It is as if our bodies were made of soft clay, to be kneaded and shaped by the powerful hands of society until we have been molded into one-size-fits-all cookie-cutter shapes and consumed by our culture. This would account for some of the concerns I heard the women express in the focus group and individual interviews about wrinkles, weight, or general attra ctiveness. There is also a recursive nature to the construction of our bodies, and, as w e participate in the construction, we reinforce the boundaries of this framework. Unfort unately, rejecting our bodies starts so early in life. I am in my fifties now, but I can v ividly remember how I felt at the age of ten on the day I had my first period. I was alarme d and terribly embarrassed to have so much blood gushing out of me. I didnt know what t o make of this event or of my body. And even though my mother celebrated the start of m y period by taking me out for an ice-cream sundae, it didnt seem fair to me that I would have to tolerate such a bloody mess month after month for years and years to come in the name of growing into a woman. I felt a similar sense of embarrassment an d alarm when I was forced to wear my first bra. I remember that I hated having somet hing foreign tightly wrapped around my back, so every day on my way to school, once I w as outside my mothers sight, I would hurriedly exchange that tight brace around my body for the comfort of a soft, cotton undershirt. So, as an innocent young girl, I tried to resist, in my own way, at least one of the rules governing the female body, but in doing so, I wonder if I was also starting to reject my female body.
211 Future Areas of Research I have several ideas for future research projects o n my topic. I would like to talk with physicians to discover what they are telling t heir patients about menopause, HRT, and the WHI. I would want to talk with physicians who work within traditional medicine and those who work in alternative medicine. I woul d also want to talk with physicians who work with insured patients and also with those who work with uninsured patients. I would also like to talk with women from different demographic backgrounds, such as women of color, women with lower educationa l levels, lower-income level, and women who rely on health clinics for their medical needs. I would, however, want to continue to work with women who were in some distre ss as they approached menopause, as these women in my study were, even though I did not set out to intentionally select women who were in distress. But I did so inadverte ntly when I selected women from those who had attended the seminars in the Tampa Ba y area after the WHI findings were published. This feature of my study departs marked ly from Emily Martins findings. The women in her study did not find menopause remar kable, as the women did in my study. The women in her study were not experiencin g uncomfortable symptoms. Some may have been taking HRT, but as her study was comp leted long before the findings of the WHI were published, none of her participants ha d been told that HRT could be a big problem. I imagine, otherwise, she might have had some distressed women too, concerned about osteoporosis, for example, or vagin al dryness, once they stopped taking HRT. I would, therefore, hope to continue a conver sation with the participants of this study, and possibly to contact them again in 5 year s to see what their current thinking is on menopause, HRT, and the WHI, and to learn whethe r they do eventually forge a path
212 toward using language that doesnt age-grade bodies in menopause. And I would also hope to interview the participants husbands or par tners, or the husbands or partners of other menopausal women, to see how they are making sense of bodies in menopause. Final Words I asked the women how they would like me to remembe r them and found their final thoughts filled with hope for their futures: Jane: As someone who is living life and not gettin g upset about this situation, because this is still a work in process. And the r esearch is still a work in process and even though you turn the television on and some days there are horrifying new discoveries, you just cant go there. I mean, they dont know enough yet. There hasnt been enough research done yet. People havent been followed enough yet. Sometimes you have to take what the me dia says with a grain of salt. Sometimes they have a tendency to go over and beyon d. Anna: As a strong woman who isnt going to let lac k of estrogen get me down, or slow me down. Im on my own and I have to do for m yself and Im going to do it. But I think we need to keep educating ourselve s because everything changes so much. Opinions change and then these studies ch ange. That bothers me. Stephanie: As someone who is compassionate, yet no t too self-sacrificing. I dont want to destroy myself in the process of tryi ng to give back to the world. I certainly dont want to be thought of as being meno pausal. I would like to be thought of as healthy. Ruby: Life is good. Menopause just isnt a big pa rt of it. It doesnt bother me. I got on track with whatever I did when I turned 50, and10 years later, Im not
213 unhappy with it. I just still take it. I modified it to suit me. But life is good. And its been a long time coming. I began this research project as a result of my pe rsonal journey trying to cope with and make sense of the menopausal stage of my life. I wondered how other women were making sense of their bodies as they entered menopa use, especially as there has been so much conflicting information circulating about how to understand our bodies and how to keep them healthy during menopause. For a time, HR T appeared to be a panacea for the menopausal women, as it was heralded as a vehicle t hat could help a woman maintain her youth, beauty, and health into old age. When I fir st exhibited symptoms of and talked with a health care professional about menopause, I, too, was encouraged to use HRT to replace my estrogen deficiency in order to stay he althy into old age. But the findings of the WHI forced me and other women to reconsider our ideas about HRT, health, and our bodies in menopause. Through the individual in terviews and focus group discussions with my participants, I hoped to answer several que stions: What experiences with menopause did the women talk about? What common th emes or categories arose? How did the individual women make sense of the conflict ing information circulating about their bodies in menopause? What role did the WHI p lay in their sensemaking? I discovered that the stories the women told about their lives in menopause were stories about their overall well-being at this poin t their lives, as they, like me, found it impossible to separate menopause from the general s tate of their lives. And so we talked about our families, our work, our relationships, an d our hopes for the future. The women talked about vaginal dryness as readily as they tal ked about going through marital changes. They talked about hot flashes and night s weats juxtaposed next to the
214 wonderful support (or lack of support) they were re ceiving from their partners. They talked about various HRT treatment options that wer e available, and their opinions about these options, in addition to the dilemmas they fac ed trying to discover a label for some of the symptoms they were experiencing. They discu ssed alternate treatment options with one another, while talking about the struggles they had trying to find a doctor who was sympathetic to their situations. Sometimes the women talked about change in terms of loss: loss of libido, loss of elasticity of the ir vagina, loss of a marriage, loss of children, loss of their health as other types of he alth problems began to assert themselves, such as heart disease, diabetes, and high cholester ol. We talked about the realization that we were getting older and what that meant to us. I discovered that framing and sensemaking is an ongoing process and is subject to change and repositioning and reorganization as we continue to struggle with maki ng meaning in our lives. I learned that the women continually tried to change their si tuations in ways they thought might improve their lives, such as trying different remed ies, or trying to take care of their bodies on their own by rejecting the traditional HR T remedies. Some of the changes I saw the women make were first-order changes. For e xample, if a participant saw her body as deficient in estrogen or if she changed her HRT formula, the framework for her change remained the same and the problems she may h ave been experiencing also remained the same. In these instances, the womens sensemaking remained grounded within the biomedical model. But I did see some in dications of second-order change. For example, one of the women stopped taking HRT, f elt good about her decision, and didnt worry about future health repercussions of h er decision. But mostly, I discovered a courageous group of women who confronted daily chal lenges coping with negative
215 messages from a society critical of the aging, fema le bodya society that thinks less of a woman simply because she no longer menstruates, is showing a few gray hairs, or has a few extra pounds. When I reflected upon the womens frameworks for m aking sense of their bodies in menopause, I couldnt help but imagine that a ch asm existed between what the women said about their bodies and how they hoped to frame their bodies in menopause. For example, some of the women appeared to resist the a ge-grading language circulating about womens bodies in menopause when they talked about not feeling their age, or looking younger than their years, yet, making state ments like these served to ground their way of thinking about bodies in menopause within th e very age-grading language that they appeared to resist. The same is true when we couch our sensemaking in terms of the biomedical model of medicine or within the medical metaphors discussed in previous chapters. Im wondering, therefore, whether women s sensemaking about bodies in menopause continues to mark a point of incommensura bility in our society where we dont yet have a framework that allows for differin g perspectives to be put into words. Our sensemaking on menopause may constitute what Ly otard (1988) called a differend an unstable state and instance of language wherein something that must be able to be put into phrases cannot yet be (p. 13). But I see hop e for the future, in that the more we allow differing positions and different voices to b e articulated, as I have tried to do with my project, the more minority and oppositional view points and ways of thinking about and framing bodies in menopause will begin to circu late in society, developing new discourses about menopausal women. This is my hope for the future and one of the benefits I saw in the narratives the women told me about their lives in menopause.
216 When I began my journey into menopause, I noticed t hat I had developed a problem concentrating. I confided my worry to my g ynecologist and asked her if this would be a permanent state of my mind in the future now that I was going through menopause. She told me, no. She said that women who have been through menopause have gone on to achieve great accomplishments in ou r society. Her words comforted me that day, and they continue to offer me hope for ou r, and my, future.
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225 Appendix A Telephone Screening Interview Script Name of Interviewee _______________________________ _______ Hi, my name is Linda Vangelis. Im a doctoral cand idate at the University of South Florida. Im following up on our discussion about possibly interviewing you for my dissertation project on hormone replacement therapy menopause, and the Womens Health Initiative. You may or may not remember tal king with me, but I met you at the __________________________ (Crosstown, WHI; Crossto wn, Dr. Lee; Tampa General, Parsons; Marriott Waterside; mini-med school at Per forming Arts Center) seminar on menopause, and at the time that we met, you said th at when I was ready to interview women about menopause that it was okay to call you. Have I phoned you at an inconvenient time? Im not sure if you would still like to be intervie wed, but I did want to ask you five or six questions, which will take a few minutes, if that i s okay with you. Then, we can talk about whether or not you would be willing to be interviewed and whether you would be appropriate for the study. Of course, your participation in this telephone interview is voluntary. If you participa te or not, there are no treatments involved in this telephone interview, and if you wa nt to stop at any time you may, just tell me and well stop. I will keep what you say confidential. The results of this telephone interview may be published, but the published results will not inclu de your name or any other information that would personally identify you in any way. May I have permission to tape our conversation? Would you state your name for the re cord? May I have permission to use the results of this interview in my project? Would you give me a pseudonym, a fake name, to represent you, in place of your real name? How old are you? Between: 30-35 36-40 41-45 46-49 50-5 5 56-60 61-64 65 and over
226 What is your race? Caucasian African American Latin a (specify)___________ other____________________ In terms of menopause, where do you see yourself a t the present time? (What stage? Ask only if participant is confused about t he question.) (I wont ask for these categories, but will circle the response or write in her response.) Perimenopausal Menopausal Postmenopausal Do you still menstruate? When did you stop? Have you used any kind of hormone replacement thera py at any time in the past? What have you taken? Who recommended that you take it? How did you get it? (prescription/health store etc .) Why did you decide to take it? Are you on any kind of hormone replacement therapy now? What are you taking? How long do you envision taking this? Who recommended that you take it? How did you get it? Why did you decide to take it? If not on hormone replacement therapy now: Why did you stop taking it? (if previously using) Or
227 Why have you decided not to use it? (if never used ) Do you follow in the news the number of stories on hormone replacement therapies and menopause? If no, where do you get your information on menopa use and hormone replacement therapy? If so, what have you learned? When you think of menopause, what comes to your min d? I have a few background questions: Do you work outside the home? If so, what do you do? What is your educational level? (if the woman is not verbal or I decide not to incl ude her, then Ill say: Thank you very much for spending time with me today. Ill put you r responses in my study. If you need to call me for any reason, Ill give you my home nu mber and my work number.) Or, Let me tell you a about my project then Ill ask if you would be willing to be interviewed: This is the process: you will need to come to 3 fo cus group sessions (each one of them 1 2 hours). The first one will be held at the De partment of Communication at the University of South Florida in Tampa, and subsequen t meetings may be held at my apartment, if we feel it might be more comfortable. Ill also interview you on two separate occasions individually (each interview abo ut 1 to 1 hours), and we can meet at a location convenient to you for the one-on-one int erviews. I also may phone you from time to time to ask you a follow-up question, or to ask you to clarify a response. I imagine that you will need to spend approximately 9 -16 hours on this project. The number of hours will depend upon whether or not you want to attend additional focus groups besides the three that I mentioned earlier. Ill also ask you to sign a consent form, which will give me the authority to use your conver sation and ideas in my research. Would you be willing to be interviewed? Would you be willing to come to 3 focus group sessi ons?
228 What days/times work best for you? As you know it might be difficult to accommodate everyones schedule, so, I wanted to ask were you f eel you might have some flexibility when you think about the days that you might be ava ilable. Let me give you my phone number at home and at the University, so that you may also phone me if you want to. My home number is: 813/9 14-8464 and my work number is 813/974-2145. Ill also give you the phone number of my major professor, Ken Cissna, so you can contact him, if you want. His office nu mber is 813/974-6820. If you have any questions about your rights as a pe rson who is taking part in a research study, you may contact the Division of Research com pliance of the University of South Florida at (813) 974-5638. Ill be in touch in a week or so to let you know if I can include you in the study. Thank you so very much for spending time talking wi th me today.
229 Appendix B Screening Criteria for Including Women in the Resea rch Project 1. The phone number I collected is still valid be longing to the woman I met at the seminar. 2. The woman I spoke with at the seminar last year is either perimenopausal, menopausal, or postmenopausal. 3. The woman is interested in participating in the project. 4. The woman is willing to participate in two faceto-face interviews. 5. The woman is willing to sign a consent form to p articipate in the study. 6. The woman is willing to travel either to my apar tment, to a conference room in the Department of Communication, at the University of South Florida, or to another location for the focus group sessions. 7. The woman must be willing to attend and particip ate in three focus groups. 8. She must be available to attend the focus group session(s) during the scheduled times for this data collection stage. 9. She must be available for an individual intervie w on two separate occasions during the time parameters for this data gatherin g process. 10. She must be willing to invite me to her home fo r the individual, face-to-face interviews, or to meet me in a public place, or to come to my home for one or more individual, face-to-face interviews. 11. She must appear to be verbal enough for me to u nderstand her when I phone to inquire about her participation in this process. 12. I plan to try to balance women who are/have bee n using natural and synthetic HRT therapies in the past or the present.
230 13. I will inquire about a womans race in an attem pt to include a cross-section of women in the study. 14. I want to include older women, that is, women o ver 65, so I will also be asking for the ages of the women as a possible screening tool. 15. I will be making the decision on who to inclu de based upon how verbal and interested each woman appears to be in the study. And I will also include women who appear to be interested in talking about their experiences.
231 Appendix C Plan for the One-on-One Interview Including Questio ns 1. Review the consent form with the participant and an swer any questions she has about the process and the study. 2. Confirm her pseudonym. 3. Ask about her availability to attend the focus grou ps sessions. 4. Explain that today we are just going to spend some time getting to know one another. Tell me a little about yourself and your background? 5. Talk about my own background as it fits into our co nversation, if the participant is interested in knowing about me. 6. How did you first realize or recognize that you wer e perimenopausal, menopausal, or postmenopausal? I may confirm what type of HRT she is/was taking and how she feels about taking it. I plan t o follow her lead in our conversation on menopause. 7. Give her a disposable camera. Ask her to take pict ures of her life in menopause and explain that I will pay to have two sets of pri nts made. We will discuss these pictures during our final conversation together. A sk her to bring the exposed film to our first focus group session, so that I can hav e the film developed. I will give her the negatives and one set of prints during our final interview session. Ill keep one set of prints for my study, but I will not be u sing her pictures in my study in pictorial format. 8. What else would you like to tell me about yourself? 9. What other questions can I answer for you about the study?
232 Appendix D Interview Questions for Final One-on-One Interview 1. Tell me a little more about yourself and your background. 2. Earlier, in the focus group, we had a general di scussion on how you first discovered you were starting menopausal. In refle cting upon that discussion and your opinions, would you tell me more about your e xperiences with menopause? For example, how you came to realize you were beco ming menopause, what you did about it, and what you are currently doing abo ut it. Tell me a story. (This will be part of the story of the womans exp erience in menopause that I hope to capture through the individual interviews and the focus group sessions.) Did you feel you were prepared for this life event ? How? How did you think your partner (if you are partner ed, otherwise you friend/family) viewed you once they became aware o f this life event? Who did you talk with about this? What do you now think of when you hear the term me nopause, since you have had time to live with menopause? If you could, what would you like to share with yo unger women about the experience of menopause? Why would you tell them that? 3. Lets look at the pictures you took of your life in menopause. Would you please explain why you took these particular pictu res? Why?
233 Could you be more specific? Tell me a story 4. Earlier, in the focus group, you had a chance to discuss your experiences with menopause with the other members of your focu s group. I would like to ask you how it felt to be a part of that discus sion group. How did it feel? Would you feel comfortable talking with the group again in the future? Why/why not? What would you want to share with them in the futu re that you might not have had a chance to share with them? 5. In the focus group, you had a chance to your tho ughts on the Womans Health Initiative and strategies and chang es you may have made as a result of the WHI and menopause. In thinking abou t your own health, would you tell me how the WHI findings affected your thinkin g on your health, hormone replacement therapies, and menopause? Do you plan to go on/stay on hormone replacement t herapy (again)? Why/why not? What changed your thinking since the WHI findings? 6. I would like to follow up on several of the resp onse you gave in the focus group. (These questions will depend upon the responses t he participant gave in the focus group sessions. Ask follow-up question s that relate to specific focus group responses.) Would you please clarify that response? What would you add to that response? 7. What else would you like to share with me about menopause, hormone replacement therapy, and the Womens Health Initia tive? 8. What would you like me to remember about your pa rticipation in this research project? 9. What do you remember most about the other partic ipants?
234 10. Would you like to change anything you told the group in earlier sessions? What? Why?
235 Appendix E Demographic Information Pseudonym Age Menopause Ethnicity Educational Typ e of HRT6 Term Related Stage Level to Menopause Alexandra 65+ Postmenopause Caucasian High School Premarin Sweats/Flashes Anna 50-55 Menopause Caucasian College Degree Pr empro Old Age Bunnie 30-35 Perimenopause Latina College Degree Progesterone Cream Mood Changes/Sweating Jane 36-40 Menopause Caucasian College Degree Ce nestin Old Age Linda 50-55 Postmenopause Caucasian Ph.D. (in pro gress) Climara Patch Old Age/Hot Flashes Lynn 65+ Postmenopause Caucasian High School Pre marin No Specific Term Malika 46-49 Perimenopause Caucasian College Degr ee Patch/Pellets Hot flashes Mary C. 50-55 Menopause Caucasian College 2 year s Alesse Hot Flashes/Depression (low dose birth control) Sleeplessness Ruby 56-60 Postmenopause Caucasian High School P rempro No More Periods Stephanie 50-55 Postmenopause Caucasian Masters D egree Ortho-Prefest No Longer Fertile Vina 41-45 Perimenopause African British College 3 years None Old Age 6 This is the type of HRT the women were taking bef ore the findings of the WHI were published.
236 Appendix F Focus Group Introduction and Questions Focus Group Introduction My initial introduction to the group will include the following statement: Ive asked you to come together to discuss your exp eriences with menopause in light of the recent findings of the Womens Health Initiative (WHI). I would like to keep our conversation open and as flexible as po ssible, so that each of you may have the opportunity to share your opinions in your own way, with very little prompting from me. So, over the next hour and a ha lf I would like each of you to share with the group your personal experiences in y our stage of menopause, in light of the recent findings of the Womens Health Initiative. Ill probably begin by asking a general question to get our conversatio n going. Please feel free to move the conversation in any direction you would li ke to go. And please feel free to share any of your opinions with the group. On occasion, I may interject a question or two to clarify your response or to ask for additional background information. Since I am also a woman in menopause, I will be interjecting my own comments and opinions with all of you as we go along. Before we begin our discussion, I would like to ans wer any questions you might have. What would you like to know as we begin our discussion? (Respond to the questions.) Please feel free to walk around, o r grab something to eat as we talk. Lets get started. Focus Group Questions. (The following questions are illustrative of the is sues and topics I hope are discussed in the focus groups). 1. As a woman in menopause, (or a woman approaching menopause), would you tell us how you see this stage of your life? For example, what comes to your mind when you hear the word menopause? What experiences do you currently have about menop ause?
237 2. What are you doing, if anything about your exper iences of menopause? For example, are you currently taking anything, su ch as hormone replacement therapy? If so, what are you taking? When did you start taking that? Why are you taking that, by this I mean, what prom pted you to take this? Who recommended you take this? Who did/do you turn to for help with your decision s? Have you changed to anything else? What did you change to? When? Why? Who recommended you take this? Who did you turn to for help with this decision? 3. Where do you get your information about menopaus e? Have you followed the recent news reports on menop ause and hormone replacement therapies? What have you learned? Were you taking any type of hormone replacement th erapy before you heard about the findings of the Womens Health Initiativ e? How did you find out about the results of the rece nt study on menopause and hormone replacement therapy? Now that you have information as a result of the W omens Health Initiative, what are you doing differently to cope with your e xperience of menopause? Why?
238 What type of support would you like from your heal th care providers? 4. Where do you get your information about natural methods of hormone replacement therapies? What makes these therapies natural? Why did you start taking natural hormone replaceme nt therapies over other types? Where do you buy your hormone therapies? 5. Where do you get your information about prescrip tion-based hormone replacement therapies? How are these types of therapies different, in you r opinion than others? Why did you start taking these therapies over othe r types? Where do you buy these hormone therapies? 6. How do you feel now about hormone replacement th erapy? 7. Tell me about the first time you realized that y ou were menopausal. How did you discover this? What did you feel? Or What tipped you off to this? Who did you tell? How did your partner, if you are partnered, react? If you are not partnered, who did you talk to abou t this? 8. Has your life view changed as a result of becomi ng menopausal? In what way? Tell us about this. Tell us a story. 9. What is most important to you when you think ab out the Womens Health Initiative and your life in menopause?
239 Why? Tell use more about that. 10. If you could wave a magic wand and have your deepest concern about menopause addressed, what would you wish for? 11. What do you want from your health care provider in terms of menopause? 12. What else would you like to share with the gro up about you life in menopause, hormone replacement therapy, and the Womans Healt h Initiative?
240 Appendix G Asking Reflective Questions7 1. Have I connected the voices and stories of individu als back to the set of historic, structural, and economic relations in whi ch they are situated? 2. Have I employed multiple methods so that very diffe rent kinds of analyses can be constructed? 3. Have I described the mundane? 4. Have the participants reviewed the material with me and interpreted, dissented, challenged my interpretations? And how do I report these departures? 5. Have I worked to explain to the readers the positio n from which informants speak? 6. Have I considered how my data could be used for soc ial politics/policies? 7. Where have I backed into the passive voice and deco upled my responsibility for my interpretations? Where have I hidden my own authority behind the stories of my participants? 8. Who is rendered vulnerable/responsible or exposed b y my analyses? 9. To what extent has my analysis offered an alternati ve to the dominant discourse. 7 This list was derived from Fine et al., (2000, pp. 126-127).
ABOUT THE AUTHOR Linda Vangelis received her Bachelor of Science de gree in economics and her Master of Arts degree in communication from Norther n Illinois University. She worked in private industry in the areas of management, sal es, and organizational development prior to entering the Ph.D. program in communicatio n at the University of South Florida in 1999. As a doctoral student at the University of South F lorida, she taught communication courses as a Graduate Assistant in th e Department of Communication. In 2004, Ms. Vangelis received the Provosts Commendat ion for Outstanding Teaching by a Graduate Teaching Assistant. She is currently a fa culty member at East Carolina University, in Greenville, North Carolina, where sh e specializes in health communication, aging studies, and interpersonal com munication. She has presented her research at several conferences, including the Nati onal Communication Association and Southern States Communication Association.